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Thread: New here

  1. #16
    Join Date
    Oct 2011
    Location
    East Central FL
    Posts
    193
    Quote Originally Posted by ChrissysMom View Post
    Thank you all for your responses and for even taking the time to look at the X-ray. I am overwhelmed by your kindness. It's all been moving so quickly, and people keep implying or straight out telling me that I am rushing into surgery. To add to the drama, my 8yo is in this.minute having her x-ray because the dr. Noticed the same hump on her.If surgery is imminent for Chridten, I'd rather get it done now, while its nearly summer and shes still young.
    You are doing what you need to do - researching & getting your head around the whole thing. Unfortunately you'll probably have friends & family try to dissuade you on surgery and downplay Chrissy's situation. Many of us have been through that. Back surgery has always been one of the things to avoid in life - but scoliosis surgery is a whole different surgery, w a surgeon who specializes in scoliosis. Good luck Thurs - & think about checking out an additional scoli surg for a second opinion, even tho you still haven't seen the first.
    Last edited by LSKOCH5; 04-16-2012 at 09:17 PM.
    Mom of 14yo son diagnosed Oct 2011
    Surgery 1/3/12 w Dr. Geof Cronen,
    Tampa General Hospital T3 to L1
    Jacob's pre surg curves: T58 & L31 12/28/11
    photos & xrays in "First-Time Surgery" thread "Before & After"

  2. #17
    Join Date
    Apr 2012
    Posts
    13
    Her Xray was evaluated by an orthopedic surgeon, who gave his impressions and suggested surgery, and next Thursday we see the Orthopedic surgeon who actually specializes in spines. I don't know if both curves are structural yet, as we have only had the standing spine study. I was given the Xrays and the impressions to take with me for my second opinion. It reads: "Standing AP imaging demonstrates a prominent rotatory S-shaped thoracolumbar scoliosis. There is a 54-degree right convexity curvature centered at T9. There is a 50-degree left convexity curvature centered at L2. On AP imaging, the vertebral bodies and posterior elements otherwise are unremarkable."

    Quote Originally Posted by LSKOCH5 View Post
    You are doing what you need to do - researching & getting your head around the whole thing. Unfortunately you'll probably have friends & family try to dissuade you on surgery and downplay Chrissy's situation. Many of us have been through that. Back surgery has always been one of the things to avoid in life - but scoliosis surgery is a whole different surgery, w a surgeon who specializes in scoliosis. Have you consulted w any of them yet, or are you still dealing primarily w the Pediatrician?

  3. #18
    Join Date
    Apr 2012
    Posts
    13
    Oddly enough, hearing that she isn't even really borderline on surgery is probably easier than if I had to take a gamble and decide myself.
    DD #2 fused T-2 through L-5 07-03-12
    DD #3 9y/o progressing. 19 degrees as of 01/13

  4. #19
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,308
    Quote Originally Posted by ChrissysMom View Post
    Oddly enough, hearing that she isn't even really borderline on surgery is probably easier than if I had to take a gamble and decide myself.
    I am a lay person but I have never seen anyone who knows anything refer to a 54/50 as borderline for surgery in a healthy growing kid. For some surgeons who lower the surgery trigger angle, it might even be a case to push ahead. Who knows.

    We had no choice about surgery in either of my daughter's cases. There is cover there when you have no choice. It is still mind blowing but bad things happen to good people and all you can do is optimize within the hand dealt.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  5. #20
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,158
    Hi there,

    I just wanted to welcome you to the group, and say I'm so sorry to hear of your dd's scoliosis. I know how much of a shock it comes as. But as the others have said, she and you will get through this, and these kids and teens bounce back so quickly from surgery.

    My 8 y/o daughter had surgery (not fusion) for scoliosis 2 years ago, and now my 7 y/o son was just diagnosed lasr week. I am so glad to hear your other girls' backs were fine--what a relief! I would second the advice you got about seeking a second surgical opinion from a pediatric spine or scoliosis specialist, just so you know all your options. You want someone who does lots of fusions on teenagers for the best outcome. You can search for the appropriate doctor in your area by checking out the Scoliosis Research Society at www.srs.org then "find a professional" and search by geographic area. You can further select the category "adolescent."

    Best of luck, and please feel free to ask all your questions here. There are many parents who have gone through fusion surgery with their kids and can give you plenty of great advice.

    p.s. good luck in nursing school also. I am a nurse and I love it.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

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