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  1. #1
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    My Adult Scoliosis Story

    Its been some time since I posted here.
    Normally when I come here I rant and rave about scoliosis biomechanics and I'm gone just as quick as I came.
    But this time I'm going to try it differently, this time I'm going to actually try to tell my story, from my point of view.
    I want the long time members of this forum to understand why I came to push the issues I have.
    I want them to understand why I've felt alienated and let down by the patient and research organizations.

    Before I begin, I guess one of the main things I want the reader to take away from my story is that my scoliosis does not fit into any conventional category.
    Keep this in mind as has a huge bearing on the actions I took after being diagnosed and the way I went about trying to deal with it.

    I've told this story many times, but I'll run through it again.

    I hadn't really had any problems with my back to speak of growing up, though as I look back there were some noticeable signs prior to when I was diagnosed that I probably should've paid more attention to.
    My scoliosis was diagnosed in 1998 (age 25) with a curve magnitude of 11 degrees after a work injury that caused the normal working structure of my spinal column to become altered. (Altered Biomechanics)

    It was there that all my problems really started.
    I didn't demonstrate rapid progression during growth so I don't have AIS.
    I don't have Degenerative Scoliosis, everything about my spine in that regard was normal, and my scoliosis isn't associated with any other condition.

    https://www.srs.org/patients-and-fam...ults/scoliosis

    Now one thing that made my situation all the more complicated was that I was actually able to make sense of the altered state of biomechanics in my spinal column following the work injury, so you can understand that when I looked up scoliosis and found out that little was known about the biomechanics of scoliosis and that the cause was unknown whilst I was able to make sense of what was going on in my spine that I had reason to think that I had some important information about this area of the condition that wasn't well understood.

    So as a patient, my personal experience with scoliosis did not corroborate what was written anywhere in the literature or on any prominent websites, (and this is part of the reason I always pushed for better scoliosis websites and information online).
    And this not only alienated me in my life compared to other people that don't have scoliosis but it also alienated me within the people who do have scoliosis.

    And given that all the information given in books, literature or websites stated that Adult Scoliosis was considered to be AIS that went undiagnosed until adulthood, it was reasonable for me to assume that whatever 'event' had occurred within my spinal column to alter the state of biomechanics, and set off a resulting 'vicious cycle of loading within the altered biomechanics that would continually cause the scoliosis to progress' likely also occurred in AIS.

    And so I put forward my research ideas.

    That the location of where the altered biomechanics originally occurs determines the curve pattern, and that precise accurate models of every curve pattern could be created based on what I knew from learning how it worked from my spinal column.

    I felt like I had a responsibility to everyone with scoliosis to pursue this research until it was brought to a reasonable conclusion.

    I wasn't convinced that my scoliosis was the same as AIS, but I didn't think that there was any way that my ideas could logically be incorrect, and so I thought that any attempt to prove me wrong would only end up proving me right.

    But there was one thing I overlooked...

    Around the last time I was here I was updating my scoliosisblogs website with some new blogs that people had requested I add, and I took the time to read some of the blogs and look at some of the pictures of the girls scoliosis, and what I was specifically looking for was evidence of altered biomechanics.

    It seemed that even though some of the girls had quite big curves, they didn't really look like they had the 'altered biomechanics' component present.

    So I emailed an orthopedic surgeon and I asked... as I do.
    I've had no hesitation over the years emailing countless SRS Presidents, Administrative staff, Research Directors, Researchers, Surgeons, and anyone else I could annoy and terrorise in an effort to try to make them pay attention to me, with limited success and all in the name of doing what I thought was the right thing.

    I asked quite a few questions in my email, but to simplify I asked:
    "At what degree curvature does 'altered biomechanics' occur in AIS as opposed to Adult Scoliosis?"
    And this was his response:

    "I think you would be disappointed with the current literature for the very good and specific questions you are asking. The out of balance increasing the curve has much more application to the adult-type scoliosis than the adolescent type. I don’t start seeing evidence of that in the adolescents until well over 40 degrees. In the adults I start to see it at about 10 degrees."

    He went on to reinforce that my questions were a decade ahead of the literature.

    And so, if this information is correct, and if patients with AIS don't demonstrate 'altered biomechanics' until around 40 degrees then that effectively disproves my assumptions that "the location where 'altered biomechanics' occurs creates the curve pattern".
    -Finally, someone proved me wrong, but I had to ask the right questions, and no longer would I have to feel that my research was so important that I'd need to pursue it further for the sake of others.

