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Thank you, Ed!

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  • Thank you, Ed!

    I noticed in another thread that you recently lost your mom. I am so very sorry for your loss. You're a terrific person and we all love your encouragement on this board. You have given us a lot of helpful information. Thank you so much. I've always thought that people with such kind hearts, such strength and stamina, had to have had good parents. Your mom surely was a wonderful lady. I will be praying for you, that you are comforted in the days ahead.
    1973 Age 15 diagnosed with scoliosis but told too old for surgery.
    2001 age 43 told too old for surgery, did physical therapy & traction.
    2001 to 2008 Intermittent use of home traction machine and TENS unit.
    2009 traction no longer effective - physical therapy.
    2011 More physical therapy. 2012 Collapsing scoliosis - MRI before surgery
    At age 53, surgery on October 2nd, 2012 with Dr Hey
    Fusion with titanium rods and bolts from T1 to pelvis.
    Post op x-ray

  • #2
    Ed,
    I also saw the post where you lost your mom. I'm so sorry to hear this. Sometimes we don't know what to say, but please know you are in our thoughts at this time. I tried to send you a PM but it wouldn't send.

    Take Care.
    Be happy!
    We don't know what tomorrow brings,
    but we are alive today!

    Comment


    • #3
      Ed,
      I am sorry to hear of your loss of your mom. I can't imagine how hard this is for you. I'm sure your mom was a wonderful person in order to raise such a kind, caring son.
      Karen

      Surgery-Jan. 5, 2011-Dr. Lenke
      Fusion T-4-sacrum-2 cages/5 osteotomies
      70 degree thoracolumbar corrected to 25
      Rib Hump-GONE!
      Age-60 at the time of surgery
      Now 66
      Avid Golfer & Tap Dancer
      Retired Kdgn. Teacher

      See photobucket link for:
      Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
      Before and After Picture of back 1/7/11
      tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
      http://s1119.photobucket.com/albums/k630/pottoff2/

      Comment


      • #4
        Ed, I am very sorry to hear of your loss. Losing a mom is so hard. I pray that you will get though this


        Melissa
        Melissa

        Fused from C2 - sacrum 7/2011

        April 21, 2020- another broken rod surgery

        Comment


        • #5
          Ed,
          I second what everyone else said. You are a special person and so must your Mom have been. You will be in my thoughts and prayers.
          Sally
          Diagnosed with severe lumbar scoliosis at age 65.
          Posterior Fusion L2-S1 on 12/4/2007. age 67
          Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
          Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
          New England Baptist Hospital, Boston, MA
          Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

          "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

          Comment


          • #6
            Ed--
            I have been off for a time so hadn't seen the post about your mother. I'm so sorry to hear that. And yes, to echo the ones above, someone as supportive and helpful as you have been to all of us, had to be one very strong, loving person too. You're certainly in my thoughts and prayers. Janet
            Janet

            61 years old--57 for surgery

            Diagnosed in 1965 at age of 13--no brace
            Thoracic Curve: 96 degrees to 35 degrees
            Lumbar Curve: 63 degrees to 5 degrees
            Surgery with Dr. Lenke in St. Louis--March 30, 2009
            T-2 to Pelvis, and hopefully all posterior procedure.

            All was posterior along with 2 cages and 6 osteotomies.

            Comment


            • #7
              Sending my sympathy also. It is so hard to lose a parent-- we can expect it as we grow older, but when it actually happens, it still hurts so. I lost both my mother and father within 4 months of each other one year. There's a time to grieve and this would be it, and everyone seems to deal with grief in their own way. Let us know what we can do-- individually or as a group. Sending love your way.
              71 and plugging along... but having some problems
              2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
              5/4/07 posterior fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
              Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

              Corrected to 15°
              CMT (type 2) DX in 2014, progressing
              10/2018 x-rays - spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

              Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

              Comment


              • #8
                Ed,

                I am so, so sorry to hear about your mother. Huge loss. Take care of yourself.

                Best regards,
                Sharon
                Sharon, mother of identical twin girls with scoliosis

                No island of sanity.

                Question: What do you call alternative medicine that works?
                Answer: Medicine


                "We are all African."

                Comment


                • #9
                  Thanks guys. The e-mails and PM’s are appreciated....you are all wonderful.

                  I don’t have much to say other than the fact that grief is extremely powerful.....I think that time will heal, and the power of the lord is strong.

                  When I return home from Florida, I hope to recover somewhat so I can comment on scoliosis related issues......this is what our forum is about. I know that elders in their 80’s are not allowed to fall, because that is what happened.....Her hip gave out, probably from osteoporotic degeneration....

