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Susan's surgery at UCSF with Dr. Hu on 19 and 22 March, 2013

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  • #31
    Thanks, Mark, for posting for Susan. Tell her we are all rooting for her and will be thinking about her during her second surgery.
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

    Comment


    • #32
      Susan's Surgery Update Saturday March 23rd

      Susan had her first surgery on Tuesday and things went very well except for
      getting pain under control in the first 12 hrs after surgery and some
      minor issues with some lung congestion and low O2 saturation level.
      She did very well with the first surgery overall.
      I stayed with her for 2 days till she was taken to her second day surgery
      on Friday at about 6:30AM.
      Fridays surgery was delayed for several hours while they decided if it was
      safe with her lung congestion. This I learned was probably due to her very
      sore rib, they harvested bone material during Tuesday's surgery, thus
      making it painful for her to breathe deeply. This was the main surgery for
      rebuilding much of her spine and per surgeon went very well after the la
      te start.
      Fridays surgery went well and everything that was planned was successfully
      completed. She did not get out of surgery till after 6PM and was then taken
      to ICU where she has been since. No real unexpected issues or problems.
      Lots of pain control needed and balancing and close monitoring of her lung
      status but no real issues. It appears she will also spend tonight in ICU
      and be released to a room Sunday.

      Hope this helps update everyone. Thanks for your support, prayers and well
      wishes. Please pass along to others who might be interested.

      Mark Cooksey
      Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

      2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
      2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
      2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
      2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
      2018: Removal L4,5 screw
      2021: Removal T1 screw & rod

      Comment


      • #33
        Again, thank you Mark. Happy to hear the surgery went well. Now for healing, we will all be praying. Give Susan our love.
        Tamena
        Diagnosed at age 12 with a double major curve

        Braced till age 15

        SSBOB T12-L2 Anterior age 34. (October 22,2012) Dr. Robert Gaines Jr. ( Columbia, MO)

        Revision Surgery T2-Sacrum with Pelvic Fixation Prosterior age 35 (November 13,2013) Dr. Michael Kelly (St. Louis, MO)

        Revision Surgery L4/L5 due to BMP Complication age 36 (November 20,2014) Dr. Michael Kelly (St. Louis, Mo)

        Revision Surgery due to broken rod scheduled for October 19, 2016 with Dr. Michael Kelly (St. Louis, MO)

        Comment


        • #34
          So glad to hear that the surgery went well. It's actually good that they are keeping Susan at ICU - she'll get more attention this way. Give Susan a gentle hug for me, please.
          I am stronger than scoliosis, and won't let it rule my life!
          45 years old - diagnosed at age 7
          A/P surgery on March 5/7, 2013 - UCSF

          Comment


          • #35
            Hi Mark,

            Thank you so much for updating us on Susan--please tell her Gayle from Corvallis is sending best wishes.

            These first few days are definitely tough but each day will get a little better. Please tell her we are all thinking of her. Take care of yourself, too.
            Gayle, age 50
            Oct 2010 fusion T8-sacrum w/ pelvic fixation
            Feb 2012 lumbar revision for broken rods @ L2-3-4
            Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


            mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
            2010 VBS Dr Luhmann Shriners St Louis
            2017 curves stable/skeletely mature

            also mom of Torrey, 12 y/o son, 16* T, stable

            Comment


            • #36
              Very glad to hear Susan's surgeries are over. Now all she needs do is sleep, eat, walk and heal. No more worries about the upcoming surgery! Everything sounds very normal. The rib will be very sore but hopefully there'll be no further issues. Each day will be another step towards normality. Hope you can get some sleep as well. How trying this is on everyone concerned!
              Surgery March 3, 2009 at almost 58, now 63.
              Dr. Askin, Brisbane, Australia
              T4-Pelvis, Posterior only
              Osteotomies and Laminectomies
              Was 68 degrees, now 22 and pain free

              Comment


              • #37
                Thanks for the updates Mark. Please let Susan know that she (and you) are in by thoughts and prayers. It is such a tough surgery, it is amazing to me that our bodies can withstand such an onslaught. Getting the pain under control is so important. Try to get some rest yourself whenever Susan is asleep.
                Take care and God Bless, Sally
                Diagnosed with severe lumbar scoliosis at age 65.
                Posterior Fusion L2-S1 on 12/4/2007. age 67
                Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
                Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
                New England Baptist Hospital, Boston, MA
                Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

                "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

                Comment


                • #38
                  So glad to hear Susan's surgeries were successful. Please tell her we're all thinking of her and looking forward to hearing from her when she is ready. In the meantime, thanks for keeping us updated!

