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Thread: So glad I found you guys!

  1. #616
    Join Date
    Apr 2007
    Location
    Seattle, WA
    Posts
    385
    Wow Elisa!

    Elias got such great correction and it seems like he's having a really good recovery! I am so happy for you both.

    I hope you are able to leave the hospital and get home as soon as possible. Before you know it, he'll not only be walking but even running around with friends. You might even have to remind him to be careful and not do more than is recommended by his doctor.

    I'm so glad I checked this forum (finally- I meant to check up on Elias sooner) before going to bed. Thanks for all the wonderful information. I haven't read your blog, though. How do you access it?
    Laurie

    Mother of Alexander & Zachary:
    Alex is 16 years old and in the 11th grade. He has congenital scoliosis due to a hemivertebrae at T10. Wore a TLSO brace for 3 1/2 years. Pre-op curves were T45 & L65; curves post-op are approx. T31 & L34. Had a posterior spinal fusion from T8 to L3 on 7/12/07 at age 12. Doing great now in so many ways, but still working on improving posture.
    Zach is 13 years old and very energetic.

  2. #617
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Quote Originally Posted by laurieg6 View Post
    Wow Elisa!

    Elias got such great correction and it seems like he's having a really good recovery! I am so happy for you both.

    I hope you are able to leave the hospital and get home as soon as possible. Before you know it, he'll not only be walking but even running around with friends. You might even have to remind him to be careful and not do more than is recommended by his doctor.

    I'm so glad I checked this forum (finally- I meant to check up on Elias sooner) before going to bed. Thanks for all the wonderful information. I haven't read your blog, though. How do you access it?
    His recovery is going really well. He felt so good yesterday that he refused his pain meds at midnight and at four AM apparently (I was sleeping) and this morning he woke up so sore. The nurses and I have convinced him to keep a regular schedule with the meds so his pain doesn't skyrocket. I don't think he'll be skipping them anytime soon.

    Laurie, there's a link to my blog at the bottom of my signature: Elias' Scoliosis Blog
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  3. #618
    Join Date
    Apr 2007
    Location
    Seattle, WA
    Posts
    385
    Sorry to be so dense about the blog. Yes of course, the link is in your signature - it was late at night when I asked about it and I spaced the link...

    It's really important to keep the meds at a steady level for at least a week or two. We tried tapering Alexander's meds too soon and it was not pleasant for him. But he was off all narcotics by around 2.5 weeks post-op; he just took a little tylenol as needed for a few days after that.

    If your bus back up to BC is planning any stops in the Seattle area, let me know. We live in North Seattle and I could possibly bring Alexander to meet you guys.

    All the best to Elias for a fast and complete recovery!
    Laurie

    Mother of Alexander & Zachary:
    Alex is 16 years old and in the 11th grade. He has congenital scoliosis due to a hemivertebrae at T10. Wore a TLSO brace for 3 1/2 years. Pre-op curves were T45 & L65; curves post-op are approx. T31 & L34. Had a posterior spinal fusion from T8 to L3 on 7/12/07 at age 12. Doing great now in so many ways, but still working on improving posture.
    Zach is 13 years old and very energetic.

  4. #619
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    A week or two? These kids just amaze me and the ease in which their pain disappears so quickly. Oh, to be young again (and know what I know now.)

    Keep up the great work Elias, you're wowing us all!
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  5. #620
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Quote Originally Posted by laurieg6 View Post

    If your bus back up to BC is planning any stops in the Seattle area, let me know. We live in North Seattle and I could possibly bring Alexander to meet you guys.
    Would love to meet up with you and your son but this Gizeh Shriners bus is HUGE and it makes one stop only for a quick lunch break and that's after we get through Seattle.

    I do believe we are booked on Tuesday's run back north. :-)

    Ed, yes he spends about half of the day up and about, either walking around on sitting at the desk with his laptop.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  6. #621
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,472
    What took Elias 4 days to do, took me about 3 months at age 49. Amazing.

    Must be a 4:1 ratio on healing speed. Could that be correct? Hmmm....
    Ed
    49 yr old male, now 63, the new 64...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  7. #622
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Quote Originally Posted by titaniumed View Post
    What took Elias 4 days to do, took me about 3 months at age 49. Amazing.

