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Hip pain caused by scoliosis...????

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  • #46
    Jess,
    I'm thinking about you today. I hope your MRI goes well!
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

    Comment


    • #47
      Jess,

      I am thinking of you today. Hope all goes well

      Melissa
      Melissa

      Fused from C2 - sacrum 7/2011

      April 21, 2020- another broken rod surgery

      Comment


      • #48
        rohr and Melissa
        thank you so much for thinking of me, and remembering my MRI today...
        boy, do those metal tables feel crappy...
        anyway, i had it done...took an hour and a half!
        they said they did extra shots of spine because it was so curved to
        their eyes that they wanted to be sure they got all of it on MRI pix...
        there were 2 techs there...
        not a word out of either...
        they did spine for part of time and hip for rest of time...
        i got the disc, and requested a copy of written report to me...
        they said it takes up to 48 hours to be written...

        again, thank you so much for thinking of me...
        very much appreciated!

        jess...and Sparky

        Comment


        • #49
          Hi Jess,

          You must be sore after laying still that long!

          Please let us know what you find out. Do you go back to see the ordering doctor soon?
          Gayle, age 50
          Oct 2010 fusion T8-sacrum w/ pelvic fixation
          Feb 2012 lumbar revision for broken rods @ L2-3-4
          Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


          mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
          2010 VBS Dr Luhmann Shriners St Louis
          2017 curves stable/skeletely mature

          also mom of Torrey, 12 y/o son, 16* T, stable

          Comment


          • #50
            hi leah
            i am due to see doc who ordered MRI end of August...i can call
            and get appt sooner if need be...
            his office is NOT good about calling people after tests...to the point that
            if they do call you, you immediately guess it is bad news!

            thanks for the sympathy...yes, i am more sore than usual...seemed to me
            that it took a long time...had lower spine and then left hip done...
            they said they took extra pix cause my spine was so curved they wanted
            to be sure to get all of it in pix...but without long wait in waiting room,
            i was there over an hour and a half...
            felt like forever on table!

            thanks again...much appreciate the concern...

            woofs and a hug...
            jess...and Sparky

            Comment


            • #51
              Jess,
              Just wondering if you got your MRI report, yet, and what it says.
              Thinking of you!
              Be happy!
              We don't know what tomorrow brings,
              but we are alive today!

              Comment


              • #52
                rohr...thank you so much to you and others for the concern...
                i JUST got the report today...there are 2 separate reports...
                one for spine..long on conclusion...bad...my spine is worse than
                i ever allow myself to think about...
                and one on hip...two separate papers came in two separate envelopes...

                bottom line on my hip....impressions were...

                1. bone marrow edema in left symphysis and superior ramus most compatible with a stress injury without a discrete fracture line seen...

                2. small amount of increased fluid in the trochanteric bursa compatible
                with a mild bursitis.

                3. no osteoarthritis of hip.

                number 3 surprised me, as i have osteoarthritis of spine...
                number 2 sounds like what Linda Racine suspected...trochanteric
                bursitis...

                not sure what number 1 means...

                no call from doc who ordered MRI...the office there is AWFUL about
                calling patients after tests...

                anyway, i do not know how i injured my left hip...
                sometimes my little angel puppy yanks me on his leash...he is amazingly
                strong for a little Maltese...even my husband says so....
                but i do not remember any injury or saying "ouch" while walking him
                or anything...

                the MRI of lower spine is unbelievably depressing to me...
                it goes into detail of the "severe leftward convex scoli of lumbar
                spine, apex of curvature at L2....extensive degeneration and plate changes on right side at L2 L3 and on left side at L5-S1...guess i know why i need fusion to sacrum!!!

                (i have upper curve of 42 degrees that they did NOT include in MRI)

                then they go into detail...on EACH level!

                L1-L2 moderate to severe right sided facet arthropathy...mild foraminal
                narrowing

                L2-L3 mild disc bulge.... severe right sided facet arthropathy ...mild to
                moderate right foraminal narrowing

                L3-L4 disc bulge with severe facet degeneration....significant right
                foraminal narrowing...mild narrowing of central canal

                L4-L5 moderate to severe central canal stenosis with EXUBERANT (???)
                facet arthropathy... moderate to severe bilateral foraminal narrowing

                L5-S1 significant degenerative endplate changes....severe facet
                arthropathy...narrowing of lateral recesses from bony hypertrophy
                ....significant left foraminal encroachment.

                overall impression...
                severe leftward scoliotic curvature wtih significant spondylosis at L2-L3 and L5-S1. Multilevel facet arthropathy with foraminal encroachment...moderate to severe central canal stenosis at L4-L5

                whew...exhausted from looking at that...

                ugh...not a spine i would wish on anyone, that's for sure!

                jess...and Sparky

                Comment


                • #53
                  Hi Jess,

                  I'm sorry to hear about the results but at least you know what you're dealing with to help you in deciding your next steps. I know you've consulted with different surgeon's. Did you decide on a surgeon for when the time comes?
                  44 years old at time of surgery, Atlanta GA