                  Evelyn
                  age 48
                  80* thoracolumbar; 40* thoracic
                  Reduced to ~16* thoracolumbar; ~0* thoracic
                  Surgery 3/14/12 with Dr. Lenke in St. Louis, T4 to S1 with pelvic fixation
                  Broken rods 12/1/19; scheduled for revision fusion L1-L3-4 with Dr. Lenke 2/4/2020
                  Not "confused" anymore, but don't know how to change my username.

                  Comment


                  • #39
                    Thanks so much for the info, Mark. So glad the surgeries are over and she's doing reasonably well after such a huge surgery. Many positive thoughts and prayers for a steady and good recovery! Janet
                    Janet

                    61 years old--57 for surgery

                    Diagnosed in 1965 at age of 13--no brace
                    Thoracic Curve: 96 degrees to 35 degrees
                    Lumbar Curve: 63 degrees to 5 degrees
                    Surgery with Dr. Lenke in St. Louis--March 30, 2009
                    T-2 to Pelvis, and hopefully all posterior procedure.

                    All was posterior along with 2 cages and 6 osteotomies.

                    Comment


                    • #40
                      Thanks for posting. I'm glad Susan no longer has to stress over making the decision for surgery and now can devote all of her energy to the healing process. We will be here for her every step of the way. Best wishes for a smooth recovery and a future without pain.
                      Karen

                      Surgery-Jan. 5, 2011-Dr. Lenke
                      Fusion T-4-sacrum-2 cages/5 osteotomies
                      70 degree thoracolumbar corrected to 25
                      Rib Hump-GONE!
                      Age-60 at the time of surgery
                      Now 66
                      Avid Golfer & Tap Dancer
                      Retired Kdgn. Teacher

                      See photobucket link for:
                      Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
                      Before and After Picture of back 1/7/11
                      tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
                      http://s1119.photobucket.com/albums/k630/pottoff2/

                      Comment


                      • #41
                        Hi everyone. I am in rehab on nob hill at a very nice place with views or SF. Had a scare last night with severe chest pain which ended up to be atelectasis.
                        Happy that I had surgery. Pain from back deceasing.
                        Susan
                        Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

                        2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
                        2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
                        2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
                        2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
                        2018: Removal L4,5 screw
                        2021: Removal T1 screw & rod

                        Comment


                        • #42
                          Originally posted by susancook View Post
                          Hi everyone. I am in rehab on nob hill at a very nice place with views or SF. Had a scare last night with severe chest pain which ended up to be atelectasis.
                          Happy that I had surgery. Pain from back deceasing.
                          Susan
                          So glad to hear it! Yay for decreasing back pain!
                          I am stronger than scoliosis, and won't let it rule my life!
                          45 years old - diagnosed at age 7
                          A/P surgery on March 5/7, 2013 - UCSF

                          Comment


                          • #43
                            I had to look up atelectasis.

                            Very happy to hear you're doing well and that you're glad you had the surgery. All that worry about surgery gone - that's a biggie!

                            Hope your recovery continues smoothly.
                            Surgery March 3, 2009 at almost 58, now 63.
                            Dr. Askin, Brisbane, Australia
                            T4-Pelvis, Posterior only
                            Osteotomies and Laminectomies
                            Was 68 degrees, now 22 and pain free

                            Comment


                            • #44
                              Collapsed lung? I take it they re-inflated it?

                              Did you realize you wrote "deceasing" back pain? As in the pain is on it's way to being deceased! No more pain! Let's hope surgery killed the back pain for you. :-)

                              Best,
                              Evelyn
                              age 48
                              80* thoracolumbar; 40* thoracic
                              Reduced to ~16* thoracolumbar; ~0* thoracic
                              Surgery 3/14/12 with Dr. Lenke in St. Louis, T4 to S1 with pelvic fixation
                              Broken rods 12/1/19; scheduled for revision fusion L1-L3-4 with Dr. Lenke 2/4/2020
                              Not "confused" anymore, but don't know how to change my username.

                              Comment


                              • #45
                                Thanks everyone for your support. Pain is Slightly decreasing.
                                Dealing with urinary incontnence.
                                Susan
                                Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

                                2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
                                2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
                                2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
                                2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
                                2018: Removal L4,5 screw
                                2021: Removal T1 screw & rod

                                Comment

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