    But it doesn't necessary mean I was wrong about my scoliosis or that I was lying when I said I was able to make sense of the altered biomechanics of my scoliosis; and part of me still thinks that the SRS maybe should've done more to learn what I was trying to show them, on that issue.
    Its interesting that he said he sees it occur in adults at around 10 degrees.

    So finally the obligation I'd felt to push my research to a reasonable conclusion had occurred.
    Or so I thought.

    There's still one thing I want.
    Acceptance and Acknowledgement I guess.
    Both from my scoliosis peers and from the medical establishment.
    (But more so from the medical establishment)

    It dawned on me a few weeks back that in some ways I'm a victim of medical discrimination.
    Thinking about the diagnosis protocol, you go to the doctor and they look over your back and send you for x-rays.
    The specialist (orthopedic surgeon) looks over and measures your x-rays and does a physical examination, (plumb line test, forward bending test, measures your legs and tests reactions), but I honestly don't know if they are specifically trained to identify and report on the existence of 'altered biomechanics' or not; it certainly doesn't happen in the context of x-rays or the radiologist report.
    I doubt any studies exist showing the effects of 'altered biomechanics' in its own right, and I've never received any kind of report conveying how the altered biomechanics affects me in my daily life...

    So on some level medically, I get hung out to dry.
    In this regard all I want is an acceptable diagnosis that adequately reflects the true nature of the way my scoliosis affects me.

    And on a peer level it should be accepted that even though I have a curvature of a lower magnitude than many AIS patients, my scoliosis includes an extra component that AIS patients don't usually have until around 40 degrees and that makes my scoliosis different.

    This may mean that my scoliosis might be more debilitating with that of an AIS patient at an equal level of curve magnitude because of the extra biomechanical component but I must say that don't want to start a sexist debate on the issue with the girls, because I really do acknowledge that a patient with AIS faces a whole different set of issues than I've had to. (rapid progression during growth, bracing, surgery).

    I haven't covered everything in this post.
    Leg Length Discrepancies and where they fit into the literature and whether or not this was a causative factor in the development of my spinal curvature, as it progressed to the point where altered biomechanics was possible and occurred.

    Also I probably have to again make some apologies for the way I acted over the years and also for misleading anyone into thinking there was hope for a non-surgical method to treat AIS based on my research ideas I tried to put forward.

    I want you all to understand that there was a reason for everything I did.
    That my personal experience with scoliosis did not corroborate what was written anywhere in the literature, and still doesn't.
    Also that both my personal experience and what was written in the literature gave me reason to feel I had knowledge worthy of further investigation and that I felt inclined to investigate it to a reasonable conclusion - for the sake of everyone.
    And finally that if the patient or research organizations had've taken steps to answer my questions and try to make it make sense 17years ago, it would of made things a whole lot easier and I would never have need be stuck in the position I was in for so long.

    I won't deny that I went about many things the wrong way, but you have to expect that kind of behavior when a person is pushed into a corner and feels trapped, whether its right or wrong.

    Finally, I'm going to have to discuss my scoliosis websites, and what to do with them.
    But I'll leave all these things for another day.
    Last edited by sjmcphee; 11-10-2015 at 08:41 PM.

  2. #2
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    Your write up overwhelms me, so I do not know where to start.
    Scoliosis bio-mechanics are not my strong suit, so I will not offer any sage/wise recommendations. I am fascinated with the topic and found a book on-line to order sometime in the future when I have time to read it. Perhaps I will have time in recovery from my impending surgery.

    We are not a medical advice community, most people here are supportive and can tell individual stories, coping mechanisms, or ideas on pain management or hospital prep that worked to didn't work for them.

    I hope that you find what you are looking for here. I would like to make a suggestion.....that you limit the length of your posts and pose specific questions. Perhaps it is just me, but being overwhelmed with your post and not knowing where to start, I just hope that you find the answers that you are seeking.

