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  1. #1
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    Dr Hey You Tube Testimonials

    Hey Guys, I see there are a whole bunch of new testimonial videos on the Hey You Tube site! (smiley face) Plenty of wow factor here. If you have scoliosis, these are worth watching.

    Scoliosis, Kyphosis, Schroth, Braces, Surgical, Non-Surgical, Diet Etc...

    https://www.youtube.com/user/TheHeyC...view=0&sort=dd

    https://www.youtube.com/watch?v=pJJgD3N1Hy8
    Elaine age 74, is doing good for 4 days! Wow!

    https://www.youtube.com/watch?v=oS0SUQU_Fxg
    Minnie, Age 70 has made it a long time with her curve. Wow!


    Ed
    49 yr old male, now 62, the new 63...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  2. #2
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    I wonder if he will start tethering.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  3. #3
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    That is a good question Sharon. It might not be a bad idea to shoot an e-mail over and ask. It would be nice to hear his thoughts on tethering. It would make sense to wait and see the tethering results improve before making that move.....I would bet that many scoliosis surgeons are in the waiting mode, waiting on Dr Lonner and the other's active in tethering.

    Remember, Dr Blackman had doubts on minimally invasive scoliosis surgery many years ago.....(I posted that link about 10 years ago) and now, Dr Anand (Cedars Sinai) is a proponent of MISS. (Interesting talk) I would love to to see scoliosis testimonials from Dr Anand.....I have not shot an MRI after my surgeries. I wonder if the necrosis of the paraspinal's would show up? Probably so. This probably explains the bear traps or gripping sensation many of us feel.
    (Warning...This link has graphic surgical photos)
    https://www.youtube.com/watch?v=MSQge7QJ-cY

    Dr Hey has good examples of elder folks, and people with some really bad curves in major pain. I was one of them, I experienced that misery before my surgeries.

    Its not worth living your life in major pain when it can be repaired. I hope that those that are suffering badly watch and gain the needed bravery it takes to move forward. They of course need a good surgeon to build a trusting relationship with.

    Ed
    49 yr old male, now 62, the new 63...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  4. #4
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    Boachie stated that the key to one-and-done with thoracic curves is to drive the lumbar as straight as possible. For thoracic curves, unless tethering can drive the same degree of straightness in the lumbar, it might be winning the battle but losing the war. It would be ironic if the tether avoided fusion in the thorax where you don't bend much and necessitate fusion in the lumbar where you do.

    Knowing all that, I would choose fusion over tethering for a T curve if they couldn't guarantee the same degree of lumbar straightening with tethering as with fusion. I am not sure all these parents jumping on the tethering bandwagon understand this issue and I worry about these kids having a higher chance of needing lumbar fusion because of their choice to tether.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  5. #5
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    Good point. But we do bend in the thoracic. I forget the figures in the Moe handbook, (a few degrees) I cannot put a lift ticket on my waist. This is from being fused up high. These sorts of little things you only find out about here at NSF!

    You can see how complicated balancing the sagittal plane is on the Dr Anand video. Tethering with any sagittal plane issues seems extremely complex to me. Only tethering surgeons can answer these types of questions. One thing we know is that the technology will improve with out great surgeons.

    I posted the MIS video because it relates to tethering. Notice the reduced serious complication rates now with MISS.(28:15) I believe Jess went and spoke to Dr Anand years ago....and he has had good results starting in 2007. This good work that he is doing also helps with tethering and other surgical attacks. I hope Jess is ok.

    Something I found interesting....,there is ZERO rotational correction in Adult AIS. (46:20). with MISS.

    The videos are great..... That way, one can hear it right from the surgeon.

    I surfed many years ago and stood looking at big waves. For extra trivia, it was Butch Van Artsdalen (Mr Pipeline) who was the very first surfer to have the guts to surf the big waves on the north shore of Oahu. (Smiley face)
    https://en.wikipedia.org/wiki/Butch_Van_Artsdalen

    Ed
    49 yr old male, now 62, the new 63...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  6. #6
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    Quote Originally Posted by Pooka1 View Post
    I am not sure all these parents jumping on the tethering bandwagon understand this issue and I worry about these kids having a higher chance of needing lumbar fusion because of their choice to tether.
    Sharon, sorry if I side stepped a little, I think that all spine surgeons should tell patients about the chances of possible future surgeries. Even if its a very small chance, we need to hear it, or at least tell the parents.

