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Hip pain caused by scoliosis...????

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  • One statement in this encouraging thread stood out to me: You will surprise yourself and find you're a lot stronger than you ever thought you could be.

    This is so true. You have more strength and courage than you imagine. And you will come out of it the other side with a renewed confidence in yourself.

    We're with you all the way, Jess.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

    Comment


    • Jen the more i read the forum the less i am interested
      in having fusion to sacrum, which is what i require...

      today i read someone's post about never wearing anything
      post surgery for the rest of her life except for stretchy clothing...
      sounds horrible.....that is not a reason that would stop me
      from having surgery.....just one more on a long list...

      the need for fusion to sacrum is what has kept me away
      from surgeons...
      too bad there is no way to fuse the top and then fuse the
      bottom and not fuse them as one...

      i still do not see myself fused....it is not in my head
      as my future....it discourages and terrifies and saddens
      me beyond words...

      i am happy for any and all who are glad they had surgery to sacrum.

      jess....and Sparky
      (who requires his owner bend down constantly)

      Comment


      • I'm sorry to hear that Jess. I'll never stop encouraging you towards surgery because I believe it will help you enormously. But I also respect your choice. When the time comes, if it comes, you'll have lots of us here, barracking for you.
        Surgery March 3, 2009 at almost 58, now 63.
        Dr. Askin, Brisbane, Australia
        T4-Pelvis, Posterior only
        Osteotomies and Laminectomies
        Was 68 degrees, now 22 and pain free

        Comment


        • And I've never heard of anyone not wearing anything but stretchy clothing. Maybe that is just one person's preference. Not mine, and I'm sure not others...
          71 and plugging along... but having some problems
          2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
          5/4/07 posterior fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
          Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

          Corrected to 15°
          CMT (type 2) DX in 2014, progressing
          10/2018 x-rays - spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

          Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

          Comment


          • thanks, Jen and Susie Bee
            i am truly touched by your concern for me and by your
            encouragement..
            i know one person's experience does not speak for everyone...
            i think sometimes the fear takes over...
            also, where i am living now is not conducive to physical recovery...
            eventually i will get around to inquiring if anyone in southern CA
            takes my current insurance...which i plan to change in January.
            i also expect to be in southern CA in January.
            past winter was the last winter in northeast for me.

            thanks again...you guys are so kind.
            jess...and Sparky

            Comment


            • Jess

              On the mobility question as far as being fused to the pelvis, the very best way to know what its like is to wear a full hard brace. Regardless on if they work or not, this was worth a fortune and prepared me for my surgeries. I knew what I was getting into.

              I have an idea.....I have my “post surgical” brace, which is a split clamshell setup with a front and a back attached with velco straps on the side. I could UPS this to you, and you could try it on and feel what its like to be fused to the pelvis. Its in brand new condition and I hardly wore it.....If it doesn’t fit, you can simply use a hack saw and make it fit. This is easy. Throw it out when you are done with it, or use it as a little dog house for Sparky. Its lined with foam. (smiley face)

              My Copes brace is a relic....and a part of my “turbulent” scoliosis history and I wouldn’t want to part with that brace....That one was a custom fit, and is tight as a drum. Regardless of what Art Copes did, I will give him credit on his brace design....I have no regrets on the purchase of his brace.

              I understand wanting to move to Southern California due to your situation. I will have to come down for a visit...

              Let me know

              Ed
              49 yr old male, now 63, the new 64...
              Pre surgery curves T70,L70
              ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
              Dr Brett Menmuir St Marys Hospital Reno,Nevada

              Bending and twisting pics after full fusion
              http://www.scoliosis.org/forum/showt...on.&highlight=

              My x-rays
              http://www.scoliosis.org/forum/attac...2&d=1228779214

              http://www.scoliosis.org/forum/attac...3&d=1228779258

              Comment


              • you are so kind, Ed...
                i will let you know...
                thank you...so much.

                jess...and Sparky

                Comment


                • I wonder if there is a market for a scoliosis brace cat house?

                  I could mount it on a pole and tiger can sharpen his claws on it. (Entertainment value for prior brace wearers)

                  Do you think our nations Orthoist’s would find that depressing?