    Susan
    Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
    2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L4,5 screw
    2021: Removal T1 screw & rod

  3. #3
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    Quote Originally Posted by sjmcphee View Post
    Its been some time since I posted here.
    Normally when I come here I rant and rave about scoliosis biomechanics and I'm gone just as quick as I came.
    But this time I'm going to try it differently, this time I'm going to actually try to tell my story, from my point of view.
    I want the long time members of this forum to understand why I came to push the issues I have.
    I want them to understand why I've felt alienated and let down by the patient and research organizations.
    Hi Scott. Good of you to check in. Glad you are still working the problem.

    It seemed that even though some of the girls had quite big curves, they didn't really look like they had the 'altered biomechanics' component present.
    What does "altered biomechanics" look like?

    There's still one thing I want.
    Acceptance and Acknowledgement I guess.
    Both from my scoliosis peers and from the medical establishment.
    (But more so from the medical establishment)
    I would hope your peers would accept you.

    I doubt any studies exist showing the effects of 'altered biomechanics' in its own right, and I've never received any kind of report conveying how the altered biomechanics affects me in my daily life...
    Why do you think your biomechanics have been altered? If you never had that radiograph, would you have any way to know you had an 11* curve?

    At 11*, maybe you can use PT to straighten it at least one degree and then you will no longer have scoliosis and can move on.

    In this regard all I want is an acceptable diagnosis that adequately reflects the true nature of the way my scoliosis affects me.
    How does it affect you physically?

    I want you all to understand that there was a reason for everything I did.
    I hope everyone understands you are just searching for answers and acceptance.

    I won't deny that I went about many things the wrong way, but you have to expect that kind of behavior when a person is pushed into a corner and feels trapped, whether its right or wrong.
    I hope you have some measure of peace now, yes?

    Take care, Scott.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  4. #4
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    Hello Susan,

    Thanks for your reply.
    I was overwhelmed by the prospect of writing my write-up so much that I only put off writing it for about a year.
    I wanted to tell my story in a way that connected the dots of how I got my scoliosis, how it doesn't fit into any scoliosis category and how a lack of information lead me to push for better scoliosis websites and also how it was because I able to make sense of the biomechanics of my own scoliosis that lead me to pursue the research I did.

    I also wanted to come back and admit that I was wrong in some of the assumptions I had made about AIS and the research I'd previously put forward.
    I always said that I would admit that I was wrong if and when it could be proven I was wrong, and I was just keeping my word.

    I know this is a patient support group but I've always felt like the 'black sheep' because my scoliosis is essentially different to everyone else's. Its hard for me to understand or relate to some of the things other patients endure and therefore I'm limited in the level of support I think I can offer others. I also think its hard for others to relate to my scoliosis or offer me any support because it's different to what they are used to as well. Because of this I guess maybe just being able to come here and have my say sometimes and get things off my chest is a part of my own coping mechanism, and this might be a part of the reason why I don't usually hang around for too long when I visit as well.

    Sorry my post was so long, I wanted to get the bulk of my story out in one go.
    I'll try not to make my posts so long from here on in.

    From your signature it sounds like your scoliosis has been quite a journey over the last few years.
    I hope your upcoming surgery goes well, when do you go in for that?
    Is it your broken lumbar rod that is being fixed?
    It sounds painful.

  5. #5
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    Quote Originally Posted by sjmcphee View Post
    Hello Susan,

    Thanks for your reply.
    I was overwhelmed by the prospect of writing my write-up so much that I only put off writing it for about a year.
    I wanted to tell my story in a way that connected the dots of how I got my scoliosis, how it doesn't fit into any scoliosis category and how a lack of information lead me to push for better scoliosis websites and also how it was because I able to make sense of the biomechanics of my own scoliosis that lead me to pursue the research I did.

    I also wanted to come back and admit that I was wrong in some of the assumptions I had made about AIS and the research I'd previously put forward.
    I always said that I would admit that I was wrong if and when it could be proven I was wrong, and I was just keeping my word.

    I know this is a patient support group but I've always felt like the 'black sheep' because my scoliosis is essentially different to everyone else's. Its hard for me to understand or relate to some of the things other patients endure and therefore I'm limited in the level of support I think I can offer others. I also think its hard for others to relate to my scoliosis or offer me any support because it's different to what they are used to as well. Because of this I guess maybe just being able to come here and have my say sometimes and get things off my chest is a part of my own coping mechanism, and this might be a part of the reason why I don't usually hang around for too long when I visit as well.

    Sorry my post was so long, I wanted to get the bulk of my story out in one go.
    I'll try not to make my posts so long from here on in.

