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  • Rigo Cheneau brace and under-shirts question

    Hi all;

    My daughter, who is almost 12, just got her RC brace.

    Can anybody share some links where I can buy her more under-shirts - Luke provided us with 2, but for wearing brace FT it's definitely not enough

    Thanks in advance

    Alla
    from Boston, MA, USA

    9 y.o. daughter
    07/08 - diagnosed with L23
    10/08 - wait and see: L25
    11/08 - Spinecor: L15
    01/09 - Spinecor: L15
    06/09 - Spinecor: L14
    11/09 - Spinecor: L14
    04/10 (Out-of-brace): L30-T30
    08/10 - out of Spinecor
    01/11 (Out-of-brace): L42-T30
    02/11 - Rigo-Cheneau and Schroth

  • #2
    my daughter likes the shirts from tillys.com

    once on the site, search for seamless cami

    only $7.99 and they come in lots of colors

    they're a spandex blend, very stretchy and soft

    hope that helps
    Resilience

    treated w Milwaukee Brace FT for 3 yrs
    currently 46 with 35 LL and 40 RT curves

    8 yr old diagnosed w Scoli 8/10 with 27 LL and 27 RT
    11/10 TLSO Full Time
    4/11 22 LL and 24 RT on waiting list for VBS at Shriners Phila
    12/11 curves still in the 20s but now has some rib cage changes from the brace
    VBS 4/25/12 with Dr. Samdani. Pre Op: 29 RT and 25 LL Post Op: 17 RT and 9 LL
    10/13: 15 RT and 10 LL

    Comment


    • #3
      Thanks, they look good, but they don't cover the under-arm area - is that not a problem for your daughter?
      from Boston, MA, USA

      9 y.o. daughter
      07/08 - diagnosed with L23
      10/08 - wait and see: L25
      11/08 - Spinecor: L15
      01/09 - Spinecor: L15
      06/09 - Spinecor: L14
      11/09 - Spinecor: L14
      04/10 (Out-of-brace): L30-T30
      08/10 - out of Spinecor
      01/11 (Out-of-brace): L42-T30
      02/11 - Rigo-Cheneau and Schroth

      Comment


      • #4
        my daughter's brace comes up high under her left arm but she just pulls the cami up under her left arm pit once the brace is on but not fastened then once the velcro is closed up the brace is so tight that the undershirt doesn't slide down.

        she prefers them to the Knit Rite shirts that the orthotist supplied us with when we got the brace. they were $50 each, and not wearing very well honestly, although I take great care of them in the laundry room, for that price!
        Resilience

        treated w Milwaukee Brace FT for 3 yrs
        currently 46 with 35 LL and 40 RT curves

        8 yr old diagnosed w Scoli 8/10 with 27 LL and 27 RT
        11/10 TLSO Full Time
        4/11 22 LL and 24 RT on waiting list for VBS at Shriners Phila
        12/11 curves still in the 20s but now has some rib cage changes from the brace
        VBS 4/25/12 with Dr. Samdani. Pre Op: 29 RT and 25 LL Post Op: 17 RT and 9 LL
        10/13: 15 RT and 10 LL

        Comment


        • #5
          My daughter has both the Tilly's camis and the KnitRites. In the winter, she prefers the KnitRites but they're a little too warm in the summer so she wears the Tilly's. She also has a variety of colors in those so she can coordinate with her outfit a little better. In short sleeved summer wear, that matters to her more.

          Luke gave us seven of the KnitRites - did you check with him to see that two was all you should get? (he charged us for them, of course, but insurance paid for some of it)
          Mom to 11 year old DD who was:
          diagnosed 5/09: 8*L, 8*T
          braced 7/10: 17* L, 25*T, 20*C
          x-ray 11/10: 7*L, 17*T, 20*C (x-ray immediately OOB)
          most recent x-ray 06/11: 17*L, 24*T, 22* C (x-ray 24 hours OOB)

