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Thread: It's About Time

  1. #31
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,413
    Quote Originally Posted by Twisted Lifter View Post
    Right now, I just want to go home.
    Peter, I know exactly what you are saying.... Spend any decent amount of time in a hospital and the need to get some normality back in our lives kicks in. Everyone in the hospital was great, but this had nothing to do with that. I will admit that I was like a bull in a China closet, and had to get out of there. My powers of recuperation kicked in regardless of pain, regardless of what is right or wrong for the best recovery. Invasive open surgeries make perfect recoveries extremely difficult. The perfect recovery would be no pain, and no meds. I have experienced both.

    I also grew 4" ...when you rotate back into society, you will run into people you know that now have to look up at you. A lot of people couldn't believe it. "What happened?" "You know, scoliosis" "What is that?" "Well, It's a long story....."

    BMI calculations involve height and since we gained 4", we can now put on an extra 40# and get away with it. (smiley face)
    The problem is, I put on 80#. Yikes! My appetite at about 5 months post increased significantly. I don't know why this happened, but it did, I eat like I am 19. If I don't eat, the exhaustion gets magnified. Fatigue is a battle, there is no doubt about that. I lost 40# in 40 days after my surgeries, then gained 80# over the years.

    I had my first stepped improvement in pain at around 3 weeks. About 15-20% less pain. Something healed, hard to know where, but a pain producing area healed. All of a sudden this happened like a switch was thrown. Nerves are like that with no in-between setting. On or off. Was it the nerve?, or the inflamed surrounding tissues? We have a lot of that after our surgeries....

    Anxious to hear about your next step. It should come soon.

    Are you experiencing hot and cold spells? Temperature management? I had my heat up pretty high for a while and set some gas bill records.

    If you are cold, here is an amazing video that will heat things up. Iceland May 2021.
    https://www.youtube.com/watch?v=ReOI...nTheWholeWorld

    Ed
    49 yr old male, now 62, the new 63...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  2. #32
    Join Date
    May 2010
    Location
    Burlington, Ontario
    Posts
    41
    21 Days Post-op
    Sorry for the length of time between posts. It is really a matter of energy, which is a bit limited these days.
    Healing is going well.
    I left Bridgepoint Active Healthcare rehab Wednesday morning and am now home.
    I can't complain enough about the wait times in Ontario Healthcare, but once in the system, I cannot say enough wonderful things. Amazing professionals through and through. Dr. Lewis is a true genius. Bridgepoint is an outstanding facility to which I was very lucky to have access.
    My physiotherapist told me that I was a surgeon's ideal outcome. I feel sore, but the agonizing pain is successfully under control.
    I had one little blip early yesterday morning when I fainted on return from the washroom. This got me a trip to Emergency and a good bump on the knee. Fortunately, no other ill effects.
    Ed, you are again 100% correct about the thermal variances. I thought it was just me until you noted it. I go from cold to hot and from hot to cold quickly. I wake up in sweat-soaked sheets, but feeling chilly.
    I think pain is going down, per your predictions. Most of the time, I feel (again, this is relative) what I would describe as uncomfortable, as opposed to agony, like if I flew to Europe in the middle seat in Economy and the flight was 6 hours late. Not fun, but tolerable.
    As promised, I have added my Before and After pictures.
    I am working on my walking, which feels different than before. My right arm no longer has the urge to hang out as a counterbalance. My feet and hips are straighter. I am focusing on walking shoulders back but relaxed and head up. I am using a rollator walker not for balance, but to be sure to have a place to sit when I tire when outside of the unit. See aforementioned energy comment!
    All in all, I am feeling pretty positive. Feeling sore and tired wears thin quickly, but time will improve this.
    Attached Files Attached Files

  3. #33
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,413
    Quote Originally Posted by Twisted Lifter View Post
    21 Days Post-op
    Ed, you are again 100% correct about the thermal variances. I thought it was just me until you noted it. I go from cold to hot and from hot to cold quickly. I wake up in sweat-soaked sheets, but feeling chilly.
    Yeah....lava is hot....roughly 2000 deg F (smiley face) Once I managed to get within 6 feet of flowing lava out in Hawaii and it was like sticking my head in an oven.... Lava flow destruction is one thing, but the gasses that waft will kill you. I inhaled some of that extremely harsh gas and will never go back to any volcano EVER again! That video I posted is probably some of the best footage I have ever seen....

