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Thread: Rigo Cheneau brace and under-shirts question

  1. #1
    Join Date
    Oct 2008
    Posts
    78

    Rigo Cheneau brace and under-shirts question

    Hi all;

    My daughter, who is almost 12, just got her RC brace.

    Can anybody share some links where I can buy her more under-shirts - Luke provided us with 2, but for wearing brace FT it's definitely not enough

    Thanks in advance

    Alla
    from Boston, MA, USA

    9 y.o. daughter
    07/08 - diagnosed with L23
    10/08 - wait and see: L25
    11/08 - Spinecor: L15
    01/09 - Spinecor: L15
    06/09 - Spinecor: L14
    11/09 - Spinecor: L14
    04/10 (Out-of-brace): L30-T30
    08/10 - out of Spinecor
    01/11 (Out-of-brace): L42-T30
    02/11 - Rigo-Cheneau and Schroth

  2. #2
    Join Date
    Nov 2010
    Location
    San Diego, CA
    Posts
    104
    my daughter likes the shirts from tillys.com

    once on the site, search for seamless cami

    only $7.99 and they come in lots of colors

    they're a spandex blend, very stretchy and soft

    hope that helps
    Resilience

    treated w Milwaukee Brace FT for 3 yrs
    currently 46 with 35 LL and 40 RT curves

    8 yr old diagnosed w Scoli 8/10 with 27 LL and 27 RT
    11/10 TLSO Full Time
    4/11 22 LL and 24 RT on waiting list for VBS at Shriners Phila
    12/11 curves still in the 20s but now has some rib cage changes from the brace
    VBS 4/25/12 with Dr. Samdani. Pre Op: 29 RT and 25 LL Post Op: 17 RT and 9 LL
    10/13: 15 RT and 10 LL

  3. #3
    Join Date
    Oct 2008
    Posts
    78
    Thanks, they look good, but they don't cover the under-arm area - is that not a problem for your daughter?
    from Boston, MA, USA

    9 y.o. daughter
    07/08 - diagnosed with L23
    10/08 - wait and see: L25
    11/08 - Spinecor: L15
    01/09 - Spinecor: L15
    06/09 - Spinecor: L14
    11/09 - Spinecor: L14
    04/10 (Out-of-brace): L30-T30
    08/10 - out of Spinecor
    01/11 (Out-of-brace): L42-T30
    02/11 - Rigo-Cheneau and Schroth

  4. #4
    Join Date
    Nov 2010
    Location
    San Diego, CA
    Posts
    104
    my daughter's brace comes up high under her left arm but she just pulls the cami up under her left arm pit once the brace is on but not fastened then once the velcro is closed up the brace is so tight that the undershirt doesn't slide down.

    she prefers them to the Knit Rite shirts that the orthotist supplied us with when we got the brace. they were $50 each, and not wearing very well honestly, although I take great care of them in the laundry room, for that price!
    Resilience

    treated w Milwaukee Brace FT for 3 yrs
    currently 46 with 35 LL and 40 RT curves

    8 yr old diagnosed w Scoli 8/10 with 27 LL and 27 RT
    11/10 TLSO Full Time
    4/11 22 LL and 24 RT on waiting list for VBS at Shriners Phila
    12/11 curves still in the 20s but now has some rib cage changes from the brace
    VBS 4/25/12 with Dr. Samdani. Pre Op: 29 RT and 25 LL Post Op: 17 RT and 9 LL
    10/13: 15 RT and 10 LL

  5. #5
    Join Date
    May 2010
    Posts
    49
    My daughter has both the Tilly's camis and the KnitRites. In the winter, she prefers the KnitRites but they're a little too warm in the summer so she wears the Tilly's. She also has a variety of colors in those so she can coordinate with her outfit a little better. In short sleeved summer wear, that matters to her more.