    Must be a 4:1 ratio on healing speed. Could that be correct? Hmmm....
    Ed
    Sounds about right but don't ask me b/c I'm a bit slow with math. I still can't believe how fast he went from looking like he'd been shot after surgery to getting up and walking pretty much on his own a few days later. I'm not talking about baby steps either, he's taking long strides; I can hardly keep up to him. Even the nurses are telling him that he doesn't have to walk so fast. He walked a lot slower before his surgery actually b/c he was hurting so bad. At this pace he should be able to walk to and from school in half the time, lol.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  8. #623
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,317
    Spiny Mouse,

    I read your blog entry for today... I'm concerned that you are holding back too much on your true feelings about the officiating at the last NHL game. It's not good to hold your feelings in like that. LOL.

    But I mainly wanted to say...

    CONGRATULATIONS ON LEAVING TOMORROW! What a trip it's been. :-)
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  9. #624
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    ^^ Yes, it's been quite a trip and am thrilled that everything went so well but I am so looking forward to leaving here tomorrow.

    I don't like to blame refs for games lost but occasionally they do somehow manage to manipulate things thereby deciding the outcome of a game. A good ref will be virtually invisible and the players will determine the outcome of the game. Well we have a game 7 now in Vancouver and since I will be in a hotel room there tomorrow night, I actually get to see it, so all is not bad. :-D

    Not sure if you're into hockey even a little bit but the Carolina Hurricanes won the Stanley Cup a few years back and their captain Rod Brind' Amour brought the Cup back to his hometown... Campbell River! We even have a street named after him.

    Check out this article... scroll down to Rod's picture.

    http://www.hhof.com/html/exscj06_07.shtml
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  10. #625
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,317
    The only reason I know the Hurricanes won the Cup in 2006 is that is the same year we moved here. It was madness. :-)
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  11. #626
    Join Date
    May 2009
    Posts
    3,729
    so...remember back before you went, when you were worried about all the time you would have on your hands, and being by yourself....
    no problem...right?

    wishing you a safe trip home!

    jess

  12. #627
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Quote Originally Posted by jrnyc View Post
    so...remember back before you went, when you were worried about all the time you would have on your hands, and being by yourself....
    no problem...right?

    wishing you a safe trip home!

    jess
    Yes, I remember that! Turns out I was kept very busy caring for Elias, constantly shifting all those weights around and tending to his every whim, lol.

    I also had a lot of time to spend on my computer, read books and spend some time with hdhugger which was awesome! :-)
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  13. #628
    Join Date
    May 2008
    Location
    reno,nevada
    Posts
    4,472
    Elisa

    This really turned out to be quite a story with such a happy ending. Shriners, Dr Krajbich and staff really deserve big time credit for making this all happen....They truly are hero’s.

    Its funny how we would use things like rodents, or cats, or in extreme cases, “eefing” to try to keep you in good spirits through all of this. I think it worked. And I received a few PM’s out of it anyway. He he

    It was a good thing documenting all of this the way you did, it’s a valuable resource....you did such a good job.

    Have a pleasant trip home.
    Ed
    49 yr old male, now 63, the new 64...
    Pre surgery curves T70,L70
    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
    Dr Brett Menmuir St Marys Hospital Reno,Nevada

    Bending and twisting pics after full fusion
    http://www.scoliosis.org/forum/showt...on.&highlight=

    My x-rays
    http://www.scoliosis.org/forum/attac...2&d=1228779214

    http://www.scoliosis.org/forum/attac...3&d=1228779258

  14. #629
    Join Date
    Apr 2007
    Location
    Seattle, WA
    Posts
    385
    I hope the trip home goes smoothly Elisa. I'll be thinking about you all day driving up I5 and passing pretty close to our house. Elias sounds like he's doing so great.

    Here's to a "normal" life for Elias from now on, getting back to school and having a relaxing summer for all of you!
    Laurie

    Mother of Alexander & Zachary:
    Alex is 16 years old and in the 11th grade. He has congenital scoliosis due to a hemivertebrae at T10. Wore a TLSO brace for 3 1/2 years. Pre-op curves were T45 & L65; curves post-op are approx. T31 & L34. Had a posterior spinal fusion from T8 to L3 on 7/12/07 at age 12. Doing great now in so many ways, but still working on improving posture.
    Zach is 13 years old and very energetic.

  15. #630
    Join Date
    Apr 2008
    Posts
    172
    I am so glad Elias has done so well! Thank you for keeping us updated!
    Marlowe mom to Halle (age 11)
    Diagnosed January 11/08
    In Spinecor Brace for 2 1/2 years

    In the Cheneau Brace for 10 months
    Being treated at Sick Kids Hospital - Dr. Reinhard Zeller

    Surgery Scheduled at Sick Kids for May 16, 2011


    http://hallesscoliosis.blogspot.com/

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