
Originally Posted by
AMom
Treatment: PT using MedX per Mooney & later, McIntire research
CURRENT QUESTIONS
i) Is anyone else trying the core torso rotation? I would like to compare notes (positive & negative) and exchange research articles on related subjects.
ii) Will altering the seat height ½" to ¾" above or below current seat height distribute the intensity of the workout? (3 workouts per week = a possibility of up to 3 seat heights) I ask this question because her strength is not equal at the above referenced seat height variations. TRYING THIS NOW.
iii) Will the use of a WBV (whole body vibration) platform during the stretches and exercises positively impact bone density? (Amplitude range of 2-3 and Hz range of 20-35) I ask this question because of possible future concerns regarding bone density.
EQUIPMENT
WE used the MedX Core Torso machine and VARC per Mooney's initial research. We purchased both units, but then had to wait several years for our daughter to "grow into" the MedX at age eleven. The MedX unit will fit up to a 7'11" man--it isn't really made for pre-teen girls. We had the back, hip, & seat pads remade thicker and spacers added on the foot rests so the normal lumbar curve remained correct (MedX was really nice and even added a counter balance to it so she could start her workout w/out adding any weight –not adding weight does NOT equal 0lbs.) However, the length of her femur, or lack thereof, is what kept her from using the equipment sooner. We were unable to use the leg restraint system until her legs grew longer without causing injury to her knees.
I don't know anything about the other versions of rotation units being discussed, but from what I’ve read, it is important to isolate the targeted muscle groups. Doing the MedX motion without neutralizing the muscles from your hips down will end up working the muscles from the hips down rather than the ones you want to strengthen in your back. However, this is just my understanding from what I’ve read so you would definitely want to check this with someone more knowledgeable than me. (The workout is supposed to be "to fatigue," so it should not be painful.)
PT
Note: Most research states the test subjects completed the exercises 2x per week until reaching a plateau and then reduced the workout to 1x per week. Initial research suggests these PT benefits may wear off in 8-12 months if the workout is stopped altogether.
My daughter works out 3x per week as follows:
A) 10-15 minute walk to warm up
B) 20 reps on the VARC (see #1 DETAILS below to see how she progresses)
C) 20 reps Left & Right on the MedX (see #2 DETAILS below to see how she progresses)
CC) Added 2nd seat height (higher), alternating between the two every other workout
CCC) Added 10 eccentric reps Left & Right on MedX
CCCC) Added final seat height (lower), alternating between the three every workout
D) stretches (to meet her particular needs)
E) exercises (to meet her particular needs)
F) Spirometer reading (best of 3 readings is recorded)
G) Large ice pack for back 15 minutes (still no back pain, but will reduce to 2x per week if it occurs)
CURVE & PLAN
Based on what little research I can find on the subject, we do not expect the PT to reduce her curvature; rather, we are hoping it will "hold" her curve. She has a right thoracolumbar curve that has made some frightening leaps--the last one BEFORE she was able to fit into the machine was an increase of 12 degrees (thoracic) & 17 degrees (lumbar) between x-rays. Her ortho said the PT could not do any good, but agreed that at least she would be in better health for the surgery he was anticipating. We began PT in February 2011. It is much too soon to say if it will hold the curve for 5 years, (until her 3rd x-ray, we can’t even consider we may be seeing a trend) but her initial readings show she is holding steady during a substantial growth spurt.
33T & 27L on 02-10-11
32T & 23L on 06-16-11
34T & 20L on 10-10-11
__T & __L on 04-16-12
She has grown SO MUCH (gained 20lbs and several inches) in the last year!
The ortho removed the prescription for a brace (she never wore one) and the last visit was the first time he didn't bring up surgery within "the near future." Her forward head thrust is gone, her spirometer readings are now above normal, she is less tired, and because her core strength is improved her posture is better & she is more comfortable while sitting, standing, & walking.