    Luke gave us seven of the KnitRites - did you check with him to see that two was all you should get? (he charged us for them, of course, but insurance paid for some of it)
    Mom to 11 year old DD who was:
    diagnosed 5/09: 8*L, 8*T
    braced 7/10: 17* L, 25*T, 20*C
    x-ray 11/10: 7*L, 17*T, 20*C (x-ray immediately OOB)
    most recent x-ray 06/11: 17*L, 24*T, 22* C (x-ray 24 hours OOB)

  6. #6
    Join Date
    Oct 2008
    Posts
    299
    You can purchase as many shirts as you want (assuming they have them in stock) but they are costly if insurance does not kick in. Our first insurance company paid for 7, and we bought a few more. My dd has been wearing hers 2 1/2 years and I wash them frequently. She wears each one no more than half a day. They don't look pretty over time but I have found they hold up fine, even the ones from when she was wearing the brace f/t. So it's been a one-time purchase for us until she outgrows them. I think the Boston brace company may sell their shirts on-line (not positive) although they have a crew neck rather than a v-neck. Under Armour also works nicely as it is compression fitted but they are short sleeved.
    mamandcrm

    G diagnosed 6/08 at almost 7 with 25*
    Providence night brace, increased to 35*
    Rigo-Cheneau brace full-time 12/08-4/10
    14* at 10/09 OOB x-ray
    11* at 4/10 OOB x-ray
    Wearing R-C part-time since 4/10
    latest OOB xray 5/14 13*
    currently going on 13 yrs old

    I no longer participate in this forum though I will update signature from time to time with status

  7. #7
    Join Date
    Oct 2008
    Posts
    78
    Quote Originally Posted by JessicaNoVa View Post
    Luke gave us seven of the KnitRites - did you check with him to see that two was all you should get? (he charged us for them, of course, but insurance paid for some of it)
    No, he only gave us 2.

    I already contacted KnitRites to see whether I can buy them directly - otherwise, I'll call Luke's office to see if they can drop few in the mail for me

    I am definitely buying couple of Tilly's - you can't beat the price
    from Boston, MA, USA

    9 y.o. daughter
    07/08 - diagnosed with L23
    10/08 - wait and see: L25
    11/08 - Spinecor: L15
    01/09 - Spinecor: L15
    06/09 - Spinecor: L14
    11/09 - Spinecor: L14
    04/10 (Out-of-brace): L30-T30
    08/10 - out of Spinecor
    01/11 (Out-of-brace): L42-T30
    02/11 - Rigo-Cheneau and Schroth

  8. #8
    Join Date
    Oct 2008
    Posts
    78
    Quote Originally Posted by mamandcrm View Post
    You can purchase as many shirts as you want (assuming they have them in stock) but they are costly if insurance does not kick in.
    I am definitely going to find whether my insurance pays for those - thanks!
    from Boston, MA, USA

    9 y.o. daughter
    07/08 - diagnosed with L23
    10/08 - wait and see: L25
    11/08 - Spinecor: L15
    01/09 - Spinecor: L15
    06/09 - Spinecor: L14
    11/09 - Spinecor: L14
    04/10 (Out-of-brace): L30-T30
    08/10 - out of Spinecor
    01/11 (Out-of-brace): L42-T30
    02/11 - Rigo-Cheneau and Schroth

  9. #9
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,158
    We were able to get knit-rite through the orthotist's office, and our insurance paid for most of the cost. My daughter loved them at first since they are thinner than the Boston T (available online also), but then they became less smooth over time. Towards the end of her bracing she was wearing the Under Armour HeatGear Girls sleeveless or short-sleeved shirts exclusively. They are so smooth and thin that she found them the most comfortable. These are also widely available online.

    Good luck!

    Gayle
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  10. #10
    Join Date
    Oct 2008
    Posts
    78
    Quote Originally Posted by leahdragonfly View Post
    Under Armour HeatGear Girls sleeveless or short-sleeved shirts exclusively
    Great, thanks for pointing me in the right direction. These look perfect

    I might get some of the tank tops for summer and some of these for now!
    from Boston, MA, USA

    9 y.o. daughter
    07/08 - diagnosed with L23
    10/08 - wait and see: L25
    11/08 - Spinecor: L15
    01/09 - Spinecor: L15
    06/09 - Spinecor: L14
    11/09 - Spinecor: L14
    04/10 (Out-of-brace): L30-T30
    08/10 - out of Spinecor
    01/11 (Out-of-brace): L42-T30
    02/11 - Rigo-Cheneau and Schroth

  11. #11
    Join Date
    Nov 2010
    Location
    San Diego, CA
    Posts
    104
    oh I'll check those out too! thanks!

