Results 1 to 6 of 6

Thread: newbie and Newly diagnosed :)

  1. #1
    Join Date
    Dec 2010
    Location
    Bristol, UK
    Posts
    4

    newbie and Newly diagnosed :)

    Hi there, im 26 and have been recently diagnosed...heres my long story!
    At around 15/16 my parents were commenting on my bad posture putting it down to heavy school bags and then came years of 'stand up straight' comments! I had noticed that i had one hip higher than the other, a slight hump etc...but assumed that was just the way i was meant to be and ignored it. Fast forward 10 years and i get injured in work, doctor presuming a slipped disc so i got referred for an mri scan...no slipped disc but a tilted pelvis and my spine in my lumbar looks...well not too clever! I had sciatica when 18 and it went unoticed by my gp back then and after seeing my gp following the work incident he examined me, again not obviously paying that much attention and thought it was a slipped disc due to having shooting pain down both my legs, numbness from my backside down and alterated bladder problems...i had a feeling the mri would show a little bit more than meets the eye! Im unsure about the extent of my back from my lumbar upwards as they only scanned that region but ive been referred to a specialist surgeon that i have an appointment with next week so i guess i'll find out the true extent then. And i was worried at the thought of a decrompression operation for a disc...im now starting to feel quite anxious!
    Sorry to babble on too!
    Sam

  2. #2
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    Welcome to the forum Sam. Sounds like you've been referred to a specialist who will be able to give you the full story. After your appt, let us know what he says. Write a list of questions so you don't forget anything and if you can, take someone in with you so that if you forget anything you're told, he/she might remember for you. Good luck!
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  3. #3
    Join Date
    Dec 2010
    Location
    Bristol, UK
    Posts
    4
    I will do thank you I got measured yesterday and am now 5ft 1inch...last time i was measured i was 5ft 3inches! oops.....oh well...whats 2 inches

  4. #4
    Join Date
    Apr 2009
    Location
    Aspers PA
    Posts
    19

    Talking interesting

    Please let us know whats happening. I will be praying everything turns out okay for you! I'm sorta new to the forum too!

    Julie

  5. #5
    Join Date
    Mar 2008
    Location
    New Bern, NC
    Posts
    1,445
    Welcome Sam,
    I too had my scoliosis ignored by my GP. I wish there were some way to educate GPs of lumbar scoliosis. They all seem to know about thoracic scoliosis. The lumbar just isn't as obvious from the outside. I hope you find the help you need.
    Sally
    Diagnosed with severe lumbar scoliosis at age 65.
    Posterior Fusion L2-S1 on 12/4/2007. age 67
    Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
    Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
    New England Baptist Hospital, Boston, MA
    Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

    "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

  6. #6
    Join Date
    Dec 2010
    Location
    Bristol, UK
    Posts
    4
    I have herniated discs after all, at L4-L5 and T10-T11. I have a lumbar curve of 30 degrees and thorasic kyphosis curve of 60 degrees. They have scheduled me in for further xrays in 6 months to see progression(as standard practice) but as i have 3 different problems the surgeon is getting another opinion and phoning me over the next 1-2 weeks with the real plan of action which is likely to be surgery for discs and fusion surgery. ouch!
    life is unfair

    Sam x

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •