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Thread: Daughter diagnosed with scoliosis - need your advice!

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  1. #1
    Join Date
    Jul 2006
    Location
    New York
    Posts
    70

    Daughter diagnosed with scoliosis - need your advice!

    Hello,

    In 2008, both of my daughters have been diagnosed with idiopathic scoliosis and both of their curves were 14-15 degrees. I suffer with scoliosis since I was 12which is what prompted me to check their backs and we had the first set of xrays in 2008 and were told to wait and watch. In December of 2012, I took my daughters, who are now 8 and 10, for a follow-up and were shocked to learn that my 8 year old's curve progressed significantly. My older daughters curve remains the same at 15 degrees. My younger daughter's curves progressed from 14 degrees in 2008 to T2-T8=25 degrees & T9-L3=30.2 degrees in 2012.

    Having scoliosis myself and having to deal with it all my life, I was really saddened to find out that my daughter's scoliosis had significantly progressed and that she will have deal with scoliosis the rest of her life and wear a back brace until she is done growing. It was just so unexpected because my curves did not progress until I gave birth in my early 20s and I sort of expected the same outcome for my daughters but I was completely wrong. It took me a few days to digest the information and overcome my fear and anxiety about her having to wear a brace. I dont think my daughter fully understands the concept of having to wear a back brace and I really feel bad for her having to deal with the expirience but I do realize that there is nothing I can do about the fact that she now has a scoliosis and I need to find the right brace and treatment for her. I have been trying to find out more about back braces and did not realize that there are so many different types out there like Cheneau, spinecor, boston, etc...The prescription that the doctor gave states a TLSO for juvenile scoliosis. Can anyone give me any sort of direction as to where to start? We were given a business card of the orthotic doctor to see but I would like to be more prepared for the visit so I can ask proper questions. Any advice/tips would be greatly appreciated! Can anyone recommend a good Orthotist doctor in the New York area?

    Thank you.
    Last edited by mariya; 01-03-2013 at 09:47 AM.
    30 yrs, mom to two girls ages 9 and 7
    8/9/04 - 18* thoracic and 42* lumbar
    3/7/06 - 22* thoracic and 45* lumbar (38*kyphosis)
    4/8/08 - 38* thoracic and 50-52* lumbar (54* kyphosis)

    2007 - Scheduled surgery but cancelled due to no major health issues at the time.
    2011 - Back pain, spasms, sciatica, difficulty doing any physical work/activities w/o following back pain and spasms. Revisiting surgery decision and soon to schedule a doctors appointment to determine the progression since 2008.

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