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Thread: Wearing Brace until the surgery?

  1. #1
    Join Date
    Apr 2008
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    172

    Wearing Brace until the surgery?

    I wasn't given any direction, I just called and left a message but I was wondering if any of you know, should she be wearing her brace until just before her surgery or should she have her "true curve" at the time of surgery and be out of it for 48 hours?
    Marlowe mom to Halle (age 11)
    Diagnosed January 11/08
    In Spinecor Brace for 2 1/2 years

    In the Cheneau Brace for 10 months
    Being treated at Sick Kids Hospital - Dr. Reinhard Zeller

    Surgery Scheduled at Sick Kids for May 16, 2011


    http://hallesscoliosis.blogspot.com/

  2. #2
    Join Date
    Jan 2008
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    NC
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    Isn't surgery scheduled for 10 days from now?
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  3. #3
    Join Date
    Apr 2008
    Posts
    172
    yes.... May 16th. I have called and left a message, I hope his assistant calls me back.
    Marlowe mom to Halle (age 11)
    Diagnosed January 11/08
    In Spinecor Brace for 2 1/2 years

    In the Cheneau Brace for 10 months
    Being treated at Sick Kids Hospital - Dr. Reinhard Zeller

    Surgery Scheduled at Sick Kids for May 16, 2011


    http://hallesscoliosis.blogspot.com/

  4. #4
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    It will be interesting to hear back whether she should continue with the brace or not. Me, I'd toss that thing so far into the blackberry bush that even a rabbit couldn't find it if I knew I'd be having surgery in ten days, lol.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
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  5. #5
    Join Date
    Jan 2008
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    NC
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    9,317
    Quote Originally Posted by Elisa View Post
    It will be interesting to hear back whether she should continue with the brace or not. Me, I'd toss that thing so far into the blackberry bush that even a rabbit couldn't find it if I knew I'd be having surgery in ten days, lol.
    Post of the month nomination.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  6. #6
    Join Date
    Apr 2007
    Location
    Seattle, WA
    Posts
    385
    Once we realized my son's brace wasn't working, since his curves were increasing and surgery became required, we were told he could stop wearing it. It was such a great relief for him to not have to wear that thing. It then became increasingly clear how weakened his torso muscles had become as a result of wearing the brace for so long.

    Since your daughter's brace is not doing its intended job anyway (holding the curves and postponing/preventing surgery), I can't see the harm in allowing her the freedom to be out of it for her last 10 days before surgery. Unless of course, she's more comfortable wearing it. My son got so used to it that even though he was so happy he didn't have to wear it, it took him a while to gradually wean himself off of it.
    Laurie

    Mother of Alexander & Zachary:
    Alex is 16 years old and in the 11th grade. He has congenital scoliosis due to a hemivertebrae at T10. Wore a TLSO brace for 3 1/2 years. Pre-op curves were T45 & L65; curves post-op are approx. T31 & L34. Had a posterior spinal fusion from T8 to L3 on 7/12/07 at age 12. Doing great now in so many ways, but still working on improving posture.
    Zach is 13 years old and very energetic.

  7. #7
    Join Date
    Apr 2008
    Posts
    172
    See I want her to have the last week without it... DH says she should wear it... When we found out she would need surgery, the Orthopaedic Surgeon said that if she doesn't continue wearing the brace while we wait for the surgery (because he was going to give her a few more months to grow) then she will get much worse, possibly ending up getting up to 70 degrees... She had gone from 40 degrees to 55+ degrees in 6 months.

    DH says going into the surgery after wearing the brace would make her straighter and since they have to straighten her spine anyway, why not send her in a little straighter?

    I say why have her appear straighter than she is and have something possibly missed because her curve isn't the "true curve"...

    I am hoping when she calls back that she says she doesnt have to wear it, it would be nice for her to be brace free for a week before the surgery... DH is worried that she will be in too much discomfort though, because she is always having back pain when she is out of her brace now.
    Marlowe mom to Halle (age 11)
    Diagnosed January 11/08
    In Spinecor Brace for 2 1/2 years

    In the Cheneau Brace for 10 months
    Being treated at Sick Kids Hospital - Dr. Reinhard Zeller

    Surgery Scheduled at Sick Kids for May 16, 2011


    http://hallesscoliosis.blogspot.com/

  8. #8
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,158
    Hi there, if it were my daughter I would allow her to brace-free. At worst her curve increased 5 degrees per month, so in 10 days what's the very worst that can happen, maybe 1 degree worse if that? And especially since the brace isn't working, I would let her have 10 days of freedom.

    Her spine will be straightened maximally anyway. I can not imagine that wearing the brace or not wearing it is going to make any difference at this point.

    Hang in there, these last days are the very worst by far. Try to keep busy and keep positive thoughts and trust in her surgeon. Pretty soon here she will be through surgery and on the road to recovery.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  9. #9
    Join Date
    Sep 2003
    Location
    Northern California
    Posts
    7,225
    Hi...

    I agree with Gayle. Wearing the brace for the next 10 days will have no affect, positive or negative, on the amount of correction.

    Regards,
    Linda
    Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
    ---------------------------------------------------------------------------------------------------------------------------------------------------
    Surgery 2/10/93 A/P fusion T4-L3
    Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

  10. #10
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,805
    I agree with Gayle, Linda and the others. If we were talking about a few months, then maybe I'd be a little more on the fence, although I still would not be convinced that the brace would make a difference since, as someone said, it's not doing its job anyway. But since we are only talking about 10 days, I can't possibly imagine that it will make any difference at all.
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  11. #11
    Join Date
    Apr 2008
    Posts
    172
    Thanks ladies!!!!!
    Marlowe mom to Halle (age 11)
    Diagnosed January 11/08
    In Spinecor Brace for 2 1/2 years

    In the Cheneau Brace for 10 months
    Being treated at Sick Kids Hospital - Dr. Reinhard Zeller

    Surgery Scheduled at Sick Kids for May 16, 2011


    http://hallesscoliosis.blogspot.com/

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