    From your signature it sounds like your scoliosis has been quite a journey over the last few years.
    I hope your upcoming surgery goes well, when do you go in for that?
    Is it your broken lumbar rod that is being fixed?
    It sounds painful.
    Hi, Scott Yes, both of my broken rods and a few non-fusions will be fixed. The date is not established yet, but I hope to know soon. Painful? Yes.

    You said that your scoliosis is different. I think that you probably have more in common with all of us than different. We are all unique in so many ways as is our responses to our scoliosis and treatments. I am extremely unique on the forum as I am the only person that has had a screw in the spinal cord from a proximal junction kyphosis. That resulted in my partial paraplegia. While no one can say, "Been there, done that" to a spinal cord injury from instrumentation and PJK, but lots of people were very supportive.

    Best of luck in finding answers to your scoliosis concerns. We are all in this together.

    Susan
    Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

    2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
    2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
    2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
    2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
    2018: Removal L4,5 screw
    2021: Removal T1 screw & rod

  6. #6
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    Hi Sharon,
    Thanks for your reply.
    Sorry for the delay in replying, I had to work on the farm where I live earlier this afternoon.
    I don't really spend a lot of time involved in matters relating to scoliosis anymore.

    Quote Originally Posted by Pooka1 View Post
    What does "altered biomechanics" look like?
    Up until the last time I was here, I assumed everyone's scoliosis had the same 'altered biomechanics' component as mine.
    It was only the information I became aware of about a year ago that altered biomechanics doesn't occur in AIS until around 40 degrees that made me think differently.
    It's hard to explain exactly what differences caught my eye in the scoliosis photos, maybe it was something different in the way the back muscles looked.

    It might be helpful to think about scoliosis in terms of components and characteristics.

    My scoliosis did not have rapid progression during growth (so I don't have AIS)
    I don't have the genetic predisposition for scoliosis as no other family members have AIS
    And my scoliosis did not exhibit vertebral wedging (characteristic of AIS)

    On the other hand, I have altered biomechanics where an AIS patient wont have this until approximately 40 degrees.
    So if you were to compare my scoliosis to a typical AIS patient, you might say that an AIS spinal column bends a lot more before it breaks (altered biomechanics) whereas mine just broke at 11 degrees and doesn't have the vertebral wedging AIS has.

    So to answer your question about what does altered biomechanics look like - I was looking for evidence that the normal spinal biomechanics was still intact even though the curvature was more pronounced as a result of the curvature and vertebral wedging.

    It would be easier if I had some pics, I should take a better look at this again some time and try to find some examples.

    Quote Originally Posted by Pooka1 View Post
    Why do you think your biomechanics have been altered? If you never had that radiograph, would you have any way to know you had an 11* curve?
    I've had plenty of x-rays over the years, you must've misunderstood me.
    I know my biomechanics became altered because the work injury was one where I felt and heard 2 loud crunches in my back as it occurred similar to what you might feel from a chiropractor making adjustments.
    There were pins and needles down my arms and legs and I couldn't hold things in my hand properly.
    As a result of the injury I could feel within my spinal column a structural element of lordosis within thoracic kyphosis.
    And after the injury and over time, I was able to make sense of how the altered biomechanics was functioning in my spine in relation to curve progression.

    Quote Originally Posted by Pooka1 View Post
    At 11*, maybe you can use PT to straighten it at least one degree and then you will no longer have scoliosis and can move on.
    My curvature has progressed since it was diagnosed 17years ago, and even if it was still 11 degrees like it was back then I couldn't just get PT to straighten it one degree and not have scoliosis and move on.
    - I'm not sure you're fully appreciating what I'm suggesting by altered biomechanics.

    I'd have to firstly reverse the bad biomechanical loading (as it occurred after the injury) back to the point where the original structural failure occurred in order to 'unbreak it' so that it didn't have the altered biomechanics component anymore.
    Only then could I attempt to bend it back (straighten it that one or more degrees).

