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Thread: Hip pain caused by scoliosis...????

  1. #226
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,715
    Please find the courage to make that phone call and see what can be done to help your spine. Don't wait until it's too late and you are out of options.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  2. #227
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    Oh Jess, that's so sad and so awful for you. It's Monday night here, I hope you've made that call. Thinking of you and hoping there's a solution for both your and Sparky's sake.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  3. #228
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,317
    Jess,

    Someone expert is going to take your insurance. They have to.

    Did you solve your cortisol/hormone issue?

    Hugs to you and baby Sparky monkey.

    Sharon
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  4. #229
    Join Date
    May 2009
    Posts
    3,729
    long story short...
    Lonner's office checked and called me back...
    the TAKE my current insurance...
    i was so shocked...i could not think...
    made appt for June 26th....planned for July but it wasn't
    working out....so i figured why wait that long...

    i do NOT know what i will do when i see the doc...
    receptionist said i saw him in 2010....

    thanks to all who expressed concern...
    jess...and Sparky

  5. #230
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,805
    That's great news! I also reached out to Dr. Betz as promised for a recommendation, so we'll see what he says. Look at you - now you may have several docs to choose from :-))))

    I think Sparky had something to do with this - LOL!
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  6. #231
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,317
    Very good news, Jess!
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  7. #232
    Join Date
    May 2009
    Posts
    3,729
    thanks Maria...
    so kind of you....

    Sharon....this amazes me...i didn't expect good news from them...

    Sparky is happy for me....

    woofs

  8. #233
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,472
    Quote Originally Posted by jrnyc View Post
    i do NOT know what i will do when i see the doc...
    Jess, just say, “I’m back, What am I going to do?”

    Just sit back and listen....

    There is a time when we all have to accept the fact that we cant go on doing what we are doing living in misery....You have to realize that its just not worth continuing on like this and that surgery is your only hope. That’s the way I felt....It didn’t matter if I couldn’t bend or ski or whatever, its not about that. Its about cutting losses, reducing pain, and getting it done before its too late.

    I think that we have a tendency to get all jammed up in our minds about this.....it’s a time that we need to control our anxiety, and try to think logically.....again, breathe deep!!!

    And ask him one more question....

    “Will it help?”

    Ed
    49 yr old male, now 63, the new 64...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  9. #234
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    Great news! You're over one hurdle already. <smiley face>
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  10. #235
    Join Date
    Feb 2014
    Posts
    98
    That's great that you are seeing a doctor, Jess. Good luck at your appointment!

    Have courage! You will surprise yourself and find you're a lot stronger than you ever thought you could be.
    Surgery Jan 6, 2014 at 38 yrs
    Posterior Fusion T10-L4, osteotomy 1 lev.
    Pre op-Thoracolumbar Curve-50 degrees

  11. #236
    Join Date
    May 2009
    Posts
    3,729
    to Ed, Jen and Spring Chicken...
    thanks for the kind words and encouragement...

    i know that it is fear of the unknown that holds me back,,,
    and every time i bend down to pick up Sparky or change his
    water...the boy doesn't drink....he thinks he is a camel...
    or pick up his toy, i wonder how things would be if i were
    fused...

    i know others have done it and triumphed...just do not
    know that i could be in that group...

    i also might be doing it essentially alone...

    jess...and Sparky

  12. #237
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,715
    Jess,
    I wish you could follow me around for a day. You would be amazed at what I do in a day, from weeding landscaping, washing windows, taking exercise classes at the Y, playing 18 holes of golf, riding my bike, etc. I was scared to death and thought my life as I knew it and enjoyed it (I wasn't in much pain) might be nonexistent after surgery. I don't bend in the middle of my back, but go down on one knee all day long to feed my dog or pick up something off of the floor or I can also do the a one legged reach. People fused to the sacrum can bend at the hips just not the middle of their backs. Surgery is no fun, however, eventually when the spine is fused, for the majority of us, our futures are soooooo much more promising than if we chose to not have surgery with a curve that would most likely increase and cause increasing pain. Watch my video again and remember that it was over two years ago. I am much more flexible now. I can also stand for as long as I have to where I used to seek a seat whenever I was out. You can do it!!!!
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  13. #238
    Join Date
    Feb 2014
    Posts
    26
    Hi Jess,

    I'm new to the forum and considering surgery also. I have to say Karen's reply to your thread is inspiring. Today I'm in so much pain I have two lidocaine patches on my back and it killed me to walk through a garden center with my husband...and my favorite thing to do is walk through garden centers. So now I'm sitting here thinking about what else I can do to alleviate my pain; what drug, what stretch, heat, cold...you name it. I don't want this surgery either but I know that I can't stand living like this. Or more importantly...not living.

    It's a big decision, but from what I've been reading on the forum you seem like a smart lady. Look to the future; sometimes that's all we can do.

    I'm rooting for you!!

    Diane

  14. #239
    Join Date
    May 2009
    Posts
    3,729
    thanks, Karen...
    i wish i could follow you as well...
    you sound amazing in that you can do so many things....
    one thing you mentioned does worry me a little...
    both of my knees are not good...one has a medial meniscus
    tear...the other a cyst...both have arthritis...

    Diane, i am glad if the lidocaine patches help you...
    i hope they can do the trick and you do not need oral
    meds...?

    thanks to everyone on forum who has kindly expressed
    concern and support for me...it is appreciated more than
    i can say...
    jess...and Sparky

  15. #240
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,715
    I am fortunate that my knees are still in good shape, but I can see why it would be a concern and something to mention to the surgeon. It might be a good thread to start and ask how those have had surgery and also have knee replacements or other knee issues deal with picking up things once restrictions are lifted. I am able to pick up things off of the floor without squatting down on one knee by holding on to something with one hand and leaning over while kicking one leg out behind me. Someone on the forum called it a golfer's reach which I had never heard of before.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

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