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  1. #1
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    Aug 2019
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    Cause of New Pain?

    Haven’t been on forum for awhile but check in every so often. Have posted as single older person getting ready for surgery. My return appt w/ dr Gupta in January resulted in delays for my surgery then this virus hits. I have been suffering from chronic pain both from Scoliosis (30 degrees thoracic & 40 Lumbar) + Degenerative disc disease for a long time. When I read about others stories I am amazed at how you survive the pain. I’v never been able to tolerate pain. Presently I have a new type of pain in thoracic area. I am on short acting opioid since last September to do PT but have continued to use because nothing else helps. I have concerns staying on opioid for a long period of time (am well educated about addiction). I can feel my curves lying down on my back. This new pain started a couple of days ago. Given it will probably be 2 yrs for a vaccine to be confirmed for the Coronvirus I will be about 66. I am pretty sure I’ not going into a germ invested hospital until a proven vaccine is confirmed. Does the increase of curvature result in more pain? I don’t know how to handle it. Advice appreciated.

  2. #2
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    Sep 2019
    Posts
    320
    It seems plausible that more curvature could cause new pain.

    I don't blame you for wanting to avoid hospitals right now. I'm wondering if I'm going to go to a doctor's office in the near future and what it would take to get me there. Let alone a dentist, or nail salon, or hair dresser...The nail salon is not frivolous when your toenails are drawing blood because you can't reach them to trim them.

    I have no confidence in the fact that politicians are relaxing things. That doesn't mean everything will be just fine. People at risk still need to watch themselves, as you said.
    Last edited by Tina_R; 05-10-2020 at 12:03 PM.

  3. #3
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,472
    Real fast....Here is a list of things I have done, and others have done for scoliosis and scoliosis pain. Highly disorganized.

    1) Sleep, lay down
    2) Hot shower, Bath Bath with Epsom salt
    3) Exercise, Physical therapy, Exercise ball 24" dia, Stretching, Counter rotating rib and lumbar humps with cliff
    4) Aspirin
    5) Hot water immersion Hot tub, Spa 106 degrees F
    6) Chiropractic
    7) Osteopathy
    8) Ultrasound
    9) Electrostim
    10) Swimming, Ocean swimming, Scuba diving
    11) Having someone walk on back
    12) Traction Manual, or Computerized. Vax-D machine
    13) Analgesics Topical Tiger balm, Ben gay Etc
    14) NSAIDS. Prescription Anti-inflammatories... Celebrex, Diclofenac, Naproxen Etc
    15) Yoga, meditation Lomi Lomi Vacations
    16) Accupressure, Accupuncture, Accupuncture with electricity, Chinese modalities with and without Chinese training. (I think it means something)
    17) Massage Massage immediatly after hot water immersion.
    18) Cannabis, CBD
    19) Opioids (Oral)
    20) Surgery Open, Minimally Invasive, Tethering
    21) Hot pads
    22) Pneu-back system de-weighting on tredmill
    23) Pain shots
    24) Vibration Large vibrator on lumbar hump
    25) Massage chairs
    26) Arch tables
    27) Personal stretching machinery
    28) Anesthesia, Morphine injections, Dialuid, and Lortab
    29) Gabapentin
    30) Muscle relaxers Robaxin, Flexiril Etc
    31) Ignore pain
    32) Pray
    33) Ketamine. Anesthesia, and Infusion
    34) Write about scoliosis, posting here on NSF Communicating with other scoliosis patients
    35) Not thinking about scoliosis
    36) Copes Brace Hard braces, soft braces
    37) Tempurpedic bed
    38) Soft down pillows
    39) Travel in RV Soft Captains chairs.
    40) Foam for bed. Use Latex foam 2-4 inches thick
    41) Eat healthier
    42) Drink more water
    43) Go to scoliosis meetings
    44) Education on scoliosis topics
    45) Comedy Benny Hill, Roseanne Roseannadanna, George Carlin Etc
    46) Scroth, Magical suit, Power tools, Spinecore
    47) 3D printed braces
    48) Ice
    49) Medrol packs Methylprednisolone
    50) Revision surgery
    51) Dr Menmuir
    52) Arm bike for bear traps. (Pedal with Arms) Emulate with cans of food 1# Forward and backwards
    53) Rotational stretches (In chair, or machine) See Dingo's threads

    Thats all I can think of for now.

