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Thread: Newspaper article

  1. #1
    Join Date
    Aug 2009
    Location
    York, PA
    Posts
    332

    Newspaper article

    So I was home sick with the flu several weeks ago and saw a request in the local paper for people willing to share their stories about "taking a leap of faith" to coincide with Leap Year. I sent a brief note about my surgery and it turned into a feature article in our local paper. I am not someone who likes to have attention focused on themselves, but I thought my story might be helpful to others and the young reporter did a wonderful job with it. If you copy and paste the link below into your browser, you should be able to read my story.

    http://www.ydr.com/living/ci_20055347


    Anne in PA
    Age 58
    Diagnosed at age 14, untreated, no problem until age 50
    T4 to sacrum fusion
    63 thoracic now 35, 92 lumbar now 53
    Dr. Baron Lonner, 2/2/10
    Am pain-free, balanced, happy & an inch taller !

  2. #2
    Join Date
    May 2009
    Posts
    3,729
    thanks, Anne
    what a great article....

    jess

  3. #3
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,158
    Hi Anne,

    thanks for sharing that inspiring article! It was very well done. I am sure it will help other scoli's out there who read it.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  4. #4
    Join Date
    Jan 2009
    Location
    Ames, Iowa
    Posts
    1,250
    Anne--
    What a great article! I guess it certainly is a leap of faith for us. Janet
    Janet

    61 years old--57 for surgery

    Diagnosed in 1965 at age of 13--no brace
    Thoracic Curve: 96 degrees to 35 degrees
    Lumbar Curve: 63 degrees to 5 degrees
    Surgery with Dr. Lenke in St. Louis--March 30, 2009
    T-2 to Pelvis, and hopefully all posterior procedure.

    All was posterior along with 2 cages and 6 osteotomies.

  5. #5
    Join Date
    May 2008
    Location
    Central NJ
    Posts
    1,956
    that is so fantastic Anne! And btw, you look FABULOUS!

    I get what you mean about taking that leap and putting all faith in your surgeon. If I ddin't feel that way I never could have gone thru with the surgery.
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees

  6. #6
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,262
    What a great article! You look great Anne
    Melissa

    Fused from C2 - sacrum 7/2011

    December 8, 2014 - Another Broken Rod Surgery

  7. #7
    Join Date
    May 2010
    Location
    Indianapolis area
    Posts
    970
    Thanks for sharing this. I will show it to my family/friends who don't understand this whole thing. It brings it down to the "layman's level." Also, tell the reporter she did a nice job. I once was a reporter for a community newspaper, and I can tell you that not everyone does as well as she did.

    Best,
    Evelyn
    age 48
    80* thoracolumbar; 40* thoracic
    Reduced to ~16* thoracolumbar; ~0* thoracic
    Surgery 3/14/12 with Dr. Lenke in St. Louis, T4 to S1 with pelvic fixation
    Broken rods 12/1/19; scheduled for revision fusion L1-L3-4 with Dr. Lenke 2/4/2020
    Not "confused" anymore, but don't know how to change my username.

  8. #8
    Join Date
    Jan 2006
    Location
    near Philadelphia
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    1,260
    Yes, thanks for posting this -- it was great. It's nice to see you!
    Chris
    A/P fusion on June 19, 2007 at age 52; T10-L5
    Pre-op thoracolumbar curve: 70 degrees
    Post-op curve: 12 degrees
    Dr. Boachie-adjei, HSS, New York

  9. #9
    Join Date
    May 2008
    Location
    long island, ny
    Posts
    233
    The article was great not only for those considering surgery, but also as Evelyn said, it explained everything so clearly. I show the article to my co-worker, she read it with such understanding and interest. Thanks again, and you do look great.
    Dolores A
    June 4, 2009 Anterior L3 - S1
    June 8, 2009 Posterior T4 - Pelvis
    Mark Agulnick, MD FAAOS
    NY Spine & Scoliosis Center

  10. #10
    Join Date
    Nov 2011
    Posts
    42
    Terrific article. It really explains the situation very well. I, too, couldn't stand or walk very far. It is very limiting. There is a sense of freedom when you can walk and stand without pain. Also, you don't have to make arrangements with so many aspects of your life.

    Thanks for sharing.
    Irene
    1996 x-rays (none read recently) 50 degrees thoracic, 40 degrees lumbar
    Never braced, found out I had scoliosis at age 28
    At time of surgery, multi-level disc spondylotic degeneration,
    advanced lumbar degeneration, stenosis
    65 years young and very active but no lengthy walks or standing without pain
    Now, 67. walking and standing as much as I want
    Surgery Dec. 7, 2010
    T10-S1 posterior
    Dr. Rand
    New England Baptist Hospital, Boston,
    http://s1224.photobucket.com/albums/ee369/itr1/

  11. #11
    Join Date
    Apr 2010
    Location
    Waterloo, IL
    Posts
    1,712
    Anne,
    I truly enjoyed reading that article and learning more about you. After reading the article, I just now told my husband what a great group of people are members of this forum. Music is an important part of my life, as well. Thank you for sharing the nice article. (I always had to have one leg of my pants shortened due to one hip being higher than the other, too)
    Karen

    Surgery-Jan. 5, 2011-Dr. Lenke
    Fusion T-4-sacrum-2 cages/5 osteotomies
    70 degree thoracolumbar corrected to 25
    Rib Hump-GONE!
    Age-60 at the time of surgery
    Now 66
    Avid Golfer & Tap Dancer
    Retired Kdgn. Teacher

    See photobucket link for:
    Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
    Before and After Picture of back 1/7/11
    tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
    http://s1119.photobucket.com/albums/k630/pottoff2/

  12. #12
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    Great article Anne! Thanks for sharing it with us.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  13. #13
    Join Date
    May 2008
    Location
    reno,nevada
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    4,390
    Anne

    Very nice. Brings back memories.

    Back in the 70’s when we were dx’d, we thought we were the only one’s with this “curvy spine” and you were just over in the next state from me at that time. In fact, there were many of us going through the same thing. I also was extremely scared of surgery at that time.

    Its great that you offered to do the article, it brings awareness. Just about every person you talk to “knows” someone with scoliosis.

    Ed
    49 yr old male, now 62, the new 63...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  14. #14
    Join Date
    Jan 2008
    Location
    NC
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    Quote Originally Posted by dolores a View Post
    The article was great not only for those considering surgery, but also as Evelyn said, it explained everything so clearly. I show the article to my co-worker, she read it with such understanding and interest. Thanks again, and you do look great.
    I am always amazed at how random lay people who would never in a million years consider offering their opinion to, say, a particle physicist on his research will nevertheless feel completely competent to advise folks against spine surgery.

    Being well-meaning while being abjectly ignorant is not helpful and usually makes things harder for the patient. Articles like this will help with that problem.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  15. #15
    Join Date
    Mar 2010
    Posts
    2,748
    Quote Originally Posted by Pooka1 View Post
    I am always amazed at how random lay people who would never in a million years consider offering their opinion to, say, a particle physicist on his research will nevertheless feel completely competent to advise folks against spine surgery.

    Being well-meaning while being abjectly ignorant is not helpful and usually makes things harder for the patient. Articles like this will help with that problem.
    I don't recall reading anywhere than anyone was advising against spine surgery. I guess I don't follow what you mean.

    Is spine surgery a difficult decision? YES, for many it is. It is a committment made that cannot be undone. I think that was the reason for calling it a "leap of faith", if this is indeed what you are referring to.

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