                  Pre-Surgery Thorasic: 70 degrees, Pre-Surgery Lumbar: 68 degrees, lost 4 inches of height in 2011
                  Post-Surgery curves ~10 degrees, regained 4 inches of height

                  Posterior T3-sacrum & TLIF surgeries on Nov 28, 2011 with Dr. Lenke, St. Louis
                  2 rods, 33 screws, 2 cages, 2 connectors, living a new life I never dreamed of!

                  http://thebionicachronicles.blogspot.com/

                  Comment


                  • #54
                    hi Doreen..
                    thank you so much for the concern...

                    have been told i need spinal surgery by Dr Boachie, Dr Lonner, Dr Neuwirth,
                    Dr Anand (flew to L.A. to see him a few years ago)
                    and a few other surgeons whose names escape me at the moment....
                    when i was planning surgery, in 2006, i chose Dr Lonner....
                    a problem with my left femur interrupted plans for spinal surgery...
                    i never went back to planning surgery....

                    i have different insurance now...not a great plan...a Medicare Advantage
                    Plan...i can change next year, if i can find something affordable (?)
                    that doctors take...i do not even know if Lonner takes my current advantage plan...

                    the time HAS come...but i have not moved forward with surgery...
                    i have changed my mind about having it and not having it a dozen
                    times...but have not been able to bring myself to go ahead with it...

                    i am wondering if walking differently because of spinal pain had some
                    impact on my hip...because i do not remember injuring it in any way...
                    strange....
                    i have heard of steroid shots for bursitis...but i had such a bad time
                    with an overdose of steroids that i doubt i would try them again.

                    hope you are feeling OK, with all you have been thru lately...

                    woofs from me and Sparky

                    Comment


                    • #55
                      Jess,
                      That's an awful report! But as said earlier, you know the enemy and can now develop the right battle plan for you. Medicare advantage plan, all I can say is ugh! I can not stand them and really think they might have well been selling ocean view property in Missouri because those plans should've never exsisted. They portrayed it as a great affordable insurance and it is far from it.

                      Anyhow, I will be praying for a strong battle and a victory of less pain for you. Living with pain is exhausting and I wouldn't wish it on anyone! Stay strong!
                      Tamena
                      Diagnosed at age 12 with a double major curve

                      Braced till age 15

                      SSBOB T12-L2 Anterior age 34. (October 22,2012) Dr. Robert Gaines Jr. ( Columbia, MO)

                      Revision Surgery T2-Sacrum with Pelvic Fixation Prosterior age 35 (November 13,2013) Dr. Michael Kelly (St. Louis, MO)

                      Revision Surgery L4/L5 due to BMP Complication age 36 (November 20,2014) Dr. Michael Kelly (St. Louis, Mo)

                      Revision Surgery due to broken rod scheduled for October 19, 2016 with Dr. Michael Kelly (St. Louis, MO)

                      Comment


                      • #56
                        thank you, Tamena...
                        but there is no battle plan i have in mind...
                        i had a huge cortisol crash the last time i had steroid shots..
                        my cortisol went down to almost zero...from too much steroid in
                        my system...very scary...complete and total exhaustion...
                        i was lucky my cortisol numbers came back up...
                        i think i might be offered steroid shot for bad left hip...
                        but probably will not try it...

                        there is nothing for my spine besides surgery...
                        and i have not gone ahead with that...

                        but i appreciate your kind concern and encouragement.

                        jess...and Sparky

                        Comment


                        • #57
                          Jess! That is some report! What will you do?
                          Sharon, mother of identical twin girls with scoliosis

                          No island of sanity.

                          Question: What do you call alternative medicine that works?
                          Answer: Medicine


                          "We are all African."

                          Comment


                          • #58
                            hi Sharon
                            thank you for your kind concern...
                            i do not know that i will do anything...
                            if i am offered a steroid shot for left hip, i am worried about my
                            cortisol crashing again..and if it does that again, there is no guarantee
                            it will come back again...
                            i do not think i will do anything with the spinal problems...i am not ready
                            to have fusion....
                            i think i have few options....one major one with surgery...but few
                            options in numbers of things that can be done.

                            my concern now is how i injured the hip so i do not do it again...

                            jess...and Sparky

                            Comment


                            • #59
                              No wonder you're in so much pain, Jess. <sad face>
                              Surgery March 3, 2009 at almost 58, now 63.
                              Dr. Askin, Brisbane, Australia
                              T4-Pelvis, Posterior only
                              Osteotomies and Laminectomies
                              Was 68 degrees, now 22 and pain free

                              Comment


                              • #60
                                So sorry to hear the news-- but at the same time it must be good (in a sense) to know what you are dealing with. I'm thinking of you and the decisions you are up against. (What to do, if anything...) I am so sorry you injured your hip!
                                71 and plugging along... but having some problems
                                2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
                                5/4/07 posterior fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
                                Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

                                Corrected to 15°
                                CMT (type 2) DX in 2014, progressing
                                10/2018 x-rays - spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

                                Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

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