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Thread: Long lasting nerve problems?

  1. #1
    Join Date
    Jun 2011
    Location
    Indiana
    Posts
    68

    Long lasting nerve problems?

    I know there's another thread about nerve pain, but I'm pretty sure everyone who has responded is only a few months post-op. I'm almost 2 years (in Nov.) post-op, and whenever I use my arms a bit, I get pain in my upper back from between my shoulder blades to the base of my neck.

    Usually, I would just live with it and not even ask, but it causes pain when I play the piano, cello, and saxophone-- which I play several hours a day this semester. Just wondering if anyone else experienced it for this long and if it goes away. Any thoughts would be appreciated.
    Katie

    My blog: http://scoliosis-braceyourself.blogspot.com/
    My video: http://www.youtube.com/watch?v=8NG9hMohsU0

    5 Boston back braces
    Spinal fusion- Nov. 17, 2009, senior year of high school
    52 and 57 degrees pre-surgery, 22 and 20 degrees post-surgery
    Dr. Kim Hammerberg, Shriners Children's Hospital, Chicago
    Back into volleyball and music as a senior in college!

  2. #2
    Join Date
    May 2008
    Posts
    169
    Katie, dont know if this going to help. I have nerve problems around the top of my rod and the pain is around the middle of my shoulder blades. This has not been like this since the operation just the last 14 years. But please, please do not think you are going to be the same, we are all different. Please don,t take this to heart I only answered as you seemed to really want to hear from people who were a lot further along after their operation. I can remember after my operation that it took quite a long time for the nerves to actually settle down.


    Lorraine
    Operated on in 1966, harrington rods inserted from T4 to L3, here in Australia. Fusion of the said vertebrae as well. Problems for the last 14 years with pain.
    Something I feel deeply,"Life is like money,you can spend it anyway you wish, but can only spend it once.

  3. #3
    Join Date
    May 2008
    Location
    Central NJ
    Posts
    1,956
    I'm sorry that you are still having pain.

    Are you sure that this is nerve pain and not muscular? Have you discussed this with your surgeon?
    __________________________________________
    Debbe - 50 yrs old

    Milwalkee Brace 1976 - 79
    Told by Dr. my curve would never progress

    Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
    Pre-Surgury Thorasic: 66 degrees
    Pre-Surgery Lumbar: 66 degrees

    Post-Surgery Thorasic: 34 degrees
    Post-Surgery Lumbar: 22 degrees

  4. #4
    Join Date
    May 2008
    Posts
    169
    My surgeon has retired, and I have been to see a number a specialists. Yes, This particular pain in that spot is nerve pain you can sort of feel that it is as well. But as I have had the rods in for 45 years I am not complaining too loud,lol. Also for decades I had no pain at all and have led a perfectly normal life. I have been a member of this forum for a long time under the name of macky but then I forgot my user name and pass word so joined again. I come on here every now and again as I think it is a wonderful place for us all to talk and have a bit of a groan, also some great info. Thankyou debbei for your interest.


    Lorraine
    Operated on in 1966, harrington rods inserted from T4 to L3, here in Australia. Fusion of the said vertebrae as well. Problems for the last 14 years with pain.
    Something I feel deeply,"Life is like money,you can spend it anyway you wish, but can only spend it once.

  5. #5
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    Hi Lorraine, good to see you here. I have to say, after 45 years, your doctor did a good job on you all those years ago. He must have been a genius in his field. I wonder if there are any others who have 45 year old rods. Amazing!
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  6. #6
    Join Date
    May 2008
    Posts
    169
    Jen, he was a genius. Even when this dear man, who gave me my life back retired, he wrote me a letter. He explained all about what he did during the operation and wished me all the best. I thought that was amazing, that was 8 years ago. He actually watched Dr Harrington here in Australia all those years ago, I was the 7th person operated in Australia with the harrington rods so I have been told. I have also met the nurse who was in the operating theatre in Sydney when Dr Harrington came over and he operated on 5 patients himself. She works at the Launceston general Hospital now(I live in Launceston) and that was an amazing co-incidence. Life is like that sometimes eh!!


    Look after yourselves
    Lorraine.
    Last edited by Lorraine 1966; 10-03-2011 at 02:07 AM.
    Operated on in 1966, harrington rods inserted from T4 to L3, here in Australia. Fusion of the said vertebrae as well. Problems for the last 14 years with pain.
    Something I feel deeply,"Life is like money,you can spend it anyway you wish, but can only spend it once.

  7. #7
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    That's something special to tell the grandkids! Considering you were only the 7th, he certainly did a meticulous job, using what was a new procedure. Are you persuing Revision surgery, Lorraine?

    Take care,
    Jen
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  8. #8
    backissues Guest
    I had nerve pain in my left upper abdomen after the surgery and for several months afterwards. I had intercostal shots but nothing helped except acupuncture and time. The pain was so bad that the only thing that helped was lying down to put pressure on the nerve. The pain was radiating from T8 and T9 above my surgical site. I am pleased to report that, at almost 10 months post-op, the frequency of that pain is low and the intensity is much less as I can go about whatever I am doing if I get the pain.

    I also had occipital nerve pain in my neck and back of my head where the neck meets the skull. I thought these were headaches but really were "pains in the head." The acupuncturist worked on these as well. However, I found out that it was my posture using my desktop computer that was doing it. When I went on vacation, I didn't have a headache all week. This was after having them almost every other day. So, I'm using a laptop, which is set up much lower, and my headaches have gone.

    By the way, I had to go through all kinds of stomach tests to eliminate the fact that it was not nerve and was something having to do with my stomach.

    Also, I took Gabapentin and Lyrica to try to help the pain for the abdomen but nothing helped.

    Take care.

  9. #9
    Join Date
    May 2008
    Posts
    169
    Backissues I love the comment that you now love standing and walking, good on you. Jen thankyou, but I am not going to go into revision surgery as they have said that they cannot promise me that I will have no more pain, so with no guarantees I am going to battle on.
    Operated on in 1966, harrington rods inserted from T4 to L3, here in Australia. Fusion of the said vertebrae as well. Problems for the last 14 years with pain.
    Something I feel deeply,"Life is like money,you can spend it anyway you wish, but can only spend it once.

  10. #10
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    Fair enough Lorraine.

    Have you ever had contact with other patients your surgeon operated on all those years ago? Just wondering how they are getting on.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

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