                  Ed
                  Last edited by titaniumed; 06-14-2014, 01:28 PM.
                  49 yr old male, now 63, the new 64...
                  Pre surgery curves T70,L70
                  ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                  Dr Brett Menmuir St Marys Hospital Reno,Nevada

                  Bending and twisting pics after full fusion
                  http://www.scoliosis.org/forum/showt...on.&highlight=

                  My x-rays
                  http://www.scoliosis.org/forum/attac...2&d=1228779214

                  http://www.scoliosis.org/forum/attac...3&d=1228779258

                  Comment


                  • i do not know about braces....
                    never seen one...
                    i do not think kitties need houses...
                    although the tiger i used to help out with in CA,
                    near Moorpark, had a den....he slept in there, took
                    naps there after he ate....


                    20140606_083035_resized.jpgJessica_06_0011a.jpg

                    Comment


                    • Jess,
                      I have been away for my grandson's graduation up in Providence, RI. If I can give you any kind of encouragement, I would say that if you don't think you have the strength or courage to go for a fusion to the pelvis, think about this. Our strength and courage comes not from us, but from the One who made us. Most of us have been absolutely terrified prior to our surgeries, but when the time comes, peace comes to us and the power of God takes over. (Linda, you can delete this post if you must, but it is the truth.) You have told me you are a believer, so now it is time to trust in Him. I wish you all the Peace in the world. How could you possible want to live the rest of your life as an invalid in serious pain?
                      Blessings to you, Sally
                      Diagnosed with severe lumbar scoliosis at age 65.
                      Posterior Fusion L2-S1 on 12/4/2007. age 67
                      Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
                      Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
                      New England Baptist Hospital, Boston, MA
                      Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

                      "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

                      Comment


                      • Originally posted by jrnyc View Post
                        Jen the more i read the forum the less i am interested
                        in having fusion to sacrum, which is what i require...

                        today i read someone's post about never wearing anything
                        post surgery for the rest of her life except for stretchy clothing...
                        sounds horrible.....that is not a reason that would stop me
                        from having surgery.....just one more on a long list...

                        the need for fusion to sacrum is what has kept me away
                        from surgeons...
                        too bad there is no way to fuse the top and then fuse the
                        bottom and not fuse them as one...

                        i still do not see myself fused....it is not in my head
                        as my future....it discourages and terrifies and saddens
                        me beyond words...

                        i am happy for any and all who are glad they had surgery to sacrum.

                        jess....and Sparky
                        (who requires his owner bend down constantly)
                        I think that we see what we want to see in the thread. Irina wears cute form fitting, non-stretchy clothes as did another woman in that thread. She is also slim and tall. I wear mostly stretchy clothes because I like comfort, not because I cannot due to my surgery.

                        I focus on what I can do now which is phenomenally more than what I could do before surgery. Sure, I still have some discomfort here and there, but I am in the mainstream of life. I was progressively becoming more debilitated and spending less time outside my house. Not a life that I wanted to live.

                        I honestly do not think that fusion and iliac screws have slowed me down....and I'm not smoking anything! Just the opposite, the surgery gave me my life back.

                        Susan
                        Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

                        2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
                        2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
                        2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
                        2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
                        2018: Removal L4,5 screw
                        2021: Removal T1 screw & rod

                        Comment


                        • am seeing Dr Lonner at 11:30 in Manhattan Thursday, June 26th...
                          will try to post X rays after i get back Thursday nite....
                          i expect bigger curves than last time in 2010...especially
                          since a CT doctor did an X ray since 2010 and said my lumbar
                          curve, 62 degrees in 2010, was at 70 degrees.

                          jess...and Sparky

                          Comment


                          • Good luck at that appointment, Jess.
                            Sharon, mother of identical twin girls with scoliosis

                            No island of sanity.

                            Question: What do you call alternative medicine that works?
                            Answer: Medicine


                            "We are all African."

                            Comment


                            • Thanks, Sharon...
                              going in Wednesday and seeing pain doc, getting half dose
                              steroid shot in left hip, fingers crossed...
                              then see Lonner Thursday...

                              jess... and Sparky

                              Comment


                              • Good luck with both of your appointments, Jess!
                                I am stronger than scoliosis, and won't let it rule my life!
                                45 years old - diagnosed at age 7
                                A/P surgery on March 5/7, 2013 - UCSF

                                Comment

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