    Ed
    Last edited by titaniumed; 05-11-2020 at 11:49 AM.
    49 yr old male, now 63, the new 64...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  4. #4
    Join Date
    Aug 2019
    Posts
    111

    Thanks!

    Quote Originally Posted by titaniumed View Post
    Real fast....Here is a list of things I have done, and others have done for scoliosis and scoliosis pain. Highly disorganized.

    1) Sleep, lay down
    2) Hot shower, Bath Bath with Epsom salt
    3) Exercise, Physical therapy, Exercise ball 24" dia, Stretching, Counter rotating rib and lumbar humps with cliff
    4) Aspirin
    5) Hot water immersion Hot tub, Spa 106 degrees F
    6) Chiropractic
    7) Osteopathy
    8) Ultrasound
    9) Electrostim
    10) Swimming, Ocean swimming, Scuba diving
    11) Having someone walk on back
    12) Traction Manual, or Computerized. Vax-D machine
    13) Analgesics Topical Tiger balm, Ben gay Etc
    14) NSAIDS. Prescription Anti-inflammatories... Celebrex, Diclofenac, Naproxen Etc
    15) Yoga, meditation Lomi Lomi Vacations
    16) Accupressure, Accupuncture, Accupuncture with electricity, Chinese modalities with and without Chinese training. (I think it means something)
    17) Massage Massage immediatly after hot water immersion.
    18) Cannabis, CBD
    19) Opioids (Oral)
    20) Surgery Open, Minimally Invasive, Tethering
    21) Hot pads
    22) Pneu-back system de-weighting on tredmill
    23) Pain shots
    24) Vibration Large vibrator on lumbar hump
    25) Massage chairs
    26) Arch tables
    27) Personal stretching machinery
    28) Anesthesia, Morphine injections, Dialuid, and Lortab
    29) Gabapentin
    30) Muscle relaxers Robaxin, Flexiril Etc
    31) Ignore pain
    32) Pray
    33) Ketamine. Anesthesia, and Infusion
    34) Write about scoliosis, posting here on NSF Communicating with other scoliosis patients
    35) Not thinking about scoliosis
    36) Copes Brace Hard braces, soft braces
    37) Tempurpedic bed
    38) Soft down pillows
    39) Travel in RV Soft Captains chairs.
    40) Foam for bed. Use Latex foam 2-4 inches thick
    41) Eat healthier
    42) Drink more water
    43) Go to scoliosis meetings
    44) Education on scoliosis topics
    45) Comedy Benny Hill, Roseanne Roseannadanna, George Carlin Etc
    46) Scroth, Magical suit, Power tools, Spinecore
    47) 3D printed braces
    48) Ice
    49) Medrol packs Methylprednisolone
    50) Revision surgery
    51) Dr Menmuir
    52) Arm bike for bear traps. (Pedal with Arms) Emulate with cans of food 1# Forward and backwards
    53) Rotational stretches (In chair, or machine) See Dingo's threads

    Thats all I can think of for now.

    Ed
    Gee Ed you’re like a walking encyclopedia (ha, ha) - seriously thanks for all the info- what would Dr Menmuir offer that other docs don’t? He did your surgery right?

