Registered User
I will continue to keep you and your family in my thoughts. I can't even begin to know what it must feel like as a parent. Big hugs, stay strong as you have, it will help her so much. I am glad that your surgeon is communicating so well with you, that must help a little bit.
Registered User
Thank you so much. Yeah, it's been pretty intense. Double thoracotomy, two ribs removed, discs removed from T6-L3 (T4 and T5 will be taken today and L4 if needed), and anterior fusion of those levels in the span of 4 days, and now the posterior fusion and instrumentation today. Our daughter is amazing. It's been so hard, and she's been a trooper. She's our hero.....
Karen
Mom to Girl Child diagnosed with 84* and 91* curves in Aug 2014 at age 11.5.
Surgeries scheduled for Nov 10, 14, and 17.
Registered User
Thank you! It's definitely helpful that he's been so communicative, and he clearly cares about doing what's best for her. It definitely helps us feel confident we have the right surgeon for the job.
Karen
Mom to Girl Child diagnosed with 84* and 91* curves in Aug 2014 at age 11.5.
Surgeries scheduled for Nov 10, 14, and 17.
Registered User
She is a hero for all of us
Registered User
So true, I admire her for her strength and courage.Originally Posted by jackieg412
Registered User
So glad that all seems to be going well. There are always bumps in he road, so if/when that happens, take a deep breath. Your daughter has amazing strength, mostly because she has a mom with great courage and an awesome attitude. Take care of yourself so that you can be present for your daughter.
Sending healing thoughts.
Susan
Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis
2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
2018: Removal L4,5 screw
2021: Removal T1 screw & rod
Registered User
Karen, your not kidding.....
There is going to be some pain involved with this....try not to let it get to you, she is going to be fine....
Please keep us posted.....
Hang in there
Ed
49 yr old male, now 63, the new 64...
Pre surgery curves T70,L70
ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
Dr Brett Menmuir St Marys Hospital Reno,Nevada
Bending and twisting pics after full fusion
http://www.scoliosis.org/forum/showt...on.&highlight=
My x-rays
http://www.scoliosis.org/forum/attac...2&d=1228779214
http://www.scoliosis.org/forum/attac...3&d=1228779258
Registered User
Karen5,
Keeping you in our thoughts. Hoping your daughter's fusion does not extend below L3 and wishing for a fast and pain free recovery.
Do keep us updated. Do remember no matter how long it might seem, ultimately THERE IS LIGHT at the end of the tunnel.
Hang in there.
Best wishes,
Coolblue
Posting Permissions
Reply With Quote