                  My mom was a classical pianist, an artist, and an incredible person. Now, I have to figure out how to get the paintings home....She had all the pictures of course, and have all the old photos now... looking at my shoulder heights during my teen years......I guess it doesn’t matter since it all turned out just fine in the end....

                  Thx
                  Ed
                  49 yr old male, now 63, the new 64...
                  Pre surgery curves T70,L70
                  ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                  Dr Brett Menmuir St Marys Hospital Reno,Nevada

                  Bending and twisting pics after full fusion
                  http://www.scoliosis.org/forum/showt...on.&highlight=

                  My x-rays
                  http://www.scoliosis.org/forum/attac...2&d=1228779214

                  http://www.scoliosis.org/forum/attac...3&d=1228779258

                  Comment


                  • #10
                    I’m back home now trying to recover from THE worst stiff neck ever above my fusion, so bad that my left arm and hand has been numb. This is a first time I have ever had nerve related arm issues and think back to those that have had these sorts of problems here in the past.

                    I took a 3 year old Celebrex...from my medication arsenal. I will report on the shelf life of this product. lol

                    I made it 15 months without any neck issues, but it seems that this is going to be one of my future problems. Last year my surgeon told me that my C5-C6 is showing signs of degeneration....and my neck seems to be falling forward just like ET.

                    Once again, I will give Chiro and ultrasound a try....I expect to do around 4 or 5 neck adjustments everyday this week.

                    Thanks for all the support...

                    Happy Easter

                    Ed
                    49 yr old male, now 63, the new 64...
                    Pre surgery curves T70,L70
                    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                    Dr Brett Menmuir St Marys Hospital Reno,Nevada

                    Bending and twisting pics after full fusion
                    http://www.scoliosis.org/forum/showt...on.&highlight=

                    My x-rays
                    http://www.scoliosis.org/forum/attac...2&d=1228779214

                    http://www.scoliosis.org/forum/attac...3&d=1228779258

                    Comment


                    • #11
                      Ed, sorry to hear of you current neck pain...
                      i do hope tx helps relieve the pain...
                      you have surely been thru enough!

                      Happy Easter to you, too...
                      i have a pic of Sparky, the Easter bunny, that i will send you...
                      hope it makes you smile.

                      jess

                      Comment


                      • #12
                        I'm sorry to hear that Ed. It's one of my fears as well.

                        The first thought that came into my head was, these things happen/get worse during times of severe stress. The tension in our bodies, in particular, brings out pain in all our vulnerable bits. Losing your Mom is a hugely stressful event, so I have hope that as the stress eases, so will your pain. Take it easy.
                        Surgery March 3, 2009 at almost 58, now 63.
                        Dr. Askin, Brisbane, Australia
                        T4-Pelvis, Posterior only
                        Osteotomies and Laminectomies
                        Was 68 degrees, now 22 and pain free

                        Comment


                        • #13
                          I'm sorry Ed,

                          She's in a better place now. My sympathy goes to you. *HUGS* and just read my signature

                          Best wishes,

                          Kat

                          Comment


                          • #14
                            Ed--
                            Sorry to hear of the difficulties you are having with your neck. I'm sure the stress of losing your mom has played a role. I know my neck is one of the areas I have the most trouble. I recently have noticed an improvement since my husband got me this "seat" to put on the computer chair. Have you ever used the Backjoy Relief? www.BACKJOY.com 10 minutes at the computer was about all I could handle without my neck acting up. This really has helped. It just positions you differently. We got it at Bed Bath and Beyond for about 40 dollars. Hope things improve soon. Janet
                            Janet

                            61 years old--57 for surgery

                            Diagnosed in 1965 at age of 13--no brace
                            Thoracic Curve: 96 degrees to 35 degrees
                            Lumbar Curve: 63 degrees to 5 degrees
                            Surgery with Dr. Lenke in St. Louis--March 30, 2009
                            T-2 to Pelvis, and hopefully all posterior procedure.

                            All was posterior along with 2 cages and 6 osteotomies.

                            Comment


                            • #15
                              Ed,

                              So sorry to hear of the loss of your mom. Sounds like she was an incredible woman. I hope you can get some relief from your neck pain.

                              Best,

                              Maria
                              mariaf305@yahoo.com
                              Mom to David, age 17, braced June 2000 to March 2004
                              Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

                              https://www.facebook.com/groups/ScoliosisTethering/

                              http://pediatricspinefoundation.org/

                              Comment

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