  5. #5
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    May 2008
    Location
    reno,nevada
    Posts
    4,472
    Quote Originally Posted by Scared View Post
    Gee Ed you’re like a walking encyclopedia (ha, ha) - seriously thanks for all the info- what would Dr Menmuir offer that other docs don’t? He did your surgery right?
    Today, I am not really sure because technology has changed over the last 12 years. I really like what Dr Uribe is doing down in Phoenix with the 3D Printing technology. Dr M is in Florida now, I dont know if he is doing scoliosis surgeries. He has the training, no doubt about that. Using 3D printing technology is the cats meow now. They can print any part of your body. The only way to know, is to ask.

    I did just about everything on that list over the last 45 years living with scoliosis. Readers can look through, and say "I did that". Of course I wanted to post before I forget these things. I hope it helps someone. I can elaborate on each and every line on that list if anyone has questions. A lot of it I have posted about here in the past.

    Since there are no questions right now, here is a blast from the past. Gilda Radner November 1978 SNL
    "Its always something"
    https://www.youtube.com/watch?v=9hYGtXIqDa0

    Ed
    49 yr old male, now 63, the new 64...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  6. #6
    Join Date
    Sep 2019
    Posts
    320
    Quote Originally Posted by titaniumed View Post
    Real fast....Here is a list of things I have done, and others have done for scoliosis and scoliosis pain. Highly disorganized.

    1) Sleep, lay down
    2) Hot shower, Bath Bath with Epsom salt
    3) Exercise, Physical therapy, Exercise ball 24" dia, Stretching, Counter rotating rib and lumbar humps with cliff
    4) Aspirin
    5) Hot water immersion Hot tub, Spa 106 degrees F
    6) Chiropractic
    7) Osteopathy
    8) Ultrasound
    9) Electrostim
    10) Swimming, Ocean swimming, Scuba diving
    11) Having someone walk on back
    12) Traction Manual, or Computerized. Vax-D machine
    13) Analgesics Topical Tiger balm, Ben gay Etc
    14) NSAIDS. Prescription Anti-inflammatories... Celebrex, Diclofenac, Naproxen Etc
    15) Yoga, meditation Lomi Lomi Vacations
    16) Accupressure, Accupuncture, Accupuncture with electricity, Chinese modalities with and without Chinese training. (I think it means something)
    17) Massage Massage immediatly after hot water immersion.
    18) Cannabis, CBD
    19) Opioids (Oral)
    20) Surgery Open, Minimally Invasive, Tethering
    21) Hot pads
    22) Pneu-back system de-weighting on tredmill
    23) Pain shots
    24) Vibration Large vibrator on lumbar hump
    25) Massage chairs
    26) Arch tables
    27) Personal stretching machinery
    28) Anesthesia, Morphine injections, Dialuid, and Lortab
    29) Gabapentin
    30) Muscle relaxers Robaxin, Flexiril Etc
    31) Ignore pain
    32) Pray
    33) Ketamine. Anesthesia, and Infusion
    34) Write about scoliosis, posting here on NSF Communicating with other scoliosis patients
    35) Not thinking about scoliosis
    36) Copes Brace Hard braces, soft braces
    37) Tempurpedic bed
    38) Soft down pillows
    39) Travel in RV Soft Captains chairs.
    40) Foam for bed. Use Latex foam 2-4 inches thick
    41) Eat healthier
    42) Drink more water
    43) Go to scoliosis meetings
    44) Education on scoliosis topics
    45) Comedy Benny Hill, Roseanne Roseannadanna, George Carlin Etc
    46) Scroth, Magical suit, Power tools, Spinecore
    47) 3D printed braces
    48) Ice
    49) Medrol packs Methylprednisolone
    50) Revision surgery
    51) Dr Menmuir
    52) Arm bike for bear traps. (Pedal with Arms) Emulate with cans of food 1# Forward and backwards
    53) Rotational stretches (In chair, or machine) See Dingo's threads

    Thats all I can think of for now.

    Ed
    Ed, Have you tried acupressure, -puncture with and without Chinese training? What was it like? My neurologist believes in acupuncture and I think practices it but I have never tried it.