    I feel for the parents having to have to absorb all the (Ton of bricks) scoliosis information quickly. With a scoli kid with big curves, you don't have much time, and there is a LOT of trust. One good thing about the videos is that the patient or parent can get their feet wet, and see the doctor talking about scoliosis. An introduction before an appointment. Dr Lonner also has his own You Tube page
    https://www.youtube.com/user/BaronSLonnerMD/videos

    Everyone is so afraid of being fused to the pelvis! With my tough situation with my L5 wedged beyond belief, it was a necessary thing, and it turned out quite well. My lumbar is the least of my problems, and I also don't have to worry about it in the future. To be truthful, its all the un-fused joints I have pain in now. Hips, knees, ankles, neck. The good news is that my jaw is good. Ha ha Fusion works for pain that's for sure.

    If we didn't have fusion, we would be in trouble.

    Ed
    49 yr old male, now 62, the new 63...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  7. #7
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    Quote Originally Posted by Pooka1 View Post
    Boachie stated that the key to one-and-done with thoracic curves is to drive the lumbar as straight as possible. For thoracic curves, unless tethering can drive the same degree of straightness in the lumbar, it might be winning the battle but losing the war. It would be ironic if the tether avoided fusion in the thorax where you don't bend much and necessitate fusion in the lumbar where you do.

    Knowing all that, I would choose fusion over tethering for a T curve if they couldn't guarantee the same degree of lumbar straightening with tethering as with fusion. I am not sure all these parents jumping on the tethering bandwagon understand this issue and I worry about these kids having a higher chance of needing lumbar fusion because of their choice to tether.


    The decision on VBT seems to be made that unlike fusion it is not necessarily a 'one and done' - Obviously parents are hoping that fusion later on is not necessary, but their main aim is to have a chance at avoiding fusion. There is no evidence that tethering a thoracic curve can cause a lumber curve as there are no long-term studies at all about it. The most common vbt is done on a large flexible thoracic curve done BEFORE the patient if fully grown. Where it is done on a lumbar curve it is often done with more than one tether. Double tethering ( thoracic and lumbar) is also done but doe not seem to be as common.

    Whilst surgeons are telling parents of children with scoliosis that they will need a fusion that will mean they cannot dance or do gymnastics again you can see why parents are desperate to try anything to keep the flexible spine...

  8. #8
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    Quote Originally Posted by burdle View Post
    The decision on VBT seems to be made that unlike fusion it is not necessarily a 'one and done' - Obviously parents are hoping that fusion later on is not necessary, but their main aim is to have a chance at avoiding fusion.
    I am talking about primary thoracic curves with a compensatory lumbar curve. The lumbar can become structural over time and eventually need fusing if it isn't straightened enough from fusing above it. According to Boachie, the way to avoid later lumbar involvement is to drive the lumbar as straight as possible with the thoracic fusion. If tethering doesn't drive the same amount of straightness into the lumbar as fusion then people may have avoided T fusion only to need lumbar fusion or tethering. That is a classic case of winning the battle but losing the war given how little bending occurs in the T spine versus the L spine.

    If the surgeon couldn't guarantee that the tether drives as much straightness in the lumbar as fusion then I would still choose T fusion over tethering in the hope of avoiding lumbar fusion or tethering. I don't believe the ROM of bending in a fused and tethered T curve is all that different enough to risk needing lumbar fusion/tethering if the tether can't straighten the lumbar spine as much as fusing the T curve does.

    For my one daughter, the T fusion straightened not only her T curve but drove her unfused lumbar so straight that her (unfused) lumbar curve is now < 10*. Because her T curve is <10* she technically does not have scoliosis (no curve >10*). That is why the surgeon told her to her face that she is one and done and will likely never need more surgery for scoliosis. This is Boachie's point. Our surgeon did not tell that to my other daughter who was left with a larger L curve. This is my point.

