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Thread: So glad I found you guys!

  1. #691
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Ed, I'm not concerned about yesterday's x-rays and I know it's pretty standard procedure and all but I had every right to be present when she took them and I don't know what her problem was about me being there but I didn't appreciate her attitude. I have always been present while Elias has had his x-rays done so I know it's nothing to do with procedure or anything like that.

    She left me standing at the door and told me I could ask questions from there which of course I wouldn't b/c I thought it rude of her to suggest I talk about my son's personal health issues in front of a waiting room with others sitting there and could obviously hear our conversation.

    Also, I thought it would be good for me to let her know a little bit about his implants b/c scoliosis surgery on kids is not done on Vancouver Island and we all know there was a snowball's chance in hell that he'd get it done in Vancouver so I figured I'd fill her in on a few things. Turns out she did ask Elias a couple of questions that he did NOT know the answers to and I could certainly have answered them. I really think she was just giving me a hard time for whatever her reason(s) was. I know the hospital here isn't exactly Shriners Portland and all but geez, no need to be so bloody snotty. Next time he needs to get x-rays done here I will make a point of telling them beforehand that I plan on being present, unless of course it is a policy change from before but I really doubt it.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  2. #692
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    7 weeks post-op today. The incision is still quite bright but he’s feeling pretty good, gaining weight and some muscle tone is starting to come back especially in his arms. Not the best pic as it’s a bit dark and he’s turned to the side but that’s as good as it gets today as he’s off making himself a huge sandwich before our barbecue and strawberry cheesecake dinner. It's his 15th. birthday today. I can't believe it's been that long and he was so polite to be actually born on his due date in the middle of the afternoon after 45 minutes of labour. :-)
    Attached Images Attached Images
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  3. #693
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,298
    Happy Birthday to Elias! I hope he has a great day!

    ps. I am very jealous of your short labor. Mine was 10 hours and I don't want to seem whingy given others have longer labors. I'm just saying I am still bitter over not getting enough drugs. :-)
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  4. #694
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    I know, I'd be bitter too if I were you and even ten hours is good! It was so weird that I went into the hospital to get things checked out on June 7th. b/c I was feeling a bit "uncomfortable" and they kept me there b/c I was in full labour but didn't know it. I asked if I was having the baby soon and she said "yes, before I finish my tea". If it makes you feel any better, the first two kids were not born on their due date and were not as easy. I felt pain, lol.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  5. #695
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,298
    No, hearing others are in pain doesn't make me feel better but thanks for trying. :-)

    There was some sort of mix-up in my case... I attended some birthing classes which I thought were general information. In fact they must have been natural childbirth classes because nobody was offering me anything. Finally I had my husband insist they give me something (stadol) and that got me too close to the births that they would not give me an epidural at that point. I was extremely scared at that point and felt tricked and cheated. I had no pain coping mechanisms and it was not a happy memory due to the pain. The best part is that the second kid who was transverse came down head first and not some other way. Small mercies.

    Sorry for the novel but I'm still bitter. :-)
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  6. #696
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,805
    Happy (Belated) Birthday to Elias!!!! You have an incredible young man there!
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  7. #697
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    This is the first side-view x-ray Iíve seen of Eliasí metalwork. It was taken here in CR about a week ago. Wow, check out those bendy rods and oh-so-many screws!

    Thanks Maria.

    Pooka, I attended natural childbirth classes too with all that 'hee hee' breathing but never did breath that way and just did my own thing. Didn't need any drugs but I came oh so close I tell ya!
    Attached Images Attached Images
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  8. #698
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918

    8 weeks post-op

    Itís been eight weeks today since Elias had his second scoliosis surgery. He seems to be doing pretty well and says he feels the worst first thing in the morning and canít wait to have a hot shower b/c heís all stiff and sore from sleeping all night.

    His scar still looks nasty and the stretch marks are still fairly red but Iím putting the Bio Oil on daily mostly b/c I bought it and am going to at least use it up. Heís definitely put on a bit of weight and his colour is looking much better. Iím also making him sit outside with me for at least half an hour a day when I get home from work and itís nice outside. Today is not nice outside.