  7. #7
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    May 2008
    Location
    reno,nevada
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    Quote Originally Posted by Tina_R View Post
    Ed, Have you tried acupressure, -puncture with and without Chinese training? What was it like? My neurologist believes in acupuncture and I think practices it but I have never tried it.
    Yes. My Chiro had a Chinese acupressure therapist that worked there who worked MIRACLES. She trained in China. I did approx 100 sessions with her back in the day. (Before scoliosis surgery) She was amazing.

    I had an Non-Chinese Osteopath MD who did not train in China who performed acupuncture on me, and that did not work at all. I did a few of those sessions and stopped going. He did do a sacral adjustment on me that removed probably 20 years of pain in one adjustment. It was a leveraged leg rotational movement that the Chiros do not do, so it was worth seeing him. He also used electricity (9volts) on some of the leg needles and it was not pleasant. (Before scoliosis surgery)

    Its hard to find the right people and scoliosis patients need to find the right people. I call this the "doctor tour" Been there, done that. Its hard to say if any of these modalities will work for you. They only way to know, is to try. You could have great sucess if you find the right person.

    On #15 I mention vacations....which I dont know if thats a great idea since on many of my vacations, I have been in major pain for various reasons. I am not sure if this is a good idea now that I think about it. Good for the mind, bad for pain. Airplane rides and bad beds might have contributed to the pain....

    Most of the items on my list involve money. I spent a fortune on scoliosis over the years. $100,000 on massages alone. Scoliosis is expensive, there is no doubt about that.

    Ed
    49 yr old male, now 63, the new 64...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  8. #8
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    7,225
    Quote Originally Posted by titaniumed View Post
    Yes. My Chiro had a Chinese acupressure therapist that worked there who worked MIRACLES. She trained in China. I did approx 100 sessions with her back in the day. (Before scoliosis surgery) She was amazing.
    Ed...

    Obvious question... If it worked so well, why did you stop?

    I tried acupuncture when I first started having back pain. I would get short term relief, but the pain always returned by the next day. I sort of thought it might be wishful thinking, and that my pro-science mind always betrayed my hope that I'd find a miracle.

    --Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

  9. #9
    Join Date
    Aug 2019
    Posts
    111

    Acupuncture

    Quote Originally Posted by titaniumed View Post
    Real fast....Here is a list of things I have done, and others have done for scoliosis and scoliosis pain. Highly disorganized.

    1) Sleep, lay down
    2) Hot shower, Bath Bath with Epsom salt
    3) Exercise, Physical therapy, Exercise ball 24" dia, Stretching, Counter rotating rib and lumbar humps with cliff
    4) Aspirin
    5) Hot water immersion Hot tub, Spa 106 degrees F
    6) Chiropractic
    7) Osteopathy
    8) Ultrasound
    9) Electrostim
    10) Swimming, Ocean swimming, Scuba diving
    11) Having someone walk on back
    12) Traction Manual, or Computerized. Vax-D machine
    13) Analgesics Topical Tiger balm, Ben gay Etc
    14) NSAIDS. Prescription Anti-inflammatories... Celebrex, Diclofenac, Naproxen Etc
    15) Yoga, meditation Lomi Lomi Vacations
    16) Accupressure, Accupuncture, Accupuncture with electricity, Chinese modalities with and without Chinese training. (I think it means something)
    17) Massage Massage immediatly after hot water immersion.
    18) Cannabis, CBD
    19) Opioids (Oral)
    20) Surgery Open, Minimally Invasive, Tethering
    21) Hot pads
    22) Pneu-back system de-weighting on tredmill
    23) Pain shots
    24) Vibration Large vibrator on lumbar hump
    25) Massage chairs
    26) Arch tables
    27) Personal stretching machinery
    28) Anesthesia, Morphine injections, Dialuid, and Lortab
    29) Gabapentin
    30) Muscle relaxers Robaxin, Flexiril Etc
    31) Ignore pain
    32) Pray
    33) Ketamine. Anesthesia, and Infusion
    34) Write about scoliosis, posting here on NSF Communicating with other scoliosis patients
    35) Not thinking about scoliosis
    36) Copes Brace Hard braces, soft braces
    37) Tempurpedic bed
    38) Soft down pillows
    39) Travel in RV Soft Captains chairs.
    40) Foam for bed. Use Latex foam 2-4 inches thick
    41) Eat healthier
    42) Drink more water
    43) Go to scoliosis meetings
    44) Education on scoliosis topics
    45) Comedy Benny Hill, Roseanne Roseannadanna, George Carlin Etc
    46) Scroth, Magical suit, Power tools, Spinecore
    47) 3D printed braces
    48) Ice
    49) Medrol packs Methylprednisolone
    50) Revision surgery
    51) Dr Menmuir
    52) Arm bike for bear traps. (Pedal with Arms) Emulate with cans of food 1# Forward and backwards
    53) Rotational stretches (In chair, or machine) See Dingo's threads