    question about caring for the knit rite shirts: I've been washing on delicate cycle and hanging to dry yet they're still getting a roughness to them. I never wash them with towels etc, maybe just some other cotton t-shirts. Any tips would be appreciated.
    Resilience

    treated w Milwaukee Brace FT for 3 yrs
    currently 46 with 35 LL and 40 RT curves

    8 yr old diagnosed w Scoli 8/10 with 27 LL and 27 RT
    11/10 TLSO Full Time
    4/11 22 LL and 24 RT on waiting list for VBS at Shriners Phila
    12/11 curves still in the 20s but now has some rib cage changes from the brace
    VBS 4/25/12 with Dr. Samdani. Pre Op: 29 RT and 25 LL Post Op: 17 RT and 9 LL
    10/13: 15 RT and 10 LL

  12. #12
    Join Date
    May 2010
    Posts
    49
    Do you have your itemized bill from Orthotic Solutions? Double check that you were only charged for two if that's all you received. I would think they'd be pretty standard in what they hand out. {sell} They were out of my daughter's size when she first picked up the brace but gave us us the remaining shirts at her two week check. I did have to remind him that I still needed them.
    Mom to 11 year old DD who was:
    diagnosed 5/09: 8*L, 8*T
    braced 7/10: 17* L, 25*T, 20*C
    x-ray 11/10: 7*L, 17*T, 20*C (x-ray immediately OOB)
    most recent x-ray 06/11: 17*L, 24*T, 22* C (x-ray 24 hours OOB)

  13. #13
    Join Date
    Oct 2008
    Posts
    78
    Quote Originally Posted by JessicaNoVa View Post
    Do you have your itemized bill from Orthotic Solutions? Double check that you were only charged for two if that's all you received. .
    I am sure that he did not overcharge us - I would say he undercharged Since our insurance covered only half of the brace, he even gave us a discount

    We won't have a 2-weeks appointment, since we are in Boston
    from Boston, MA, USA

    9 y.o. daughter
    07/08 - diagnosed with L23
    10/08 - wait and see: L25
    11/08 - Spinecor: L15
    01/09 - Spinecor: L15
    06/09 - Spinecor: L14
    11/09 - Spinecor: L14
    04/10 (Out-of-brace): L30-T30
    08/10 - out of Spinecor
    01/11 (Out-of-brace): L42-T30
    02/11 - Rigo-Cheneau and Schroth

  14. #14
    Join Date
    May 2010
    Posts
    49
    Quote Originally Posted by BellasMom View Post
    I am sure that he did not overcharge us - I would say he undercharged Since our insurance covered only half of the brace, he even gave us a discount

    We won't have a 2-weeks appointment, since we are in Boston
    Oh, I didn't mean he intentionally overcharged you! This was what the itemized breakout was:
    Body Jacket (molded to patient model): $1800
    Additions to TSLO – Thoracic: $805
    Additions to TSLO – Lumbar: $170
    Additions to TSLO – Kyphosis: $140
    Protective Body sock quantity 7: $350
    Pads: $340
    Casting Supplies: $184
    Unspecified additions, Quantity 16 (which I take to mean future adjustments): $755.04


    For a total of $4555.04. The Protective Body sock quantity 7 is the KnitRite shirts.

    That was the bill he submitted to insurance. He actually charged us $3800.
    Mom to 11 year old DD who was:
    diagnosed 5/09: 8*L, 8*T
    braced 7/10: 17* L, 25*T, 20*C
    x-ray 11/10: 7*L, 17*T, 20*C (x-ray immediately OOB)
    most recent x-ray 06/11: 17*L, 24*T, 22* C (x-ray 24 hours OOB)

  15. #15
    Join Date
    Oct 2008
    Posts
    78
    They have not send me itemized bill yet - since we are out of town and tried to leave in a hurry (because of the snow storms), they'll be sending itemized bill later

    I'll check with my insurance and will try to buy some more from Luke
    from Boston, MA, USA

    9 y.o. daughter
    07/08 - diagnosed with L23
    10/08 - wait and see: L25
    11/08 - Spinecor: L15
    01/09 - Spinecor: L15
    06/09 - Spinecor: L14
    11/09 - Spinecor: L14
    04/10 (Out-of-brace): L30-T30
    08/10 - out of Spinecor
    01/11 (Out-of-brace): L42-T30
    02/11 - Rigo-Cheneau and Schroth

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