    He does seem to have a little red patch on the left side of his scar near the top and he says it's itchy. I'm thinking it might be a flea bite b/c of the four cats around here and the bugs do seem to just love him. I don't think I've had a flea bite in my life, heh.
    Attached Images Attached Images
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  9. #699
    Join Date
    Sep 2009
    Location
    Wisconsin
    Posts
    184
    Oh my goodness, I just read from post one to your last post...wow, you have been through quite a journey. Your son's back looks amazing. I am very happy you found help and a specialist that could do so much for your son!

    this surgery is a miracle, and I hope he continues to do well..
    age 15
    Daughter diagnosed at age 13
    T20 l23 10-09
    T27 L27 1/2010

    T10 L 20 in brace 4/2010
    T22 L25 12/2010 out of brace
    T24 L25 7/2011 out of brace

    Type 1 diabetes- pumping
    Wearing a Boston brace and Schroth therapy
    Faith, Hope, and Love- the greatest of these is Love


  10. #700
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,805
    Just wondering how is Elias doing....
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  11. #701
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,390
    Yes, we are wondering....

    So, the bugs love Elias?

    Iím wondering if fleas feel the effects of heavy opoidís? You would think that they would just take a bite, get wasted, and fall off. With their size, and metabolism, they sure could use a flea nurse with Narcan just in case.

    They probably just all ODíd and fell off.

    (Chuckle,chuckle)

    Ed
    49 yr old male, now 62, the new 63...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  12. #702
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Hi guys, it's been a little while since I've been on here and online in general. This is a very busy time of year for me b/c it is tourist/hotel season and I can hardly keep up. I've been bugging my boss to hire one more person to help out or even half a person but I'm not sure that's possible, lol.

    Add to that, my laptop stopped working so I'm using a desk model and have to fight for time on it with other family members. It should be a bit better now though b/c my daughter just bought herself a Blackberry yesterday so I'm expecting her to use that more.

    Also, we were really busy with her grade 12 graduation which went really well. So glad she's out of high school now and she did it all in the first shot at 17! :-)

    My lower back has been really sore for close to three weeks now and I'm sure it's b/c of the type of work I do as well as normal aging I think. Finally broke down and went to the doctor last week and he gave me a couple of scripts but I haven't taken anything yet and my back is starting to feel much better so hopefully I'm on the mend.

    Elias is doing great. He feels great and he looks great. He has no complaints about anything and I think he's pretty much back to the way he was before his scoliosis went whacky. He's still a night owl and I do drag him outside into the sunshine but honestly we haven't had a whole lot around these parts. Thanks for asking about him; appreciate it.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  13. #703
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918

    3 Months Post-Op.

    It’s been exactly three months since Elias had his second scoliosis surgery/halo traction and he is doing so well. He has not complained of any back issues at all, has gained a bit of weight and look… he has a bit of colour on his face!

    Thank you again wonderful Shriners for everything you did for Elias and for the rest of our family too. You guys are simply amazing and we are really looking forward to heading back down to Portland soon for a checkup in the next little while.

    Here's a couple of pics of both my boys: Shawn & Elias. They've been spending quite a bit of time together lately as Shawn has been staying up here in CR with us. Check out Elias' super straight shoulders in the gaming pic. :-)
    Attached Images Attached Images
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  14. #704
    Join Date
    Mar 2005
    Location
    Ukiah CA
    Posts
    891
    Elisa congrads on your son being 3 months postop
    Kara
    25
    Brace 4-15-05-5-25-06
    Posterior Spinal Fusion 3-10-10
    T4-L2
    Before 50T
    After 20T

  15. #705
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Thanks Kara. Can't believe it's been three months already. Time has gone by SO fast and before we know it, he will be heading to high school this September, much taller and pain free. O_o

    Quote Originally Posted by kennedy View Post
    Elisa congrads on your son being 3 months postop
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

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