    Quote Originally Posted by Pooka1 View Post
    How does it affect you physically?
    Its unreliable and unpredictable.
    I have 'okay' days most of the time (not really that painful, just kind of 'knotted up' and uncomfortable) and then I have a couple of bad days (some pain, stiffness and feeling lethargic), and it usually works like that approximately every few weeks.
    Occasionally I'll have a string of really bad days. Like 'I just got run over by a train' bad days.
    Neck pain, lower back pain and the whole thoracic region feeling like an ironing board, sometimes tingly, numb-ish, sometimes a light burning pain in my shoulder.
    I wake up feeling like 'I just got taken out by a bus' most mornings, and it takes a few hours sometimes for my body to loosen up that I feel better able to do physical tasks.
    Its hard to work or plan around in that I don't know when I'm going to have good days and bad days.
    - Mostly uncomfortable, sometimes painful, sometimes really painful.
    I cant really sit or stand for long periods of times and I cant work anywhere near as long hours as I had done before the work injury.
    I'd say it probably knocked about a quarter to a third of my strength equivalent straight off the top just from the existence of the altered biomechanics.

    Quote Originally Posted by Pooka1 View Post
    I hope you have some measure of peace now, yes?
    Not really, After 17 years I still don't have any acknowledgement that my scoliosis is different and doesn't fit into any category.
    What do they want me to do? Disappear?
    So that their scoliosis classifications remain correct?
    I am glad however that I don't have to push the research issue for the sake of others anymore though.
    A little disappointed that I was wrong about my AIS assumptions, but its a load off my shoulders.

    Sorry for the long reply.

  7. #7
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    Quote Originally Posted by sjmcphee View Post
    I've had plenty of x-rays over the years, you must've misunderstood me.
    Yes I misunderstood. What were all the readings?

    I know my biomechanics became altered because the work injury was one where I felt and heard 2 loud crunches in my back as it occurred similar to what you might feel from a chiropractor making adjustments.
    There were pins and needles down my arms and legs and I couldn't hold things in my hand properly.
    Pins and needles down the arms trace to the neck area, not where your curve is though.

    How do you know the curve developed instantly at the time of your injury and wasn't there for years?

    Isn't the curve much lower in your back than what could have resulted from your injury which if I recall correctly was your shoulder?

    My curvature has progressed since it was diagnosed 17years ago, and even if it was still 11 degrees like it was back then I couldn't just get PT to straighten it one degree and not have scoliosis and move on.
    How much has it progressed on the radiographs over time that your mentioned? How big is the curve on your latest radiograph?

    - I'm not sure you're fully appreciating what I'm suggesting by altered biomechanics.
    You're right. I am trying to understand what you are feeling and labeling as altered biomechanics as opposed to what you see on radiograph. How do you know your ongoing symptoms are related at all to the 11* curve in your TL spine? Maybe they are completely unrelated.

    I'd have to firstly reverse the bad biomechanical loading (as it occurred after the injury) back to the point where the original structural failure occurred in order to 'unbreak it' so that it didn't have the altered biomechanics component anymore.
    Only then could I attempt to bend it back (straighten it that one or more degrees).
    I think you might be pleasantly surprised that PT might reduce your curve. Once you are below 10* you do NOT have a diagnosis of scoliosis. I think they have that cut off because many people have small curves that never cause a problem and are not related to syndromes like AIS.

    I think you say you have a traumatic scoliosis, yes? I have never heard that mentioned anywhere which is in keeping with your understanding that your scoliosis is different.

    Its unreliable and unpredictable.
    I have 'okay' days most of the time (not really that painful, just kind of 'knotted up' and uncomfortable) and then I have a couple of bad days (some pain, stiffness and feeling lethargic), and it usually works like that approximately every few weeks.
    Occasionally I'll have a string of really bad days. Like 'I just got run over by a train' bad days.
    Neck pain, lower back pain and the whole thoracic region feeling like an ironing board, sometimes tingly, numb-ish, sometimes a light burning pain in my shoulder.
    I wake up feeling like 'I just got taken out by a bus' most mornings, and it takes a few hours sometimes for my body to loosen up that I feel better able to do physical tasks.
    Its hard to work or plan around in that I don't know when I'm going to have good days and bad days.
    - Mostly uncomfortable, sometimes painful, sometimes really painful.
    I cant really sit or stand for long periods of times and I cant work anywhere near as long hours as I had done before the work injury.
    I'd say it probably knocked about a quarter to a third of my strength equivalent straight off the top just from the existence of the altered biomechanics.
    These symptoms are consistent with many other conditions besides scoliosis. Have you been checked out for other conditions that have these symptoms? Have you asked a doctor if you might have early-onset DDD? People without scoliosis get that... I know somebody in that category. Maybe the 11 degree curve is FROM DDD. That would give you an answer about what type of curve you have.

