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Dr. Hey - opinions of two patients on seeking treatment

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  • Dr. Hey - opinions of two patients on seeking treatment

    http://drlloydhey.blogspot.com/2013/...scoliosis.html

    When and why should you seriously consider encouraging your teenager or young adult to have their scoliosis fixed surgically? Two patients I saw this week have interesting stories that might help.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  • #2
    In the link for the 53 yr old river boat engineer, It doesn’t say what happened. Did he decide to not have fusion with his 94 degree curve?
    I can feel his pain.......if he only knew how I was saved. I wonder how he is doing?

    Maybe I was lucky to have my severe pain events? It’s what triggered my decision......

    It also says he treated a 96 year old....and she went back to work! Wow!

    Dr Hey is right on.....familiar stories....

    Ed
    49 yr old male, now 63, the new 64...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

    Comment


    • #3
      Originally posted by titaniumed View Post
      In the link for the 53 yr old river boat engineer, It doesn’t say what happened. Did he decide to not have fusion with his 94 degree curve?
      I can feel his pain.......if he only knew how I was saved. I wonder how he is doing?

      Maybe I was lucky to have my severe pain events? It’s what triggered my decision......

      It also says he treated a 96 year old....and she went back to work! Wow!

      Dr Hey is right on.....familiar stories....

      Ed
      I haven't emailed him for awhile... but last I heard he thought he'd try getting along without. You might remember him-- Myachingback (Chris). He did not care for Dr. Hey-- felt like he ripped him off and also wasn't straight with him about what the results would be. He liked doing things like wild hog hunting-- I've got a picture somewhere, which he was still able to do, and other outdoor activities. Both he and his wife Cathy were interesting when they were on here-- from the south. I think she stopped some of his activities because he fell out of his four wheeler a couple of times when going too fast... landing on his shoulder, etc. I've often wondered about him. Maybe I'll try emailing him to see. It just goes to show that not every surgeon is a good fit for everyone. There was another lady at the same time who had a problem also.

      Here's a link to one of the posts: http://www.scoliosis.org/forum/showt...8931#post58931
      71 and plugging along... but having some problems
      2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
      5/4/07 posterior fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
      Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

      Corrected to 15°
      CMT (type 2) DX in 2014, progressing
      10/2018 x-rays - spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

      Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

      Comment


      • #4
        I think for us, my daughter's pain was a blessing in disguise, even though it kills me to see her hurt. Monday was the first time she was depressed about it and didn't have the energy to go to school. I wasn't about to fight her on it. Who knows how long her curves would have progressed without us knowing if she hadn't had any pain associated with it. It's kind of scary to think about. Getting it fixed now, while she's young, is without a doubt in my mind, the only way to go. I'm pretty positive she feels the same.

        Comment


        • #5
          Yes, that does sound like a truly positive way to look at it. Best wishes for a wonderful outcome. I hope your daughter gets some relief from her pain soon. Also, I hope everyone doesn't think I was down on Dr. Hey. I just remembered who the steamboat engineer was and his story... And how people can visit the same doctor and come back with totally different views.
          71 and plugging along... but having some problems
          2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
          5/4/07 posterior fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
          Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

          Corrected to 15°
          CMT (type 2) DX in 2014, progressing
          10/2018 x-rays - spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

          Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

          Comment


          • #6
            Suzie Bee

            You have a good memory! I had just started posting and was still in my recovery.......4 months post, wasn’t reading all that much at that point, you know what I’m saying......

            I have permission to lift 100# but Chris’s work would be too much for me....Lifting 55 gallon drums like he mentions is dangerous without scoliosis.

            You know when you have a big curve like his, expecting a perfect outcome is asking too much. Predicting an outcome is difficult....you cannot promise someone to return to the kind of work that he is used to.....its not going to happen with a good surgeon.

            I think there was a misunderstanding there......I had a few difficult times with my surgeon....but realized that he was right and I needed to understand a few things......

            It would be great if Chris posted again. I sure hope he is ok.....

            Ed
            49 yr old male, now 63, the new 64...
            Pre surgery curves T70,L70
            ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
            Dr Brett Menmuir St Marys Hospital Reno,Nevada

            Bending and twisting pics after full fusion
            http://www.scoliosis.org/forum/showt...on.&highlight=

            My x-rays
            http://www.scoliosis.org/forum/attac...2&d=1228779214

            http://www.scoliosis.org/forum/attac...3&d=1228779258

            Comment


            • #7
              I am in a similar situation to the older woman, although not in the athletic shape that she is in and a tad bit older. Having surgery is quite a trade off. If surgery goes well and 1 year later you have minimal pain, then you have made a good decision. If not, not such a good decision. Susan
              Adult Onset Degen Scoliosis @65, 25* T & 36* L w/ 11.2 cm coronal balance; T kyphosis 90*; Sev disc degen T & L stenosis

              2013: T3- S1 Fusion w/ ALIF L4-S1/XLIF L2-4, PSF T4-S1 2 surgeries
              2014: Hernia @ ALIF repaired; Emergency screw removal SCI T4,5 sec to PJK
              2015: Rev Broken Bil T & L rods and no fusion: 2 revision surgeries; hardware P. Acnes infection
              2016: Ant/Lat Lumbar diskectomy w/ 4 cages + BMP + harvested bone
              2018: Removal L4,5 screw
              2021: Removal T1 screw & rod

              Comment

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