Hi Linda,
I remember there was a younger woman here about 5 years ago who had a similar problem as yours…she had surgery with Boachie as I recall, but I don't remember her name. She couldn't hold her chin up off her chest at her worst. Everything checked out with her back, so she was sent to PT, which did give her quite an improvement. I think as it turned out her problem was due to some type of muscle atrophy.
I will try to search for her posts to see if they help you at all. You definitely deserve a break by this point!
Gayle, age 50
Oct 2010 fusion T8-sacrum w/ pelvic fixation
Feb 2012 lumbar revision for broken rods @ L2-3-4
Sept 2015 major lumbar A/P revision for broken rods @ L5-S1
mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
2010 VBS Dr Luhmann Shriners St Louis
2017 curves stable/skeletely mature
also mom of Torrey, 12 y/o son, 16* T, stable