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Thread: Well... need some opinion

  1. #16
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    Hi, Delta!
    Yes, those videos are amazing. It takes a lot of brut strength to be a scoliosis surgeon, just like it does to be a mechanic. For me personally, that is the primary reason I see a male doctor. I wouldn't feel comfortable with a female doctor for this procedure. But there are plenty of female doctors out there that seem to do a very good job. It's just that men, in general, have more upper body strength than do women. But there are also some really good female mechanics. I haven't found one. For instance, we take our car in to get it aligned. One time, the mechanic was a female. We were told that there was something wrong with our vehicle which prevented it from being aligned properly. We went on vacation in the winter and our vehicle was extremely hard to control on the ice. When we got back from our vacation I took the vehicle in to have the alignment checked again. This time it was a male mechanic and he was able to easily align the vehicle properly. This made me a little angry because our vacation was very stressful and dangerous. After this experience, I will NOT let a female mechanic work on my vehicle for things that take such physical strength. It also made me think of scoliosis surgery, since I have seen many of these videos before. I know someone with poor correction from surgery. This individual was young and healthy which makes the surgery "easier" to perform. She should have gotten a near 100% correction, but didn't get anywhere that good. I asked about this surgeon at one of my doctor's appointments to find out if she was still performing scoliosis surgeries. I was told that she was not because she injured her shoulder. So this is my own bias, prejudice, or whatever you want to call it, against women scoliosis surgeons. I'm not at all prejudiced against women doctors, but there are just some areas of medicine that I feel they are not best suited for, even if the woman is particularly large, which the one that I mentioned is.

    I'll probably get reamed for posting this, LOL. But this is something that I personally consider when choosing a doctor to deal with my scoliosis. That's what makes ME comfortable.

    I can't wait to see your x-rays! Did they put it on a disc for you? That's the best way to look at them. They come with a program formatted with the tools you need to measure your curves. Many of us will look at it, but since most of us don't have the program on our computers (it's on the disc itself) we won't be able to measure it for you. However, you can look on the forum for x-rays of people with different curve magnitudes. My curve magnitude is about 46* (measured by 2 SRS doctors who both got the same measurement). My recent measurement of 42* comes from lack of consistency. I trust the higher one because of the fact that two specialists agreed on that measurement. So if you look at my x-rays vs. someone with a much larger curve, you can kind of figure out where you are most likely at. I have one x-ray posted that was measured at 41* before some progression. So if yours looks similar in magnitude then you'll know. You have to consider rotation, too. It can make a smaller lateral curve look much larger from the outside. But the x-rays will show what's going on in the inside.

    Well, I've rambled long enough. I look forward to seeing your x-rays!
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  2. #17
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    _MG_3307.jpg Front plane
    _MG_3309.jpg Right plane Are my cobb calculations correct?(i.e. ~75 Cobb degrees)
    I've entered a frenzy state(gone berserker so to speak) being extremely upset and damaged my fist(again). And yet that damn nagging back pain somehow breaks through even with my hand hurting... I hope that doctor can prescribe me some good physical therapy.
    Last edited by Delta107; 06-14-2013 at 01:47 PM.

  3. #18
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    Thx for posting I just photographed(the radiologist used indeed a PC to compute the 39 degree angle, she used a rather complicated method) and calculated the angle in CorelDraw. I'm just interested if the angle is indeed in the 70+ range. The radiologist has also mentioned rotation and flattening of the kyphosis(whatever that means, the orthopedist should figure it out).
    Last edited by Delta107; 06-14-2013 at 01:36 PM.

  4. #19
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    Delta,
    Flattening of the kyphosis means that the natural curvature outward between your shoulder blades is flat. Looking sideways at the spine it forms a gentle S shape. The part that should curve outward is flattened. It is referred to as hypokyphosis. You will see this term a lot on here. Hyperkyphosis means just the opposite, that there is too much outward curve. People with this condition look like hunched back. Yours is probably sunken inward between your shoulder blades. That's how mine is. Mine is, in fact, quite severe.

    Again, I look forward to seeing your x-rays. It's too bad they didn't give you a copy of the disc. If she had to use Corel, then the disc won't have the dicom format that is so useful. See if they will make you a copy of the disc anyway. It's easier to keep than a big film.
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  5. #20
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    Quote Originally Posted by Delta107 View Post
    _MG_3307.jpg Front plane
    _MG_3309.jpg Right plane Are my cobb calculations correct?(i.e. ~75 Cobb degrees)
    I've entered a frenzy state(gone berserker so to speak) being extremely upset and damaged my fist(again). And yet that damn nagging back pain somehow breaks through even with my hand hurting... I hope that doctor can prescribe me some good physical therapy.
    That looks to be at least 75*. Might be more.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  6. #21
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    I agree....

    Delta

    Do you have a surgeon that you are talking to?

