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I will continue to keep you and your family in my thoughts. I can't even begin to know what it must feel like as a parent. Big hugs, stay strong as you have, it will help her so much. I am glad that your surgeon is communicating so well with you, that must help a little bit.
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Thank you so much. Yeah, it's been pretty intense. Double thoracotomy, two ribs removed, discs removed from T6-L3 (T4 and T5 will be taken today and L4 if needed), and anterior fusion of those levels in the span of 4 days, and now the posterior fusion and instrumentation today. Our daughter is amazing. It's been so hard, and she's been a trooper. She's our hero.....Karen
Mom to Girl Child diagnosed with 84* and 91* curves in Aug 2014 at age 11.5.
Surgeries scheduled for Nov 10, 14, and 17.Comment
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Thank you! It's definitely helpful that he's been so communicative, and he clearly cares about doing what's best for her. It definitely helps us feel confident we have the right surgeon for the job.Karen
Mom to Girl Child diagnosed with 84* and 91* curves in Aug 2014 at age 11.5.
Surgeries scheduled for Nov 10, 14, and 17.Comment
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She is a hero for all of usT10-pelvis fusion 12/08
C5,6,7 fusion 9/10
T2--T10 fusion 2/11
C 4-5 fusion 11/14
Right scapulectomy 6/15
Right pectoralis major muscle transfer to scapula
To replace the action of Serratus Anterior muscle 3/16
Broken neck 9/28/2018
Emergency surgery posterior fusion C4- T3
Repeated 11/2018 because rods pulled apart added T2 fusion
Removal of partial right thoracic hardware 1/2020
Removal and replacement of C4-T10 hardware with C7 and T 1
OsteotomyComment
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So true, I admire her for her strength and courage.Originally posted by jackieg412 View PostComment
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So glad that all seems to be going well. There are always bumps in he road, so if/when that happens, take a deep breath. Your daughter has amazing strength, mostly because she has a mom with great courage and an awesome attitude. Take care of yourself so that you can be present for your daughter.
Sending healing thoughts.
SusanAdult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis
2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
2018: Removal L4,5 screw
2021: Removal T1 screw & rodComment
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Karen, your not kidding.....Originally posted by Karen5 View Post
There is going to be some pain involved with this....try not to let it get to you, she is going to be fine....
Please keep us posted.....
Hang in there
Ed49 yr old male, now 63, the new 64...
Pre surgery curves T70,L70
ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
Dr Brett Menmuir St Marys Hospital Reno,Nevada
Bending and twisting pics after full fusion
http://www.scoliosis.org/forum/showt...on.&highlight=
My x-rays
http://www.scoliosis.org/forum/attac...2&d=1228779214
http://www.scoliosis.org/forum/attac...3&d=1228779258Comment
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Karen5,
Keeping you in our thoughts. Hoping your daughter's fusion does not extend below L3 and wishing for a fast and pain free recovery.
Do keep us updated. Do remember no matter how long it might seem, ultimately THERE IS LIGHT at the end of the tunnel.
Hang in there.
Best wishes,
CoolblueComment
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