    Thats all I can think of for now.

    Ed
    Just a FYI I have used Chinese acupuncture off and on for many years. Personally I would use only a practitioner trained in the Chinese method. Yes it’s expensive ($125 last year) but effects are temporary & depends upon your condition. It’s no longer effective for me.

  10. #10
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    Sep 2019
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    320
    Most pain remedies seem to lose their effectiveness. That's why there are so many different ones, I guess. I had injections and those eventually stopped working.

  11. #11
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    reno,nevada
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    Quote Originally Posted by Tina_R View Post
    Most pain remedies seem to lose their effectiveness. That's why there are so many different ones, I guess. I had injections and those eventually stopped working.
    Some do, and some do not. Hot water does not, but I was also having some issues with hot soaks, probably dehydration. You really have to drink copious amounts of water when you boil that pain away since you lose water so quickly. Like a quart of water in 20 minutes. This is why small children should not be allowed in hot tubs.

    Long term opoids are not really recommended for long term chronic pain. After 5 weeks, Percoset and Oxy was just not cutting the mustard for me at 100mg plus per day. The constipation was causing more pain than the spine. Nutrition worked a whole lot better after I terminated (and short frequent walks)

    I never took opoids leading up to my surgeries. NSAIDS yes, Opoids no. I also formed a bunch of stones (gall and kidney) so one needs to be aware.

    On acupuncture or acupressure, I dont think the scientific community has anything worthy or proven from what I remember,? but thats all relative. The world was flat at one point. You cant dismiss because the wrong ideas never came to frutiution. Many ideas, the invention and discovery process, happen by mistake. This is why documentation is so important. If you think outside the box, its not logical to remember since its a new concept. There has to be a reason why something works....Even if most spine treatments are not supported by strong scientific evidence. "We see what we are taught to see". -Charcot

    We have to accept the reality that even though certain methods have varying rates of success, its never a black and white thing. We take what we can get and make the best of it. Know the tricks of the trade, and know about timing and how important it can be for certain scoliosis patients. Timing is everything.

    "Pain is an indicator of suffering organs". -Charcot
    Pain is a warning sign and if it doesnt resolve itself, or its a heavy pain, something has to be done. If a modality is tried and does not work, something else needs to be explored. Curves dont mean too much, but pain is your signal. Scoliosis patients especially in pain need to be evaluated by a scoliosis surgeon. It doesnt mean your having surgery, but its best to talk about these things, talk about pain with your surgeon. They will look with X-Rays, MRI's and CT's to see if they can locate your pain producer.

    https://en.wikipedia.org/wiki/Jean-Martin_Charcot

    20 years ago my dad passed from ALS. Thats why I sometimes bring up Charcot who discovered ALS in the 1800's