    The other thing is the precision of the reading. Your curve is probably anywhere between 8 and 14 degrees. You may not have scoliosis even without PT and then can concentrate on other possible causes of your symptoms.

    Just some things that popped into my head. Please ignore if they are not helpful.

    Good luck.
    Last edited by Pooka1; 11-12-2015 at 08:42 PM.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  8. #8
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    Hello Susan,
    I wish I could be unique for something exceptional rather than being unique in a medical sense.
    Its a pretty depressive and miserable badge of honour they've handed out to us, I must say.
    How did the screw come to find itself in your spinal cord?
    Was it the kyphosis worsening or did some fool put that screw there?

    I heard in the news something about repairing spinal cord injuries, but I'm not sure how far they've come with it.
    I truly hope your surgery is a success and brings you some improvements in your quality of life.

  9. #9
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    Hey Sharon,
    My curve was 11 degrees a week after the work injury, in October 98.
    I couldn't tell you exactly what my measurements are right now, but I do have a referral for x-rays which I'll get done soon.
    My last x-rays were in 2012, and I believe from memory my curve was about low to mid 20's back then.
    So my curve is progressing, but at less than a degree a year.

    As for the pins and needles in my arms, I accept that the nerves are in the neck area, and I don't really know why this occurred when the injury was between T3 and T6, except to say that it did happen.
    If I was to try to look for an answer I might suggest that if the result of the injury created a lordotic element in thoracic region then maybe that element had to come from somewhere, maybe it was from cervical region.

    I do have a right thoracolumbar curve pattern and I know that in your mind it doesn't add up that the most pronounced area of my curve is not in the same area as where the injury occurred.
    This whole altered biomechanics is a complicated thing and I've always struggled to explain it, but I do understand it from a mechanical point of view.

    I don't think you can tell from an x-ray whether altered biomechanics exists or not.
    In a 2d anterior/posterior x-ray all you see is the curve, and not a 3d representation of the relationship between motion segments.

    I don't think that PT could improve my curve, my spine just doesn't work that way.
    I did do some rehab maybe 10years ago, all it seems to do is aggravate the altered biomechanics.

    I don't think I've ever used the term 'traumatic scoliosis' to describe my scoliosis, but I have heard the term before from a patient who was in a car accident.
    I don't know the technical definition of the term nor whether or not it really applies in my case.

    Regarding degeneration, in the very first x-ray I had, spondylosis was mentioned but it was only a very small amount and it was never again mentioned in the dozens of x-ray I've had since, that is up until maybe my last x-ray in 2012 where it was mentioned again, but only a small amount.

    I am over 40 now so this small amount at my age is probably not anything other than normal.
    My scoliosis has never been found to be associated with any other condition.
    No DDD or herniated discs although the disc spaces did look to me a little narrow in that first x-ray just after the injury.
    But disc spaces have always been documented as being normal.

    I definitely don't fit into any existing scoliosis category.
    But if I had to choose one, I'd say my spine more closely resembles an Adult Degenerative Scoliosis than Adult Idiopathic Scoliosis, simply because I had the 10 degree altered biomechanics and the small amount of spondylosis (probably insignificant) which probably carries more weight than an Idiopathic diagnosis of which the characteristics of rapid progression during growth, genetic predisposition, wedged vertebrae, and no altered biomechanics until 40 degrees we're not present in my scoliosis.

    I see AIS as being more of genetic disorder, where I think my scoliosis and adult scoliosis are more of a biomechanical condition.

    Finally, How do I see my scoliosis?

    Well, there's the LLD of about 1cm apparently which I mentioned in my opening post.
    Its not reasonable to suggest that the LLD occurred after the injury when I was already skeletally mature.
    Its more reasonable to suggest that it occurred as I was growing.
    So, I think as I was growing up, the LLD was developing, and as result a related spinal curvature was also developing.
    My spine reached a threshold of its normal biomechanical function in relation to that curvature and then from there all it took was the specific stressful movement I placed on my spine to break it, and alter the normal biomechanical function of my spinal column.
    Last edited by sjmcphee; 11-13-2015 at 08:23 AM.

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