          Comment


          • #6
            You can purchase as many shirts as you want (assuming they have them in stock) but they are costly if insurance does not kick in. Our first insurance company paid for 7, and we bought a few more. My dd has been wearing hers 2 1/2 years and I wash them frequently. She wears each one no more than half a day. They don't look pretty over time but I have found they hold up fine, even the ones from when she was wearing the brace f/t. So it's been a one-time purchase for us until she outgrows them. I think the Boston brace company may sell their shirts on-line (not positive) although they have a crew neck rather than a v-neck. Under Armour also works nicely as it is compression fitted but they are short sleeved.
            mamandcrm

            G diagnosed 6/08 at almost 7 with 25*
            Providence night brace, increased to 35*
            Rigo-Cheneau brace full-time 12/08-4/10
            14* at 10/09 OOB x-ray
            11* at 4/10 OOB x-ray
            Wearing R-C part-time since 4/10
            latest OOB xray 5/14 13*
            currently going on 13 yrs old

            I no longer participate in this forum though I will update signature from time to time with status

            Comment


            • #7
              Originally posted by JessicaNoVa View Post
              Luke gave us seven of the KnitRites - did you check with him to see that two was all you should get? (he charged us for them, of course, but insurance paid for some of it)
              No, he only gave us 2.

              I already contacted KnitRites to see whether I can buy them directly - otherwise, I'll call Luke's office to see if they can drop few in the mail for me

              I am definitely buying couple of Tilly's - you can't beat the price
              from Boston, MA, USA

              9 y.o. daughter
              07/08 - diagnosed with L23
              10/08 - wait and see: L25
              11/08 - Spinecor: L15
              01/09 - Spinecor: L15
              06/09 - Spinecor: L14
              11/09 - Spinecor: L14
              04/10 (Out-of-brace): L30-T30
              08/10 - out of Spinecor
              01/11 (Out-of-brace): L42-T30
              02/11 - Rigo-Cheneau and Schroth

              Comment


              • #8
                Originally posted by mamandcrm View Post
                You can purchase as many shirts as you want (assuming they have them in stock) but they are costly if insurance does not kick in.
                I am definitely going to find whether my insurance pays for those - thanks!
                from Boston, MA, USA

                9 y.o. daughter
                07/08 - diagnosed with L23
                10/08 - wait and see: L25
                11/08 - Spinecor: L15
                01/09 - Spinecor: L15
                06/09 - Spinecor: L14
                11/09 - Spinecor: L14
                04/10 (Out-of-brace): L30-T30
                08/10 - out of Spinecor
                01/11 (Out-of-brace): L42-T30
                02/11 - Rigo-Cheneau and Schroth

                Comment


                • #9
                  We were able to get knit-rite through the orthotist's office, and our insurance paid for most of the cost. My daughter loved them at first since they are thinner than the Boston T (available online also), but then they became less smooth over time. Towards the end of her bracing she was wearing the Under Armour HeatGear Girls sleeveless or short-sleeved shirts exclusively. They are so smooth and thin that she found them the most comfortable. These are also widely available online.

                  Good luck!

                  Gayle
                  Gayle, age 50
                  Oct 2010 fusion T8-sacrum w/ pelvic fixation
                  Feb 2012 lumbar revision for broken rods @ L2-3-4
                  Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


                  mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
                  2010 VBS Dr Luhmann Shriners St Louis
                  2017 curves stable/skeletely mature

                  also mom of Torrey, 12 y/o son, 16* T, stable

                  Comment


                  • #10
                    Originally posted by leahdragonfly View Post
                    Under Armour HeatGear Girls sleeveless or short-sleeved shirts exclusively
                    Great, thanks for pointing me in the right direction. These look perfect

                    I might get some of the tank tops for summer and some of these for now!
                    from Boston, MA, USA

                    9 y.o. daughter
                    07/08 - diagnosed with L23
                    10/08 - wait and see: L25
                    11/08 - Spinecor: L15
                    01/09 - Spinecor: L15
                    06/09 - Spinecor: L14
                    11/09 - Spinecor: L14
                    04/10 (Out-of-brace): L30-T30
                    08/10 - out of Spinecor
                    01/11 (Out-of-brace): L42-T30
                    02/11 - Rigo-Cheneau and Schroth

                    Comment


                    • #11
                      oh I'll check those out too! thanks!

                      question about caring for the knit rite shirts: I've been washing on delicate cycle and hanging to dry yet they're still getting a roughness to them. I never wash them with towels etc, maybe just some other cotton t-shirts. Any tips would be appreciated.
                      Resilience

                      treated w Milwaukee Brace FT for 3 yrs
                      currently 46 with 35 LL and 40 RT curves

