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  • I feel sad

    hey everyone today my sister called my mom and my soon to be 8 year old niece has scoliosis.
    Kara
    25
    Brace 4-15-05-5-25-06
    Posterior Spinal Fusion 3-10-10
    T4-L2
    Before 50T
    After 20T

  • #2
    Your niece is very lucky because she will have you to support her! Sorry that it makes you sad. She may never need any treatment, just monitoring. Susan
    Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
    2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L4,5 screw
    2021: Removal T1 screw & rod

    Comment


    • #3
      Good point susan she has a referral in to ucsf. My sister said she was going to call the doctor to she if she can be sent to shriners
      Kara
      25
      Brace 4-15-05-5-25-06
      Posterior Spinal Fusion 3-10-10
      T4-L2
      Before 50T
      After 20T

      Comment


      • #4
        Originally posted by kennedy View Post
        Good point susan she has a referral in to ucsf. My sister said she was going to call the doctor to she if she can be sent to shriners
        Might be good to get 2 opinions. The price is right at Shriners. She may not ever need surgery, but if she does, you will be a great source of support!

        Susan
        Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

        2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
        2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
        2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
        2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
        2018: Removal L4,5 screw
        2021: Removal T1 screw & rod

        Comment


        • #5
          Kennedy,

          You can help your niece in any way that she will need help

          Melissa
          Melissa

          Fused from C2 - sacrum 7/2011

          April 21, 2020- another broken rod surgery

          Comment


          • #6
            Good point Melissa
            Kara
            25
            Brace 4-15-05-5-25-06
            Posterior Spinal Fusion 3-10-10
            T4-L2
            Before 50T
            After 20T

            Comment


            • #7
              i also gave her a flyer for my support group
              Kara
              25
              Brace 4-15-05-5-25-06
              Posterior Spinal Fusion 3-10-10
              T4-L2
              Before 50T
              After 20T

              Comment


              • #8
                Hi Kara,

                I'm sorry to hear about your niece's scoliosis. I hope it is a small enough curve that she doesn't need any treatment for, but if she does go to UCSF, she would be in very good hands with Dr Diab. He does tethering which is a newer alternative to fusion.

                I'm sure you will be a great source of comfort for your niece.
                Gayle, age 50
                Oct 2010 fusion T8-sacrum w/ pelvic fixation
                Feb 2012 lumbar revision for broken rods @ L2-3-4
                Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


                mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
                2010 VBS Dr Luhmann Shriners St Louis
                2017 curves stable/skeletely mature

                also mom of Torrey, 12 y/o son, 16* T, stable

                Comment


                • #9
                  Gayle my ninces Doctor said she might need a brace at bed time
                  Kara
                  25
                  Brace 4-15-05-5-25-06
                  Posterior Spinal Fusion 3-10-10
                  T4-L2
                  Before 50T
                  After 20T

                  Comment

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