    Welcome to the forum

    Ed
    49 yr old male, now 62, the new 63...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  7. #22
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    First I am appointed to an orthopedist to make me a diagnose. Then I'll have to find one... I want to delay this for as much as possible, but that remains to be seen...
    Last edited by Delta107; 06-15-2013 at 02:39 AM.

  8. #23
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    Usually I don't like to complain, but I'd like to know if others have experienced smth like this. Last year I dropped swimming because I was getting pain while swimming. Yesterday my mother somehow managed to convince me to try swimming again. So today I went to swim a bit. It was nothing special really. Knowing that I am prone to back pain I did usual leg drills. I also did ~50 m breaststroke and 25 m crawl but stopped when I started to feel weird in my neck. After 45min the bell rang the end time. So I decided that since my muscles were warm and ready I did 50 m crawl as an end drill. By the time I finished I began to feel extreme pain in the chest, and couldn't draw breath, and the back muscles were twitching when breathing. It felt like someone has cut me inside my chest with something sharp. Once I was out I found out that I couldn't draw a deep breath, only very shallow ones and was getting dizzy(couldn't get enough air). Soon my mother came and we went to a trauma center and got injected with pain relief(the doctor actually said he sees no trauma...). I still hurt a bit but I can breath. It was very scary... Now I can hardly believe I felt that absent that pain.

    Two years ago I was easily doing 200m crawl drills... Now I can't do even 50... I think its because my scoliosis got worse, but I don't know. My only older radiography is when I was ~15 when I was still growing. So I got 0 reference. My parents feared the radiation
    Last edited by Delta107; 06-15-2013 at 10:23 AM.

  9. #24
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    Delta,
    Fortunately Pooka1 quoted your post, otherwise I would not have been able to see your x-rays. Please don't delete these because we can't give you our opinions otherwise. Your curve looks very large. I will show you what a 46*/38* double major curve looks like:

    I0000001.DCM2010_001_1.jpg

    So now you know that your is much more. I wouldn't delay in getting in to see a specialist. Make sure that you see someone who specializes in scoliosis.

    As far as physical therapy goes, I will give you my personal experience. It helped me when my curve was around 40* or less. As the curve got bigger it stopped helping with the pain. I'm not telling you not to try physical therapy, but I have a hunch that they will recommend surgery. If surgery is something that you don't want, there are also people on this forum that you can reach out to that may be able to guide you with some exercises or specific places to go or look for help. As far as I know, physical therapy doesn't correct curves that big, but I'm not a specialist. If you are in as much pain as you are AND with the size of your curve, I just know what my doctor would say. I'm not recommending any specific treatment. I'm just trying to prepare you for what you may hear. It worries me about what happened when you tried swimming. I wish you the best and hope that at the minimum you should get your pain under control.
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  10. #25
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    Just a very important side point. IF you still have your original radiographs or even your latest ones from when you were 15, it would be very helpful for the orthopedic doctor to look at for comparison. It tells them how your spine is moving.

    Take care.
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  11. #26
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    Mar 2005
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    31
    Hi,
    I don't know how much you swam before you stopped a year ago, but if you went into a heavy workout after a big break, that alone could give you pain cramps and shortness of breath, so it's hard to say how much of the problem is because of your spine. I used to swim a lot with double 55s, and felt fine. Last year I was doing backstroke when I got a terrible cramp in my neck - I pretty much just floated to the wall and felt like I was going to pass out, but it gradually got better, even though it took a couple of days for it to go away completely. Totally healthy people get these cramps too. That said, your curve does look pretty severe. Whether or not it affects your lungs is up to a good doctor to find out.

  12. #27
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    I've been swimming since 7 years old and never ever experienced smth like that. It could be related to a big break, but I did very very light drills. Its not the first time I swim after a break. Thanks for all comment!

  13. #28
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    My surgeon calls himself a carpenter. Though a mechanic might be a more apt choice!

    That's a good video, I haven't seen that one before. I think it shows how the pedicle screws work, better than other videos I've seen. It's just so amazing what they do, these amazing surgeons. Imagine the courage it would take, the first hundred or so surgeries!
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  14. #29
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    Sorry, Delta, for saying you deleted your x-rays. I found the post. I don't know why I didn't see them before. I looked several times. I guess I didn't look high enough on the thread. Anyway, please accept my apologies.

    Also, the radiograph that I posted is mine. That's why I know the measurements. The larger curve is actually the top curve even though they look similar. I hope you have a better day today. Just remember you are not alone in dealing with this. I have a lot of pain with my scoliosis, too. Some people, even with very large curves, have no pain. Other people with very large and also not-so-large curves have a lot of pain. The medical community cannot explain this. Your curve "looks" painful. I hope you don't delay in getting seen. Please continue to keep us updated. I'm sure you will find the support of many people and helpful information to educate you about your disease. I know that I have.
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

  15. #30
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    Thanks for your support it lifts the spirit!

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