Results 1 to 9 of 9

Thread: It's my 20 year anniversary!

  1. #1
    Join Date
    Mar 2004
    Location
    Canada
    Posts
    92

    It's my 20 year anniversary!

    Hi Forum Friends,

    It's been a few years since my last visit to the forum.

    I came back today to say thank you for all the support over the last 20+ years. The National Scoliosis Foundation & Forum has been such an amazing place to find support and community.

    To celebrate my 20 year anniversary, I wrote a children's book called "Bonnie & Her Brace."
    You can hear more about it here ---> gf.me/u/y7qw78

    My dream is for the book to become a resource for those newly diagnosed and prescribed a brace. I'd love to donate copies to various scoliosis clinics once it's illustrated and published.

    I wanted to share this here in case anyone wants to partner with me in making this book a reality. But also just to celebrate amongst people I know would get what a big deal it feels like to make it to 20 years post op, feeling great and thankful.

    All the very best to each of you in your various stages of your scoliosis story.

    Sending you love!

    Lisa

  2. #2
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    1,011
    How nice that you have done something so nice
    T10-pelvis fusion 12/08
    C5,6,7 fusion 9/10
    T2--T10 fusion 2/11
    C 4-5 fusion 11/14
    Right scapulectomy 6/15
    Right pectoralis major muscle transfer to scapula
    To replace the action of Serratus Anterior muscle 3/16
    Broken neck 9/28/2018
    Emergency surgery posterior fusion C4- T3
    Repeated 11/2018 because rods pulled apart added T2 fusion
    Removal of partial right thoracic hardware 1/2020
    Removal and replacement of C4-T10 hardware with C7 and T 1
    Osteotomy

  3. #3
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,344
    Lisa, long time, no see! I am surprised your rods have not frozen up there in Edmonton! (smiley face)

    I have no idea what bracing is like as an early teen since I was caught at age 16. Bracing was not recommended for my 50/50 "S" curve back in 1975. The diagnosis itself was a ton of bricks with a lot of questions...Your book will be a valuable adjunct to the available scoliosis literature.

    Congratulations on 20 years!

    Ed
    49 yr old male, now 62, the new 63...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  4. #4
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,712
    Lisa,
    Congratulations on your 20 year anniversary! My 10th was January 5. I'm glad to hear you are doing well. I think I'm doing fine, but will find out for sure on January 20th when I get x-rays for the first time in two years. Congratulations on writing a book! I'm sure that it would be helpful for those needing to wear a brace.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  5. #5
    Join Date
    Sep 2019
    Posts
    308
    Glad to hear some people are doing well. How often do you long-timers have checkups with your surgeons (or is it with some other doctor after so many years)?

    It would really help to hear from you so some of us can get an idea what the coming years might hold for us.

  6. #6
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    1,011
    I think most people do well. I was on a one year check up protocol. It was an easy check up.
    For me other things happened.
    We will see this time
    T10-pelvis fusion 12/08
    C5,6,7 fusion 9/10
    T2--T10 fusion 2/11
    C 4-5 fusion 11/14
    Right scapulectomy 6/15
    Right pectoralis major muscle transfer to scapula
    To replace the action of Serratus Anterior muscle 3/16
    Broken neck 9/28/2018
    Emergency surgery posterior fusion C4- T3
    Repeated 11/2018 because rods pulled apart added T2 fusion
    Removal of partial right thoracic hardware 1/2020
    Removal and replacement of C4-T10 hardware with C7 and T 1
    Osteotomy

  7. #7
    Join Date
    Sep 2019
    Posts
    308
    Quote Originally Posted by jackieg412 View Post
    I think most people do well. I was on a one year check up protocol. It was an easy check up.
    For me other things happened.
    We will see this time
    How are you doing, Jackie?

  8. #8
    Join Date
    Dec 2008
    Location
    illinois
    Posts
    1,011
    I am doing well. Still have a balance issue but it is improving. All I hope is that now my hand function will improve
    T10-pelvis fusion 12/08
    C5,6,7 fusion 9/10
    T2--T10 fusion 2/11
    C 4-5 fusion 11/14
    Right scapulectomy 6/15
    Right pectoralis major muscle transfer to scapula
    To replace the action of Serratus Anterior muscle 3/16
    Broken neck 9/28/2018
    Emergency surgery posterior fusion C4- T3
    Repeated 11/2018 because rods pulled apart added T2 fusion
    Removal of partial right thoracic hardware 1/2020
    Removal and replacement of C4-T10 hardware with C7 and T 1
    Osteotomy

  9. #9
    Join Date
    Sep 2019
    Posts
    308
    Quote Originally Posted by jackieg412 View Post
    I am doing well. Still have a balance issue but it is improving. All I hope is that now my hand function will improve
    Your head and neck are in a better position?

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •