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Thread: So glad I found you guys!

  1. #646
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Should add that Donovan, another BC boy had scoliosis surgery with Dr. K yesterday and everything went well apparently. I knew it would. :-D

    http://www.facebook.com/?ref=home#!/...61347427240929
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  2. #647
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,805
    These kids are truly amazing - especially in this case, where Elias (and you) have been through SO much and have shown such amazing strength and courage.

    No, this thread is not allowed to die because it will be such an inspiration to anyone just beginning the journey.

    I continue to be amazed as well at the surgeons who literally perform miracles every day.
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  3. #648
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Maria, this journey has been so amazing and I still can not believe what we went through and how far we've come in such a short time. I have been helped so much by all of you guys here that I only hope our journey helps others, even if just a tiny bit.

    I am still in awe of the Shriners generosity as well as Dr. Krajbich's plan of action for Elias and how well absolutely everything went. I still want to pinch myself to make sure I am not dreaming this all up.

    Speaking of Shriners, talked with Bill M today, he's the gentleman that lives here in CR and came to visit me and we had tea and we talked about taking Elias to Portland for a consultation and probably surgery. We've been keeping in touch and he's been reading my blog and I (possibly Elias) will visit the local Shrine here in CR to talk about all about our journey to Portland and back. These men were so instrumental to getting Elias the help he needed and they'd love to hear all the details firsthand, so that's the plan. These men work so hard to raise money to help kids in need. :-)

    The staples are staying in until Monday as a few of them are not quite ready to come out. That and we had a mix up with the receptionist and she had our appointment next Wednesday not today. That's fine, we needed a new script for the pain meds anyway and we'll get to see our own GP on Monday who was the one who originally diagnosed Elias' scoliosis. He will be so surprised by how different he looks!
    Last edited by Elisa; 05-04-2011 at 07:28 PM.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  4. #649
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    Take Elias' xrays Elisa, he'll be gobsmacked.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  5. #650
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Yes, I'll show the x-rays as well as actual pictures of his back. These are before and after pics: the first one was taken at the hotel in Vancouver BC two days before his surgery, the second one was taken at the hospital in Portland about five days after his second surgery/4-week halo traction.
    Attached Images Attached Images
    Last edited by Elisa; 05-06-2011 at 04:48 PM.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  6. #651
    Join Date
    Dec 2009
    Location
    NC
    Posts
    791
    Quote Originally Posted by Elisa View Post
    Yes, I'll show the x-rays as well as actual pictures of his back. These are before and after pics: the first one was taken at the hotel in Vancouver BC two days before his surgery, the second one was taken at the hospital in Portland about five days after his second surgery/4-week halo traction.
    Awesome !! What great correction

  7. #652
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Thanks Melissa, he went from a 110* curve with significant rotation to about 25*. Obviously we are very grateful to Shriners and Dr. Krajbich for all their amazing ability and help. Yes it took two surgeries, four weeks of halo/weight traction and living at the hospital for five weeks but it was so worth it. I still am in awe of everything but tickled pink that my baby has a new lease on life and bringing him home was a lot like when I first brought him home from the hospital as a newborn. :-)
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  8. #653
    Join Date
    Jan 2006
    Location
    near Philadelphia
    Posts
    1,260
    JUST AMAZING!! I can't get over it. Soooooo happy for you guys.
    Chris
    A/P fusion on June 19, 2007 at age 52; T10-L5
    Pre-op thoracolumbar curve: 70 degrees
    Post-op curve: 12 degrees
    Dr. Boachie-adjei, HSS, New York

  9. #654
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,297
    These guys are amazing.
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  10. #655
    Join Date
    Apr 2007
    Location
    Seattle, WA
    Posts
    385
    I am so happy for you all that you're finally home, not to mention his amazing correction!
    Laurie

    Mother of Alexander & Zachary:
    Alex is 16 years old and in the 11th grade. He has congenital scoliosis due to a hemivertebrae at T10. Wore a TLSO brace for 3 1/2 years. Pre-op curves were T45 & L65; curves post-op are approx. T31 & L34. Had a posterior spinal fusion from T8 to L3 on 7/12/07 at age 12. Doing great now in so many ways, but still working on improving posture.
    Zach is 13 years old and very energetic.

  11. #656
    Join Date
    May 2006
    Location
    Near Houston, TX
    Posts
    495
    Those pictures are amazing! What a great correction. I haven't been on in a while so I didn't even know the surgery was complete. Congratulations !

  12. #657
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,805
    Quote Originally Posted by Elisa View Post
    I am still in awe of the Shriners generosity as well as Dr. Krajbich's plan of action for Elias and how well absolutely everything went. I still want to pinch myself to make sure I am not dreaming this all up.

    Speaking of Shriners, talked with Bill M today, he's the gentleman that lives here in CR and came to visit me and we had tea and we talked about taking Elias to Portland for a consultation and probably surgery. We've been keeping in touch and he's been reading my blog and I (possibly Elias) will visit the local Shrine here in CR to talk about all about our journey to Portland and back. These men were so instrumental to getting Elias the help he needed and they'd love to hear all the details firsthand, so that's the plan. These men work so hard to raise money to help kids in need. :-)
    Elisa,

    I know a lot of these men (Shriners) personally and I can tell you that there is nothing they enjoy more than to hear how well "their kids", as they like to call the patients, are doing.

    David and I have gone to our local Shrine temple on many occasions. At first, it was so that I could tell my son's story and thank them for everything they had done for us. Now we attend fundraisers and other events a few times a year. I've even worked on a few projects with them (like a fundraiser last year to benefit the Kismet Shriners Transportation Fund) which was an honor for me to work side by side and see how incredibly selfless these guys are. I was just asked recently to assist with a screening clinic in the fall. The Shriners have become like family and I get so much satisfaction from giving whatever I can of my time and talents to the people who gave so much to us. I'm also a strong believer that more than anything else, kids learn from what they see their parents do and from the examples we set - so it's a great lesson for my son about giving back. He enjoys his time at these events as much as I do and knows many of the guys by name now.

    I guess my point is that everyone will benefit from your involvement with your local Shriners - you, Elias and the Shriners themselves - who will be thrilled to see how well your son is doing and I'm sure will continue to do :-)
    Last edited by mariaf; 05-07-2011 at 02:50 PM.
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  13. #658
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    I'm sure I'll be keeping in touch with the Shriners Maria, they are such an amazing bunch of people.

    Elias gets his staples out tomorrow. It's been close to three weeks now since the second surgery and he's doing really well, he's cut down on his meds, doesn't nap during the day but does go to bed very early at night.

    His appetite is great and we're all trying our best to feed him with nutritious food but we still need to fatten the boy up b/c he's still too thin for his stretch out torso and two surgeries, traction etc.
    Attached Images Attached Images
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  14. #659
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,297
    Wow it is impossible to tell he has a scoliosis. He got a great cosmetic result on top of the curve stabilization.

    Meanwhile...
    http://cuteoverload.com/2011/05/10/wine-chillas/
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  15. #660
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,369
    They exhibit all the signs of alcoholism....

    This could be a bigger hit than blueray Yuletide log videos.
    Ed
    49 yr old male, now 62, the new 63...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

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