    Ed
    Last edited by titaniumed; 05-19-2020 at 01:37 AM.
    49 yr old male, now 63, the new 64...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  12. #12
    Join Date
    Jan 2012
    Location
    Yacolt, WA
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    Quote Originally Posted by Scared View Post
    Haven’t been on forum for awhile but check in every so often. Have posted as single older person getting ready for surgery. My return appt w/ dr Gupta in January resulted in delays for my surgery then this virus hits. I have been suffering from chronic pain both from Scoliosis (30 degrees thoracic & 40 Lumbar) + Degenerative disc disease for a long time. When I read about others stories I am amazed at how you survive the pain. I’v never been able to tolerate pain. Presently I have a new type of pain in thoracic area. I am on short acting opioid since last September to do PT but have continued to use because nothing else helps. I have concerns staying on opioid for a long period of time (am well educated about addiction). I can feel my curves lying down on my back. This new pain started a couple of days ago. Given it will probably be 2 yrs for a vaccine to be confirmed for the Coronvirus I will be about 66. I am pretty sure I’ not going into a germ invested hospital until a proven vaccine is confirmed. Does the increase of curvature result in more pain? I don’t know how to handle it. Advice appreciated.
    Hi there, Scared, Our lives are somewhat parallel as I also have [had] Adult Degenerative Scoliosis and I had my surgery when I was ???67??? give or take. Our curves are similar. I found that my pain increased with time, but my curve stayed about the same. My kyphosis worsened. I used a lot of ice bags on my back and ate a lot of cold dinners [husband got the warm dinner, but I was in big time pain by the time that I finished stir frying that the ice bag and I convened for 30 minutes while my dinner became cold.] By the time that I finally had surgery, I tried everything else and just felt that I should, "Get 'er done!" I was never scared, probably because I completely trusted my surgeon by that point and I felt that I did not have any other choice.

    There will always be a virus, bacteria, or something else that goes bump in the dark to haunt us in hospitals. I also probably take the prize for the most "adverse events" that could go wrong after a major surgery....except the big one: "Buying the farm" which I have so far avoided.

    I wish you well. There will never be a perfect time, but when your time comes to really need the surgery, you will know it.

    Susan
    Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
    2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L4,5 screw
    2021: Removal T1 screw & rod

  13. #13
    Join Date
    Aug 2019
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    It’s the Pain

    Quote Originally Posted by susancook View Post
    Hi there, Scared, Our lives are somewhat parallel as I also have [had] Adult Degenerative Scoliosis and I had my surgery when I was ???67??? give or take. Our curves are similar. I found that my pain increased with time, but my curve stayed about the same. My kyphosis worsened. I used a lot of ice bags on my back and ate a lot of cold dinners [husband got the warm dinner, but I was in big time pain by the time that I finished stir frying that the ice bag and I convened for 30 minutes while my dinner became cold.] By the time that I finally had surgery, I tried everything else and just felt that I should, "Get 'er done!" I was never scared, probably because I completely trusted my surgeon by that point and I felt that I did not have any other choice.

    There will always be a virus, bacteria, or something else that goes bump in the dark to haunt us in hospitals. I also probably take the prize for the most "adverse events" that could go wrong after a major surgery....except the big one: "Buying the farm" which I have so far avoided.

    I wish you well. There will never be a perfect time, but when your time comes to really need the surgery, you will know it.

    Susan
    I was ready for surgery it was the dr who held things up (kept emphasizing the risks). Now it’s the virus that’s delaying it. How am I suppose to survive for 2 more years? I did many things Ed suggested but can’t afford to do some of them like see another dr in another state (we are on lock down where I live). I will be doing this alone which has been the usual senecio in my life. But this time it’s something I’m not sure I can do alone. I hate that you have had to go thru all those surgeries. Thank you Susan

  14. #14
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    Jan 2012
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    Yacolt, WA
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    Are your ducks in a row?