Our plan is to continue her PT until she is 16ish/ bone maturation occurs. (When the time gets closer, I'll ask the ortho to let me know when she reaches a Risser level of 5.) Then, we will drop to 2x per week for another year—if the x-ray doesn’t show any deterioration, then we will drop to 1x per week until she goes to college. I don't know what will happen in the long run, but she likes that we made our plan together and that we can make changes based on what we see on the x-rays. In the meantime, her quality of life is great.
DETAILS
(This is NOT a suggestion that anyone else should try this workout, I am just telling you what she is doing. Many workouts can be dangerous if a child has anything else going on, so I always check with her ortho to R/O the possibilities of injuries before starting any new exercises!)
PROGRESSION OVER 11 MONTHS
BackStrong VARC (Variable Angle Roman Chair)
1) One set of 15-25 to fatigue on BackStrong (20 in a perfect world)
---Turn feet "in" (difficult to maintain)
---Back arch up, NOT flat back up (she loves to swim & calls it a mermaid dip)
---We started at 75 degrees, hands behind back & continued this position until able to do 20
---We stayed at 75°, hands cross sternum & continued this position until able to do 20
---We stayed at 75°, genie arm cross & continued this position until able to do 20
---We stayed at 75°, hands behind head & continued this position until able to do 20
Then, we moved to 60° and repeated the process
Then, we moved to 45° and are currently at hands cross sternum
30°—15°—0° to go!
MedX (Core Torso Rotation)--The BOTTOM vs. the overhead unit has updated restraints that are easier to use & will also fit a smaller child—otherwise, they are the same unit. Even modified, she remains too small to fit into the older, overhead unit. (unit fits 4’10” to 7’11” male, she is 4’7”)
2) One set of 15-25 each direction (we alternate the order Left-Right/ Right-Left each workout) to fatigue (20 in a perfect world)
Starting weight: 1/3 of body weight OR lift maximum weight and use 50 percent of that amount
ROM (range of motion) setting dependent on ability (currently at #3)
Doctor suggested she increase weight in increments of 5% of current weight
When she gets to 20 reps per side, then we are supposed to increase weight--not repetitions
She is currently at 46lbs.
Studies discuss exercising 2x per week (research suggests that for this group of muscles 2x - 3x per week provides maximum benefit)
Ongoing workout through puberty (No long term study, but there are some suggestions to be found in various articles that PT needs to be continued until a Risser level of 5 is reached/ bone maturation.
There are also quite a few comments by individuals with AIS whose curve continued to progress (usually at a slower rate than seen during adolescence) after maturation occurred, so even if PT holds the curve, the “hold” may be temporary even after maturation is achieved. I am hopeful there will not be a harsh rebound at that point.
When she plateaus we are considering the following for the MedX:
• It has been suggested by several folks to start changing the routine a lot;
• Reduce the weight to 30-50% max and increase the reps dramatically, so instead of 10 reps, do 30 reps/set;
• Go until exhaustion, keeping the weight around 20-30% of 1RM;
• She may add a 2-4 second count hold during full extension;
• Can add an additional set of 20x per side;
• Can change the ROM setting;
• Add minor seat height changes;
• Increase the weight and change angle of arms to 90°;
• Reduce the frequency of the workout to 2x per week; and/ or
• Consider asymmetric eccentric workout.
The only idea we have for the VARC when she plateaus is to add a 2 second hold during full extension.
The workout she is doing is similar, but not the same, as the Mooney study. (20x BackStrong & 20x MedX portions are the same) Why did I choose one protocol over the other? The answer is simple; I was able to access some of the professionals who worked on the Mooney study.
The McIntire protocol is different. They began their Warm up with a specified walk & workout on the MedX, move to Preparation/ Training on MedX, and end with a Burn-out on MedX.
I don't know if this is written clearly. I am sure you see I do not have a background in biology or science. If you are trying something similar, please consider sharing your workout and results. I would love to be able to compare notes and exchange research articles on related subjects.
Thanks!
A Mom