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  • #16
    LindaRacine- Ok thank you, I was able to open it, this is amazing.

    I wonder too if it could be done without rods, shot my surgeon Doctor an email asking if it could be done without the rods, will see what he says.
    29 years old Female
    45 Degrees Lumbar Scoliosis T12-L4

    Comment


    • #17
      Hi YB,

      I will try to answer your questions. Our situations are quite different because I had posterior fusion from T8-sacrum 15 months ago, so yes, I do have rods and screws in the back. Two of the lumber levels failed to fuse and so my rods broke in January. I had the XLIF's done along with a posterior revision to repair the broken rods and destabilize and fuse the area.

      It sounds like your surgeon is proposing a very limited, 3 level fusion with XLIF then posterior rods and screws. I am sure you would notice losing some mobility, but not nearly so much as if you had a longer fusion such as what I had. I lost a lot of mobility, although it's not the end of the world. I can do most everything I could do before, just some things I have to do in different ways. An example of something difficult is it is now impossible to stoop and look or reach into a low cabinet. Instead I have to kneel on the floor.

      Since my surgery was a revision, and some of the hardware was replaced, it is hard to compare my surgery to what you will experience. My pain was well-controlled after surgery. I am still taking a low dose of oxycodone 3 times a day for pain. I will probably quit that within a week and maybe switch to something milder. I still have a very sore muscle along the left groin/upper thigh area that feels like sort of a very sore cramp, which is the result of how they access the spine during the XLIF. My surgeon told me I might get a numb patch on my thigh, but fortunately I didn't. This groin pain will hopefully go away, and it is not debilitating.

      My XLIF incision along my left side is about 3" long, and it is healing nicely. I am now 2 weeks post-op, and I still have a lot of abdominal soreness and some belly swelling. I was able to get up to a chair the day after surgery, and I currently take 3 walks a day outside for about 10 minutes. I am also able to move around the house freely but I can't do any housework or anything like that yet. I can fix simple meals for myself and my kids and take care of my pets. Other than that I am still limited in my activities. I watch a lot of TV right now. I am not up to driving or shopping or cleaning just yet.

      I hope this answers some of your questions, and please ask anything else you would like to know.

      Good luck,
      Last edited by leahdragonfly; 02-20-2012, 10:41 AM.
      Gayle, age 50
      Oct 2010 fusion T8-sacrum w/ pelvic fixation
      Feb 2012 lumbar revision for broken rods @ L2-3-4
      Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


      mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
      2010 VBS Dr Luhmann Shriners St Louis
      2017 curves stable/skeletely mature

      also mom of Torrey, 12 y/o son, 16* T, stable

      Comment


      • #18
        Thank you leahdragonfly for all the info. 2 weeks post operation sounds like you are healing very well, this is so uplifting to hear. Do you feel big difference in the recovery you had 15 months ago from the traditional surgery and now with the Xlif? Since you had both you probably can give the best impression of the all deal.. please do. Will you recommend Xlif over traditional?

        My Surgeon got back with me about my question if Xlif can be done without rods, he said: "U can do the xlif w/o the rod, and possibly instrument from the same side i put the Graft in. If it doesn't heal, you may need to put rods in."

        Very interesting.. I am going to ask what he recommends to do if both ways are possible and how being without rods will affect the mobility in a positive way, if there is any difference..
        29 years old Female
        45 Degrees Lumbar Scoliosis T12-L4

        Comment


        • #19
          Originally posted by YB1125 View Post
          Thank you leahdragonfly for all the info. 2 weeks post operation sounds like you are healing very well, this is so uplifting to hear. Do you feel big difference in the recovery you had 15 months ago from the traditional surgery and now with the Xlif? Since you had both you probably can give the best impression of the all deal.. please do. Will you recommend Xlif over traditional?

          My Surgeon got back with me about my question if Xlif can be done without rods, he said: "U can do the xlif w/o the rod, and possibly instrument from the same side i put the Graft in. If it doesn't heal, you may need to put rods in."

          Very interesting.. I am going to ask what he recommends to do if both ways are possible and how being without rods will affect the mobility in a positive way, if there is any difference..
          XLIF appears to involve fusion as far as I can tell. If so, whether or not you have rods also should have no bearing whatsoever on mobility. It would be the same in both cases if the same levels are fused. Linda?
          Sharon, mother of identical twin girls with scoliosis

          No island of sanity.

          Question: What do you call alternative medicine that works?
          Answer: Medicine


          "We are all African."

          Comment


          • #20
            Sharon, you are correct that the XLIF involves fusions (that's what the "f" stands for), so I don't see how an XLIF would not result in some loss of mobility. YB's proposed levels are pretty limited though, so I think she will not notice such a large loss of mobility as one does with a long fusion.

            YB, yes, this recovery is much easier than my original surgery, which was a posterior open fusion of 11 levels along with a TLIF at L4. IF the XLIF can address all your needs and your surgeon thinks it will work, it might be worth a try. I think if he recommends the posterior rods and screws I would go with that recommendation, rather than just having the XLIF's and waiting to see if it will heal correctly or not. Better to get it all done securely on the first try if possible, in my opinion.

