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I sure hope things are going ok with Susan......
Ed
Ed
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49 yr old male, now 63, the new 64...
Pre surgery curves T70,L70
ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
Dr Brett Menmuir St Marys Hospital Reno,Nevada
Bending and twisting pics after full fusion
http://www.scoliosis.org/forum/showt...on.&highlight=
My x-rays
http://www.scoliosis.org/forum/attac...2&d=1228779214
http://www.scoliosis.org/forum/attac...3&d=1228779258 -
Me too. It's hard waiting to hear something... I think I may have her email address. I'll see if I get a response. Nope, not there anymore. Does someone else have her address?Last edited by Susie*Bee; 03-28-2015, 02:07 PM.71 and plugging along... but having some problems
2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
5/4/07 posterior fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago
Corrected to 15°
CMT (type 2) DX in 2014, progressing
10/2018 x-rays - spondylolisthesis at L4/L5 - Dr. DeWald is monitoring
Click to view my pics: pics of scoli x-rays digital x-rays, and pics of meComment
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Susie Bee~~,has Susan had her surgery? I don't have her email address either. I have a home address.Originally posted by Susie*Bee View Post
Hope she is doing alright. Just wish we knew. Sending lots of prayers and good vibes her way.Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017Comment
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I spoke with Susan on the phone. During her third surgery, doctors discovered that she had an infection. They removed all the hardware. The strange thing is that Susan didn't have any symptoms of infection and nobody knows when it started. She is in the hospital now and will be going to a skilled nursing facility next. She sure has been thru a ringer...I am stronger than scoliosis, and won't let it rule my life!
45 years old - diagnosed at age 7
A/P surgery on March 5/7, 2013 - UCSFComment
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Thanks Irina, for letting us know.
Hope you are ok Susan. You sure have been through the wringer.Surgery March 3, 2009 at almost 58, now 63.
Dr. Askin, Brisbane, Australia
T4-Pelvis, Posterior only
Osteotomies and Laminectomies
Was 68 degrees, now 22 and pain freeComment
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Does that mean they did not complete the surgery according to plan and she will have to do this again at a later date? If so, she must be really bummed.Originally posted by Irina View PostLast edited by Lizardacres; 03-29-2015, 08:54 AM.Before 39* lumbar at age 18, progressed to 74* lumbar and 22* thoracic age 55
ALIF Jan 13, 2015, PLIF Jan 15, 2015 with Dr William Stevens, Honor Health
Fused T-7 to S-1 with pelvic fixation
After 38* lumbar
Xrays
Before: http://www.scoliosis.org/forum/attac...7&d=1414268930
After: http://www.scoliosis.org/forum/attac...6&d=1424894360Comment
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It sure looks that way.....Originally posted by Lizardacres View Post
Infection is always our other main worry.....I could imagine it being such a “draining” battle.
Irina, when you talk to Susan again, tell her that we are all thinking about her and to stay strong and that she will make it through all of this.
Ed49 yr old male, now 63, the new 64...
Pre surgery curves T70,L70
ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
Dr Brett Menmuir St Marys Hospital Reno,Nevada
Bending and twisting pics after full fusion
http://www.scoliosis.org/forum/showt...on.&highlight=
My x-rays
http://www.scoliosis.org/forum/attac...2&d=1228779214
http://www.scoliosis.org/forum/attac...3&d=1228779258Comment
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WOW. That is about all I can say. I remember (when I first had her email address) when she was asking questions about what the surgery would be like... 'way back before her first surgery. Yes, be sure to let her know how much she's in our thoughts.71 and plugging along... but having some problems
2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
5/4/07 posterior fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago
Corrected to 15°
CMT (type 2) DX in 2014, progressing
10/2018 x-rays - spondylolisthesis at L4/L5 - Dr. DeWald is monitoring
Click to view my pics: pics of scoli x-rays digital x-rays, and pics of meComment
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Yes, Irina, please tell Susan she's in our thoughts & prayers.Peg
61 yrs old
75 degree lumbar curve with thoracic kyphosis
T3 - S1 surgery with Dr. Buchowski in St. Louis, on 10/27/14
Working on healing in Columbus, Ohio!Comment
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I told Susan about everyone's greetings. She is in good spirits, such an amazing and strong woman! Speaking of the hardware, they placed new hardware in instead of the old one. So, no more surgeries planned as far as she knows. Susan is being treated with antibiotics and I sure hope that it will take care of the infection.I am stronger than scoliosis, and won't let it rule my life!
45 years old - diagnosed at age 7
A/P surgery on March 5/7, 2013 - UCSFComment
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Oh, it's good to know that Susan's hardware has been replaced. My imagination was running wild!
So, so happy that Susan is in good spirits! Thank you, Irina!Peg
61 yrs old
75 degree lumbar curve with thoracic kyphosis
T3 - S1 surgery with Dr. Buchowski in St. Louis, on 10/27/14
Working on healing in Columbus, Ohio!Comment
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Yes Peggy mine too, I could see her laying in the hospital without any hardware and having to wait for the infection to clear up..and then having yet go through an other surgery.
Susan wishing you all the best with your recovery.Marianne
rotoscoliosis, subluxation and spinal stenosis
Surgery April 15, 2015 at age 67
T11-L5
Decompression with multiple discectomies
Concord cages @ L2-3, L3-4, L4-5
Osteotomies and local bone grafting
Revision Feb.22, 2018
Replaced rods
Took out L5 disk to free up nerves
Used BPM to help with fusing
Fused T10-S1 with screws in pelvisComment
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Relief!
Does anyone know if Susan has an address to send mail? (Hospital and room no) I have her home address in Yacolt,Washington. Or is that still their home? I just am amazed she didn't have symptoms of infection. But isn't that just the way it goes! At least the new stuff is in and that has to be a relief for her, I'm sure.
She has been through the ringer! I'm glad to hear she's doing alright now. Hoping everyone is having a decent day. Susan we are all rooting for you!!!! LindaLinda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
This started adult onset scoliosis
July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
Oct.20th 2010, extended rods to T4 / did osteotomy at L3
Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
May 30th 2013 revision
May 8th cervicle surgery 2016
May 31st Dr. Gupta revision 2017Comment
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Susan,
Just to let you know that you are in my prayers.
God Bless
MelissaMelissa
Fused from C2 - sacrum 7/2011
April 21, 2020- another broken rod surgeryComment
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Linda, I think Yacolt, WA is still her home address.Originally posted by babyboomer16 View PostI am stronger than scoliosis, and won't let it rule my life!
45 years old - diagnosed at age 7
A/P surgery on March 5/7, 2013 - UCSFComment
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