    Quote Originally Posted by Scared View Post
    I was ready for surgery it was the dr who held things up (kept emphasizing the risks). Now it’s the virus that’s delaying it. How am I suppose to survive for 2 more years? I did many things Ed suggested but can’t afford to do some of them like see another dr in another state (we are on lock down where I live). I will be doing this alone which has been the usual senecio in my life. But this time it’s something I’m not sure I can do alone. I hate that you have had to go thru all those surgeries. Thank you Susan
    Scared....surely, your mother gave you another name....I would wonder why your doctor "kept emphasizing the risks". Were you questioning her/him? I saw 2 spine surgeons before my first surgery. Yes, they were were specific about the risks, maybe a little pessimistic [I suppose that surgeons remember the bad outcomes or are haunted by them, than the good ones]. Surgery is always a Risk vs "Possible, hoped for, this is what I want to happen" Great Outcome, Everyone goes into surgery with a pair of rose colored glasses on. Yes, we hear what is said, but somehow we feel immune or special. I thought that my surgery with a smallish curve but loads of messed up vertebrae/discs would to one of the top spine surgeons be "a relatively easy day" . I asked Dr. Hu, "On a scale of 1-10, one being easy and 10 being extremely difficult, what # would you give my surgery?" She said, "8". Kinda blew my socks off. I was thinking that I was a 5-6 or so ;+} .

    I flew to Washington DC from Portland on one of the first flights after 9/11. Was I afraid? Nope. I figured that every possible measure was taken to prevent another hijacking that could be done. The plane was less than 1/10th full.

    But, I am not you. The worst case scenario is for anybody to go into a major surgery feeling that your ducks are not in line. [Can't resist telling a joke: "Not only are my ducks not in a row, I don't even know where they are!"] Do you need another opinion for another spine surgeon that does surgery on older persons? [By the way, do you have osteoporosis?]

    Susan
    Last edited by susancook; 05-12-2020 at 07:03 PM.
    Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
    2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L4,5 screw
    2021: Removal T1 screw & rod

  15. #15
    Join Date
    Aug 2019
    Posts
    111
    Quote Originally Posted by susancook View Post
    Scared....surely, your mother gave you another name....I would wonder why your doctor "kept emphasizing the risks". Were you questioning her/him? I saw 2 spine surgeons before my first surgery. Yes, they were were specific about the risks, maybe a little pessimistic [I suppose that surgeons remember the bad outcomes or are haunted by them, than the good ones]. Surgery is always a Risk vs "Possible, hoped for, this is what I want to happen" Great Outcome, Everyone goes into surgery with a pair of rose colored glasses on. Yes, we hear what is said, but somehow we feel immune or special. I thought that my surgery with a smallish curve but loads of messed up vertebrae/discs would to one of the top spine surgeons be "a relatively easy day" . I asked Dr. Hu, "On a scale of 1-10, one being easy and 10 being extremely difficult, what # would you give my surgery?" She said, "8". Kinda blew my socks off. I was thinking that I was a 5-6 or so ;+} .

    I flew to Washington DC from Portland on one of the first flights after 9/11. Was I afraid? Nope. I figured that every possible measure was taken to prevent another hijacking that could be done. The plane was less than 1/10th full.

    But, I am not you. The worst case scenario is for anybody to go into a major surgery feeling that your ducks are not in line. [Can't resist telling a joke: "Not only are my ducks not in a row, I don't even know where they are!"] Do you need another opinion for another spine surgeon that does surgery on older persons? [By the way, do you have osteoporosis?]

    Susan
    Apparently you have not read my previous posts even though you responded to my 1st. I have no idea why the dr emphasized the risks after I repeatedly told him I understood & was ready for the surgery. My only conclusion was he was covering his ass. This current post was a cry for help. I am in so much pain & can’t do hardly anything. You would think the dr would have given me the go ahead. I am surprised at some of the things you said. I don’t appreciate your reference to my username. I’ use whatever name I damn well want. I thought you of all the people who have posted given what you have been through would have some compassion & understanding for those of us who are going through hell. I suggest that you watch that sharp tongue of yours as it’s cutting edge hurts.

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