HI all,
We found out about my 13 1/2 year old daughter's AIS scoliosis last month with an S curve (38 degrees right thoracic and 49 degrees thoracolumber per the official X-ray report though surgeons gave slight variations of this measurement still within 5 deg error range). The doctor said her Risser sign 0 as she just started her Menarche at the end of September and so we are afraid the curve progression would get worse.
We met with 3 Ortho surgeons and all are of the opinion that she is close to surgery range (above 50 degrees) though 2 suggested trying Boston brace, which is coming soon.
I want to try all possible non-surgical options before we consider surgery.
We met with PT where they had Medx TR equipment and I gave her the Dr. Mooney research paper to review (along with Dingo’s list of exercise he uses with his kid) and suggest a good routine to try for us. As my kid does not have any pain right now, she was having hard time justifying a routine due to insurance reasons. She is reviewing and will get back to us. I am having trouble finding an expert in this area who could guide us to ensure we do the exercises properly and not cause harm. Any help from forum experts is appreciated here.
We also met with Schroth trained PT and starting few sessions starting next week.
We met with a Yoga teacher who trained with Elise Miller (Yoga for Scoliosis DVD) and she gave some initial exercise to try which we have not started yet.
It has been extremely emotional for the family to deal with this situation and we are doing everything we can to keep a brave front while we deal with this situation.
I got few questions and appreciate forum experts responses:
1. What else I can do to try other non-surgical routes? Is there any danger in trying all of the above simultaneously (Yoga, Schroth and Medx TR).
2. How to meaningfully measure her progression without getting x-rays in short intervals?
3. I read about Fibrillian-1 and Fibrillian-2 gene mutations as potential causes for AIS and is there any hope for gene therapy (which is probably too late for my daughter).
4. If her curve progress and situation gets into surgery territory, should we consider doing it now versus six months from now or a year later etc so it would not become very difficult surgery.
5. Should we get an MRI now to rule any other causes of scoliosis, one of the Orthos suggested since she said we will do one before a surgery (she was assuming we will go for one soon)
Thank you all in advance for your time and responses. If I missed providing any additional information that would help to answer a question, please let me know.
Thanks.
-Sam
We found out about my 13 1/2 year old daughter's AIS scoliosis last month with an S curve (38 degrees right thoracic and 49 degrees thoracolumber per the official X-ray report though surgeons gave slight variations of this measurement still within 5 deg error range). The doctor said her Risser sign 0 as she just started her Menarche at the end of September and so we are afraid the curve progression would get worse.
We met with 3 Ortho surgeons and all are of the opinion that she is close to surgery range (above 50 degrees) though 2 suggested trying Boston brace, which is coming soon.
I want to try all possible non-surgical options before we consider surgery.
We met with PT where they had Medx TR equipment and I gave her the Dr. Mooney research paper to review (along with Dingo’s list of exercise he uses with his kid) and suggest a good routine to try for us. As my kid does not have any pain right now, she was having hard time justifying a routine due to insurance reasons. She is reviewing and will get back to us. I am having trouble finding an expert in this area who could guide us to ensure we do the exercises properly and not cause harm. Any help from forum experts is appreciated here.
We also met with Schroth trained PT and starting few sessions starting next week.
We met with a Yoga teacher who trained with Elise Miller (Yoga for Scoliosis DVD) and she gave some initial exercise to try which we have not started yet.
It has been extremely emotional for the family to deal with this situation and we are doing everything we can to keep a brave front while we deal with this situation.
I got few questions and appreciate forum experts responses:
1. What else I can do to try other non-surgical routes? Is there any danger in trying all of the above simultaneously (Yoga, Schroth and Medx TR).
2. How to meaningfully measure her progression without getting x-rays in short intervals?
3. I read about Fibrillian-1 and Fibrillian-2 gene mutations as potential causes for AIS and is there any hope for gene therapy (which is probably too late for my daughter).
4. If her curve progress and situation gets into surgery territory, should we consider doing it now versus six months from now or a year later etc so it would not become very difficult surgery.
5. Should we get an MRI now to rule any other causes of scoliosis, one of the Orthos suggested since she said we will do one before a surgery (she was assuming we will go for one soon)
Thank you all in advance for your time and responses. If I missed providing any additional information that would help to answer a question, please let me know.
Thanks.
-Sam
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