    There is no evidence that tethering a thoracic curve can cause a lumber curve as there are no long-term studies at all about it.
    I am not saying that. I am saying the compensatory curve under a structural T curve is lessened in response to straightening the T curve. The L curve is just balancing the T curve. That's why a compensatory L curve spontaneously corrects in response to straightening the T curve. If tethering can't straighten the T curve enough to straighten the L curve like fusion did in my one daughter, there is a higher risk of needing lumbar fusion/tethering in the future with T tethering versus T fusion.
    Last edited by Pooka1; 05-08-2018 at 07:35 AM.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  9. #9
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    Quote Originally Posted by titaniumed View Post
    That is a good question Sharon. It might not be a bad idea to shoot an e-mail over and ask. It would be nice to hear his thoughts on tethering. It would make sense to wait and see the tethering results improve before making that move.....I would bet that many scoliosis surgeons are in the waiting mode, waiting on Dr Lonner and the other's active in tethering.

    Remember, Dr Blackman had doubts on minimally invasive scoliosis surgery many years ago.....(I posted that link about 10 years ago) and now, Dr Anand (Cedars Sinai) is a proponent of MISS. (Interesting talk) I would love to to see scoliosis testimonials from Dr Anand.....I have not shot an MRI after my surgeries. I wonder if the necrosis of the paraspinal's would show up? Probably so. This probably explains the bear traps or gripping sensation many of us feel.
    (Warning...This link has graphic surgical photos)
    https://www.youtube.com/watch?v=MSQge7QJ-cY

    Dr Hey has good examples of elder folks, and people with some really bad curves in major pain. I was one of them, I experienced that misery before my surgeries.

    Its not worth living your life in major pain when it can be repaired. I hope that those that are suffering badly watch and gain the needed bravery it takes to move forward. They of course need a good surgeon to build a trusting relationship with.

    Ed
    Here's another "better than Schroth" option besides Scoliosis Gym. My curve isn't bad enough to be repaired by a surgeon but it has affected my life.

    https://www.facebook.com/41372804233...197463/?type=3

    https://www.orthopt.org/uploads/cont...sis%281%29.pdf

  10. #10
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    Quote Originally Posted by Tilted View Post
    Here's another "better than Schroth" option besides Scoliosis Gym. My curve isn't bad enough to be repaired by a surgeon but it has affected my life.
    If you have a scoliosis surgeon or at least your GP dictating "which" therapy to use, this will be a better option. Ask your doctor to make the selection and try to get it ordered on your insurance. Have the doctor do the followup x-rays. If you forget this, you will remember what I said when you start writing out the checks. An example would be, "We have a package deal, 15 sessions for $2000". "Did you want to pay today?"

    Many scoliosis surgeons will offer a non-surgical alternative as you can see in some of the testimonials.

    Ed
    49 yr old male, now 62, the new 63...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  11. #11
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    Quote Originally Posted by titaniumed View Post
    Many scoliosis surgeons will offer a non-surgical alternative as you can see in some of the testimonials.

    Ed
    This is true if you have a curve that is not at surgery levels. If you have curves at surgery levels but your consultant is loath to do surgery because of complications then you are in a void- no non-surgical alternatives are offered other than to 'live with it'. And living with it is expensive!

  12. #12
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    Quote Originally Posted by Pooka1 View Post
    I wonder if he will start tethering.
    Cant see it if he is pushing how great fusion outcomes are.

    I am sceptical - no longterm studies for fusion except one done after 17 years on 16 year olds- and as usual all scoliosis on you tube lumped in together. I just did the SRS webinar on adult scoliosis. Adult degenerative is different from Adult idiopathic with degenerative changes- the former is mainly lumbar, the latter often a multiple curve with rotation. Until careful classification is used patients will continue to be misled by what their options are. And there will remain continued excuse for abandoning patients such as me!
    Last edited by burdle; 05-08-2018 at 08:17 AM.

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