[QUOTE=susancook;172568]

Originally Posted by
jackieg412
I haven't heard from Susan yet. I do email her on her personal email. I just keep praying she is OK. And going through that major surgery and now this epidemic. Let's hope she is home and safe.
Yes Ed do what you are doing to be careful in the area of your mouth that is under attack. Sometimes we think we are bullet proof after the major scoliosis surgery. We need to all take time in our healthcare.
Jackie, Ed, and my fellow forum members,
I had my "reverse R shoulder replacement" done 3/11 right under the wire for elective surgeries. My typing usually sucks, but with one crippled wing it is suffering even more. Recovery is a challenge for the able bodied, for me with a T1 to sacrum fusion, 73 years old body, and T4,5 partial paraplegia doing ADLs is almost impossible. I weighed my options post-op for OT/PT and decided to got to a SNF w/ intensive rehab for a week from the hospital. Not much choice in facilities, so the one that I ended up going to was short on adequate pain support and noisy decreasing my sleep/rest. After 2 days, I checked out AMA and went home where my husband can help me. I do have home PT/OT coming and I will survive.... hopefully not get divorced after 48 years of marriage ;+} .
I am still looking at having my T1 pedicle screw [lucency and thoracic pain] and 1 of my 5 rods removed by Dr. Hart in Seattle maybe this summer. I looked into having a SCS implanted but am not sure about having that done. I have substantial Right L4,5 dermatone burning pain for which I wear Lidocaine patches.
So, 6 weeks in a right arm sling. It is what it is.
Susan
Hi, Susan. I do catch up on the forum from time to time - it's always good to see when you post. I'm glad you are getting along "OK" - praying that things get better for you. You are one of the toughest people around - I believe you will come out OK. 5 or 6 years ago when I joined this forum it was your story that I followed - and it was you that got me through all my stress, worry and my (then) upcoming surgery. I think because you were also "adult onset" so our stories were similar. I admired your strength and sense of humor. I still do.
Hang in there. We are all rooting for you!
Kathy
Decompression surgery L4/L5
April 3, 2015
Twin Cities Spine Center - Dr. Joseph Perra
Fused from T11 - Sacrum anterior/posterior
June 24, 2016 - 55 years old at surgery
Twin Cities Spine Center - Dr. Joseph Perra
Before Surgery: 42 degrees lumbar, 28 degrees thoracic
After Surgery: 10 degrees lumbar, ?? Thoracic
2 inches taller