I think Richard's post underscores how poorly we are prepared mentally or emotionally for these huge surgeries. We go in knowing it will be tough, but I don't really think surgeons spend much if any effort preparing or warning us for how difficult the recovery is mentally and emotionally. How should we cope with worries such as Richard's?? I don't know the answer and am certainly still struggling with how to shake off the feeling of waiting for the other shoe to drop after two huge, unexpected revisions for broken rods. I wish this topic was discussed more.
Last edited by leahdragonfly; 06-20-2016 at 11:03 PM.
Gayle, age 50
Oct 2010 fusion T8-sacrum w/ pelvic fixation
Feb 2012 lumbar revision for broken rods @ L2-3-4
Sept 2015 major lumbar A/P revision for broken rods @ L5-S1
mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
2010 VBS Dr Luhmann Shriners St Louis
2017 curves stable/skeletely mature
also mom of Torrey, 12 y/o son, 16* T, stable