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  1. #1
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    Dr in New York, LA and other region.

    Okay so in reading this forum I have heard a lot of Dr. names mentioned but wasnt keeping a comprehensive list.

    Lenke - St. Louis
    Bentz -
    Hey-
    Cohen - Tampa
    ? -Dr. in Philly

    Top picks in New York and Southern CA.

    I know I can get a list from SRS and of course I will be reading Dr. websites too. Private message me if you'd rather: who and why.

    Thanks!
    Mom to son with new straight spine 8/15/2013 T16, L16
    Pre op T65, L?
    diagnosed 2/21/13 T55, L42

  2. #2
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    8 Leaders in Scoliosis Surgery to Know - Article

    Mom to son with new straight spine 8/15/2013 T16, L16
    Pre op T65, L?
    diagnosed 2/21/13 T55, L42

  3. #3
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    yes, many of those names are well known on forum...
    i did not know there is a foundation for minimally invasive
    spine surgery...but i flew to LA a few years ago and had a consult
    with Dr Anand as he has been a top proponent for minimally invasive
    surgery for spine, including lumbar spine, which is newer....
    he does not take my insurance...so i paid cash for the consult, as i
    did with Dr Boachie...
    there are other names that are not on the list of top surgeons...
    in NYC, Lonner and Neuwirth are two more to know of...
    i think the resources list on forum is the best place to go for names,
    as you can look them up geographically....

    jess

  4. #4
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    What jumped out at me was that while these guys (Boachie, Anand, Errico) who are certainly all top notch, may treat children, they do not specialize in kids, meaning that the majority of their practice may not be AIS/JIS. Some treat both adults and children. I am not saying that this is necessarily a bad thing, but often if the bulk of one's practice is not children, they may not be interested in learning about things like tethering, for example. For me, personally, I would want to see someone whose main focus is children. (I would also at least look into tethering if it was my child.)

    Just my two cents......best of luck!
    Last edited by mariaf; 02-28-2013 at 09:16 AM.
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  5. #5
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    Birdwell in St. Louis and Mendelow in South Carolina references on this board?

    We are busy lining up 2&3 opinion doctor appointments for my son's surgery plans and found this story to be encouraging

    http://www.bridwell-spinal-deformity...-after-surgery

    I discovered Dr. Keith Birdwell from a friend of a friend (love facebook He was a patient of Dr. Birdwll, 8 yr PostOp male and is doing great. Granted he was fused in only the upper thoracic. This doctors website if very informative and from reading one case he did not even fuse a curved Lumbar, opting instead to give her more mobility!

    Thanks to Pook1, I am really working hard to make sure that initial recommendation to go to L3 is neccessary and not just "standard".

    http://www.bridwell-spinal-deformity...-after-surgery

    Just meet locally with a group of 5 moms all with Scolio teens close or about to go to surgery. It was so nice. And a Dr. Mendelow from South Carolina came up as a suggestion for another Dr. opinion....

    Oh, and Dr. Newton's nurse called to say my son is NOT a candidate for tethering given he is risser 4.
    Mom to son with new straight spine 8/15/2013 T16, L16
    Pre op T65, L?
    diagnosed 2/21/13 T55, L42

  6. #6
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    Quote Originally Posted by tampamom View Post
    Thanks to Pook1, I am really working hard to make sure that initial recommendation to go to L3 is necessary and not just "standard".
    Hey.

    I re-read your initial post and you said the fusion would go to L4, not L3. The reason why I became alarmed is because you said L4. As I understand Boachie's talk and what our surgeon said, that is very likely countdown territory. L3 is not so alarming but if you can stay above there that would be better. The higher the better when it comes to lumbar fusions unless going to pelvis right away... no countdown involved with that obviously.

    The other issue is understanding whether the lumbar is structural or compensatory and how the hypo-lordosis plays into all of this.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  7. #7
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    Yes, you are right Pook1, it is L4 that the doctor recommended Guess I am on overload a litte trying to keep this all straight. But I am going to have to hear that from more than one like you suggested. Here is a quote by Birdwell explaining how important it is to stop at L3, like you also pointed out.

    Dr. Bridwell and his team know that, if at all possible, it’s better to fuse to L3 rather than L4 (the third lumbar—waistline level between the rib cage and pelvis —vertebrae rather than the fourth). That’s because if there’s a fusion all the way to L4, the patient loses more mobility in the spine.

    Thanks for pointing all this out!
    Mom to son with new straight spine 8/15/2013 T16, L16
    Pre op T65, L?
    diagnosed 2/21/13 T55, L42

  8. #8
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    Quote Originally Posted by tampamom View Post
    Okay so in reading this forum I have heard a lot of Dr. names mentioned but wasnt keeping a comprehensive list.
    Lenke - St. Louis - I have heard Lenke only takes the worst cases. You would have to ask but I am guessing your son is not a worst case. Also the waiting time can approach a year because he is one of the best.

    Bentz - Randall Betz - world expect on stapling. Probably has seen more IIS/JIS cases than most others.

    Hey- Very clever surgeon in Raleigh, NC. He has my undying admiration for his sense on scoliosis (stitch in time saves nine, trying to save levels in the lumbar in young lids, inventing stuff, etc. etc. etc.)

    Cohen - Tampa - I have certainly heard his name around this sandbox.

    ? -Dr. in Philly - Samdani? Works with Betz.

    Top picks in New York and Southern CA. - Boachie, Lonner, Neuwirth as names bandied about here.

    San Diego - Peter Newton - pioneering tethering. I bet he has one million pubs. Same with Lenke.

    Many others.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  9. #9
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    Oregon
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    Hi,

    Dr Ashgar is in Miami, Florida and trained under Dr Betz at Shriner's in Philadelphia. I have never met him personally but correspond with many families under his care. He is reputed to be extremely skilled and is beloved by patients and parents alike. That's who I would look for if I lived in Florida.

    Here are several links: http://www.mch.com/medicalServices/f...?doctorID=1501

    http://www.scoliosis.org/forum/showt...John-Asghar-MD
    Last edited by leahdragonfly; 02-27-2013 at 09:11 PM.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  10. #10
    Join Date
    Apr 2012
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    Quote Originally Posted by leahdragonfly View Post
    Hi,

    Dr Ashgar is in Miami, Florida and trained under Dr Betz at Shriner's in Philadelphia. I have never met him personally but correspond with many families under his care. He is reputed to be extremely skilled and is beloved by patients and parents alike. That's who I would look for if I lived in Florida.

    Here are several links: http://www.mch.com/medicalServices/f...?doctorID=1501

    http://www.scoliosis.org/forum/showt...John-Asghar-MD

    Dr asghar is amazing! He's my surgeon. His goal is not to make his patients back straight, but to help them keep their flexibility as much as possible in order to have a normal life. He said if I went to a Shriner I would have been fused from T2-L3, but he fused me from T4-L1. Since he was trained under Dr. Betz, he will go to Shriners philidelphea to operate if patient has finacial issues or lives in the area. He also says that as long as he's alive he will take are of his patients, even if They were operated by him 30 years ago he would still see them (even of they're an adult) because only he knows what he did to them. He's a clever, smart, hilarious, caring surgeon over all.
    Last edited by Kat3573; 03-28-2013 at 12:01 PM.

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