                      8 yr old diagnosed w Scoli 8/10 with 27 LL and 27 RT
                      11/10 TLSO Full Time
                      4/11 22 LL and 24 RT on waiting list for VBS at Shriners Phila
                      12/11 curves still in the 20s but now has some rib cage changes from the brace
                      VBS 4/25/12 with Dr. Samdani. Pre Op: 29 RT and 25 LL Post Op: 17 RT and 9 LL
                      10/13: 15 RT and 10 LL

                      Comment


                      • #12
                        Do you have your itemized bill from Orthotic Solutions? Double check that you were only charged for two if that's all you received. I would think they'd be pretty standard in what they hand out. {sell} They were out of my daughter's size when she first picked up the brace but gave us us the remaining shirts at her two week check. I did have to remind him that I still needed them.
                        Mom to 11 year old DD who was:
                        diagnosed 5/09: 8*L, 8*T
                        braced 7/10: 17* L, 25*T, 20*C
                        x-ray 11/10: 7*L, 17*T, 20*C (x-ray immediately OOB)
                        most recent x-ray 06/11: 17*L, 24*T, 22* C (x-ray 24 hours OOB)

                        Comment


                        • #13
                          Originally posted by JessicaNoVa View Post
                          Do you have your itemized bill from Orthotic Solutions? Double check that you were only charged for two if that's all you received. .
                          I am sure that he did not overcharge us - I would say he undercharged Since our insurance covered only half of the brace, he even gave us a discount

                          We won't have a 2-weeks appointment, since we are in Boston
                          from Boston, MA, USA

                          9 y.o. daughter
                          07/08 - diagnosed with L23
                          10/08 - wait and see: L25
                          11/08 - Spinecor: L15
                          01/09 - Spinecor: L15
                          06/09 - Spinecor: L14
                          11/09 - Spinecor: L14
                          04/10 (Out-of-brace): L30-T30
                          08/10 - out of Spinecor
                          01/11 (Out-of-brace): L42-T30
                          02/11 - Rigo-Cheneau and Schroth

                          Comment


                          • #14
                            Originally posted by BellasMom View Post
                            I am sure that he did not overcharge us - I would say he undercharged Since our insurance covered only half of the brace, he even gave us a discount

                            We won't have a 2-weeks appointment, since we are in Boston
                            Oh, I didn't mean he intentionally overcharged you! This was what the itemized breakout was:
                            Body Jacket (molded to patient model): $1800
                            Additions to TSLO – Thoracic: $805
                            Additions to TSLO – Lumbar: $170
                            Additions to TSLO – Kyphosis: $140
                            Protective Body sock quantity 7: $350
                            Pads: $340
                            Casting Supplies: $184
                            Unspecified additions, Quantity 16 (which I take to mean future adjustments): $755.04


                            For a total of $4555.04. The Protective Body sock quantity 7 is the KnitRite shirts.

                            That was the bill he submitted to insurance. He actually charged us $3800.
                            Mom to 11 year old DD who was:
                            diagnosed 5/09: 8*L, 8*T
                            braced 7/10: 17* L, 25*T, 20*C
                            x-ray 11/10: 7*L, 17*T, 20*C (x-ray immediately OOB)
                            most recent x-ray 06/11: 17*L, 24*T, 22* C (x-ray 24 hours OOB)

                            Comment


                            • #15
                              They have not send me itemized bill yet - since we are out of town and tried to leave in a hurry (because of the snow storms), they'll be sending itemized bill later

                              I'll check with my insurance and will try to buy some more from Luke
                              from Boston, MA, USA

                              9 y.o. daughter
                              07/08 - diagnosed with L23
                              10/08 - wait and see: L25
                              11/08 - Spinecor: L15
                              01/09 - Spinecor: L15
                              06/09 - Spinecor: L14
                              11/09 - Spinecor: L14
                              04/10 (Out-of-brace): L30-T30
                              08/10 - out of Spinecor
                              01/11 (Out-of-brace): L42-T30
                              02/11 - Rigo-Cheneau and Schroth

                              Comment

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