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Thread: Hello.. been awhile.. halo traction & surgery scheduled

  1. #1
    Join Date
    Jul 2006

    Hello.. been awhile.. halo traction & surgery scheduled

    It's been awhile since I've been on this forum. I came here initially when my daughter was born -- she has 9 incomplete vertebrae and we can honestly say they can't agree on the degree - other than it's over 100 degrees. We had been seeing Dr. Betz at Shriner's Hospital in Philly at least until he retired. The new Dr that took over, I didn't particularly like and am now back at Children's Hospital in DC with Dr. Martin.

    Emily just turned 11. She was born with heart, kidney and the spine issues. We just went through where we are scheduled for August 3, 2017 back surgery with 4 weeks starting on July 5, 2017 in halo traction. I pushed to have the MRIs done of her heart and spine prior to those dates and good thing I did. They saw some issues with the heart and just yesterday she had a cardiac cath to help with the heart. We are now cleared to have the back stuff done.

    Anyone here did the halo prior to the surgery? How did that work for you and how did it help with the surgery? I could really use support as she's having issues with her Dad right now and the stress of everything. So anything I can tell her to make it better would be helpful.

    Much appreciated.

    Erin - Mother to Emily who was born with:

    1) Pulumnary Artresia/Tetralogy of Fallot
    - 2 conduit replacement surgeries
    - 2 stents inserted in conduit

    2) Congenital Scoliosis (9 incomplete vertebrae - 2 hemi)

    3) Cystic Kidneys
    - Right one non-functioning
    - Left one growing and working well

  2. #2
    Join Date
    May 2008
    Hi Erin

    I didn't have halo traction done, but hopefully someone will post about their experience.

    I found a video for you. The kid dancing was prepared for surgery, he even brought his sun glasses to look cool. (Big smiles)

    Please chime in and let us know how things go.

    I watch these kids and its a 50 year time warp for me....

    Stay strong ok?

    49 yr old male, now 63, the new 64...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion

    My x-rays

  3. #3
    Join Date
    Jan 2008
    Hi Erin,

    There was at least one parent on here whose son had halo traction at Shriners on the west coast. He seemed to not mind it and he had a good surgical outcome. You can send her a PM but please let me know if she doesn't pick it up. I can send her a note on another site.

    Here is her thread on halo traction...

    Good luck going forward. You sound like you have things well under control. Good job. :-)
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine

    "We are all African."

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