            I would strongly suggest a second opinion before moving ahead, from a spine surgeon that specializes in scoliosis. You want to know all the issues before you proceed. Some surgeons will propose smaller surgeries knowing full well the pt will be back in the OR in a few years for a fusion extension. I had a second opinion like that. It was a little hard to walk away from at first, it sounded so quick and easy compared to what my surgeon was proposing, but I knew that my surgeon was right and I did not wish to undergo additional surgeries at a later date. Unfortunately I ended up with broken rods and so now here I am, recovering from a second surgery.....oh well, what can you do!
            Gayle, age 50
            Oct 2010 fusion T8-sacrum w/ pelvic fixation
            Feb 2012 lumbar revision for broken rods @ L2-3-4
            Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


            mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
            2010 VBS Dr Luhmann Shriners St Louis
            2017 curves stable/skeletely mature

            also mom of Torrey, 12 y/o son, 16* T, stable

            Comment


            • #21
              Yes, fusion is fusion, and there should be no difference in flexibility. I'm going to try to find out how often someone with scoliosis might get away with only the XLIF. I think it's pretty rare.

              --Linda
              Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
              ---------------------------------------------------------------------------------------------------------------------------------------------------
              Surgery 2/10/93 A/P fusion T4-L3
              Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

              Comment


              • #22
                Originally posted by jrnyc View Post
                how can that be enough for patients with large curves....?

                jess
                I just talked to Dr. Deviren. He said that a very small subset of patients can get away without requiring PSF. They would be patients with relatively small curves, no osteoporosis, and hypertrophic facets.
                Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
                ---------------------------------------------------------------------------------------------------------------------------------------------------
                Surgery 2/10/93 A/P fusion T4-L3
                Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

                Comment


                • #23
                  Originally posted by LindaRacine View Post
                  I just talked to Dr. Deviren. He said that a very small subset of patients can get away without requiring PSF. They would be patients with relatively small curves, no osteoporosis, and hypertrophic facets.
                  Yes but there is no differnce in mobility between XLIF alone versus XLIF+PSF and there presumably is a higher risk of pseudoarthrosis without PSF so I don't get why someone would even want to forego PSF with XLIF.
                  Sharon, mother of identical twin girls with scoliosis

                  No island of sanity.

                  Question: What do you call alternative medicine that works?
                  Answer: Medicine


                  "We are all African."

                  Comment


                  • #24
                    Originally posted by Pooka1 View Post
                    Yes but there is no differnce in mobility between XLIF alone versus XLIF+PSF and there presumably is a higher risk of pseudoarthrosis without PSF so I don't get why someone would even want to forego PSF with XLIF.
                    One would assume because it would be a lot less invasive. If there was a reasonable chance that I could get away with a minimally invasive approach only, and there was enough evidence that the approach worked, I might be tempted to give it a shot. One could always go in for a second stage PSF later.
                    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
                    ---------------------------------------------------------------------------------------------------------------------------------------------------
                    Surgery 2/10/93 A/P fusion T4-L3
                    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

                    Comment


                    • #25
                      Funny how an “anterior release” aids in correction, but many have staged A/P’s and are pretty much mobile during that time between surgeries. I was out between my surgeries, so I don’t know what that feels like.

                      The anterior releases somewhat, but it seems that it is only a small amount or percentage. My lumbar correction with my anterior preceding was about 50%. Just because they enter the front side, and remove the disc doesn’t mean that mobility is completely released at the level. This would be a good question for a surgeon. How much of a release does one achieve with a preceding anterior?

                      Since this anterior “release” is a lower percentage, it seems that it should be fine with 3 levels and smaller curves.

                      The XLIF accesses the anterior or front part of the “vertebral body”. The advancements with minimally invasive procedures sure makes sense. My gall bladder removal was done that way, 4 portals and I didn’t even take any meds after....Hard to believe but true.

                      Ed
                      49 yr old male, now 63, the new 64...
                      Pre surgery curves T70,L70
                      ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                      Dr Brett Menmuir St Marys Hospital Reno,Nevada

                      Bending and twisting pics after full fusion
                      http://www.scoliosis.org/forum/showt...on.&highlight=

                      My x-rays
                      http://www.scoliosis.org/forum/attac...2&d=1228779214

                      http://www.scoliosis.org/forum/attac...3&d=1228779258

                      Comment


                      • #26
                        Originally posted by titaniumed View Post
                        Funny how an “anterior release” aids in correction, but many have staged A/P’s and are pretty much mobile during that time between surgeries. I was out between my surgeries, so I don’t know what that feels like.

                        The anterior releases somewhat, but it seems that it is only a small amount or percentage. My lumbar correction with my anterior preceding was about 50%. Just because they enter the front side, and remove the disc doesn’t mean that mobility is completely released at the level. This would be a good question for a surgeon. How much of a release does one achieve with a preceding anterior?

                        Since this anterior “release” is a lower percentage, it seems that it should be fine with 3 levels and smaller curves.

                        The XLIF accesses the anterior or front part of the “vertebral body”. The advancements with minimally invasive procedures sure makes sense. My gall bladder removal was done that way, 4 portals and I didn’t even take any meds after....Hard to believe but true.

                        Ed
                        Hi Ed...

                        Anterior releases are actually different than interbody fusions. Anterior release specifies just the discectomy. Interbody fusion is both a discectomy and a fusion.

                        --Linda
                        Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
                        ---------------------------------------------------------------------------------------------------------------------------------------------------
                        Surgery 2/10/93 A/P fusion T4-L3
                        Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

                        Comment

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