Registered User
Not sure where to post this, but it was recently announced that SpineKIDS forum will be shut down at the end of the month. I know a lot of us, myself included, have recommended the site to the kids/teens who come to this site since we don't have a lot of kids/teens on our site.
Mary Lou
Mom to Jamie age 21-diagnosed at age 12-spinal fusion 12/7/2004-fused from T3-L2; and Tracy age 19, mild Scoliosis-diagnosed at age 18.
Moderator
Wow, that's too bad. Hopefully, the kids will find their way here.
Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
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Surgery 2/10/93 A/P fusion T4-L3
Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation
Registered User
Marylou i was on here shince i was 13 teen years old. i joined spinekids back in 06
Kara
25
Brace 4-15-05-5-25-06
Posterior Spinal Fusion 3-10-10
T4-L2
Before 50T
After 20T
Registered User
Linda,
Yeah, it is too bad because it is a great place for the kids. I've recommended this site to the kids. Hope it doesn't mean a ton more work for you!
Kara,
I know you've been on this site before, but what I meant was that we don't get a lot of people 18 and younger on this site. In our adolescent section, which is reserved for those under the age of 18, we don't get a lot of people. Now that you are 19, you've moved up to the adult section of this forum instead of the kids/teen/adolsecent section.
Mary Lou
Mom to Jamie age 21-diagnosed at age 12-spinal fusion 12/7/2004-fused from T3-L2; and Tracy age 19, mild Scoliosis-diagnosed at age 18.
Registered User
My daughter was very disappointed when she logged in to Spine Kids the other day and read the news. She goes on it every day!! Hopefully she will be able to find other kids to talk to - it sure helps not to feel so alone.
CAmomof2
July 07 - T 26*
Aug 08 - curve now 22*
Sept 08 - SpineCor Brace (in brace 17*) Ste. Justine
March 09 - in brace 14*
Aug 09 - in brace 14* / MRI normal
Feb 10 - in brace 18* - had an oob xray - now 35*
June 10 Considered VBS T 32*, L 27* , Stopped SpineCor brace
Sept 10 T 38*, L 26*
April 11 T 45*, L 31*
July 11 T 51*, L 37*
MIS SURGERY - NOV 28, 2011 / Age 12 / Fused T4 - T12
Registered User
Wow, what a shame - I'm sorry to hear that.
mariaf305@yahoo.com
Mom to David, age 17, braced June 2000 to March 2004
Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)
https://www.facebook.com/groups/ScoliosisTethering/
http://pediatricspinefoundation.org/
Registered User
This is a huge shame. I regularly refer people to Spinekids (as I do here - although I'm a mod at SSO I send people wherever I think will be most helpful to them). Spinekids has been such a lovely, colourful, safe and friendly community for the teenagers and I hope that they manage to keep things going with their Facebook group.
Registered User
Was Spinekids replaced with another forum for children? It was so helpful for my daughter when she was first diagnosed and braced. I met a students at my school today who was just diagnosed and braced. I wanted to share this resource with her and her mother. Any other suggestions for support for children?Originally Posted by tonibunny
Daughter 17.5 (diagnosed @ 12 yrs) in Sept 2007 AIS
Oct 2007: T-20, L-20 [160 cm]
Mar 2008: T-24, L-24 [163 cm], started Cheneau brace
May 2008: T-16, L-7 (in-brace) [164.2 cm]
Oct 2008: T-23, L-15 (out-of-brace) [167 cm]
Feb 2009: T-20, L-18 (in-brace) 2nd brace
Jun 2009: T-20, L-16 (in-brace) [172.2 cm]
Dec 2009: T-33, L-16 (out-of-brace) [173.8 cm]
Apr 2010: T-25, L-12 (in-brace) [175.3 cm] 3rd brace
Mar 2011: T31, L20 (out) [176.2]
Jul 2012: T31, L20 (out) [177.2]
Registered User
My understanding was the SpineKids group reformed on Facebook.
Gayle, age 50
Oct 2010 fusion T8-sacrum w/ pelvic fixation
Feb 2012 lumbar revision for broken rods @ L2-3-4
Sept 2015 major lumbar A/P revision for broken rods @ L5-S1
mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
2010 VBS Dr Luhmann Shriners St Louis
2017 curves stable/skeletely mature
also mom of Torrey, 12 y/o son, 16* T, stable
Registered User
There now a site called curvy girls scoliosis
Kara
25
Brace 4-15-05-5-25-06
Posterior Spinal Fusion 3-10-10
T4-L2
Before 50T
After 20T
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