    Some lava has titanium in it....Somebody's future scoliosis hardware in the making! (smiley face)

    Opoid's are like that also...and I have that love/hate relationship with them....

    I cut back hard to due to PAINFUL constipation (history of 9 day paralytic ileus) and respiratory depression. The respiratory depression is scary because you have to actually think about breathing. That sure got me UP on my feet right away walking....and I wouldn't lay down until it passed. During that period I was freezing, and a minute later was melting down....Freezing/sweating, freezing/sweating. I weaned off some extremely powerful meds. The hospital told me that they ran the most powerful medication regiment they had....

    https://pubmed.ncbi.nlm.nih.gov/223174/

    You mention that you think your pain is going down....and this is really hard to judge with everything that is happening. Upon initiation of pain, surgical or neuropathic, or even a stove burn, can be intense in the beginning and of course our minds are focused on that pain..... After some time, the perception of pain lowers...especially with a stove burn, how much healing happens in the first 30-60 minutes? It's not that bad after 30 minutes in cold water. On one of the neuro sites years ago, it stated that if you think about pain, that's exactly what you get....Watch a comedy or laugh deeply at a great joke and the pain suddenly disappears....Amazing how that works so well...

    Intense pain lowers in time and gets replaced by not being able to get comfortable....You spend every single minute trying to get comfortable in scoliosis recovery. If you find a position that's comfortable, stay in that position as long as you can. It becomes the most valuable thing in our recoveries, and we try to get a few winks in if we can. Of course the pain will wake you up, it's just a matter of time, and you repeat this process. The foam topper helps with this as its softer on the contact points. Hot water helps with pain. I took 5, 30-40 minute hot water soaks per day for 90 days. I would check the water temp with a hot tub thermometer. I did not use my hot tub since I was afraid of a fall on the steps. I used my large master bath tub. A regular sized tub is not deep enough since you need to stretch out straight and float. No sitting in a bent position. After a while, I would transfer to a kneeling position in the tub with back straight while the water slowly cooled down. The hot water at 106F would get rid of pretty much all of the pain in 10 seconds. 106 is HOT......drink a lot of water if you do this. A quart of water.

    Nice x-rays! You can see the rotation of your vertebrae by the angle of the pedicle screws. Your T9 has the most rotation. Count down the levels from the top at T1 on the right rod. Both screws wing to the left on that level. I have the same thing on my x-rays in my signature. There is a missing screw on T7. I think it fell down my pants leg one day. He he Actually, they didn't have a clear trajectory from wedging after all the years.

    Walk like a model. Head up, not looking down....no walker unless you feel you are going to fall. Spine erect, or vertical. When I would do my walks, I would walk one house and back and do it often, a few times per day. If you have your distance set, you limit pushing the pain too far....pushing the pain envelope. Go too far and it hurts! I used ski poles, they are a big help, and also great defense on preventing the big dogs from jumping up at you. Sometimes they know your in pain, older dogs, but not the younger ones...

    Be careful with the fainting....If you feel queasy, stop, go down on one knee to soften the blow should you fall.

    That was a big T curve. 90 plus and minus 10 degrees....depending on the moon of course (smiley face)

    Remember its ok to say pain has increased. Pain is your indicator should something go wrong.

    Hang in there...

    Ed
    49 yr old male, now 62, the new 63...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  4. #34
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,413
    Peter, It's been 40 days....I hope things are ok....

    You would think somebody would have done a scoliosis blues song at some point....

    https://www.youtube.com/watch?v=WN-w...=LenneBrusgard

    Ed
    49 yr old male, now 62, the new 63...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

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