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Thread: So glad I found you guys!

  1. #751
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Quote Originally Posted by titaniumed View Post
    I guess they need to re-name it the “magic bus”?

    So glad to hear about Elias.

    Ed
    That is a great idea Ed! Everything about this journey has been totally magical, including the bus.

    I'll have to measure and weigh Elias but I am almost certain he has gained another inch, which would make him 6'1" and I'd guess that he's gained about 25lbs. since last April. We will see.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  2. #752
    Join Date
    Jan 2008
    Location
    Oregon
    Posts
    1,158
    Hi Elisa,

    It is great to hear from you, and I am so glad that Elias is doing so well. I am just amazed at how the time has flown by since his surgery.

    Have a good spring, and please keep us posted after his April visit.
    Gayle, age 50
    Oct 2010 fusion T8-sacrum w/ pelvic fixation
    Feb 2012 lumbar revision for broken rods @ L2-3-4
    Sept 2015 major lumbar A/P revision for broken rods @ L5-S1


    mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
    2010 VBS Dr Luhmann Shriners St Louis
    2017 curves stable/skeletely mature

    also mom of Torrey, 12 y/o son, 16* T, stable

  3. #753
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,267
    I am so glad to hear that all is going so well with your son and may it continue as he grows
    Melissa

    Fused from C2 - sacrum 7/2011

    April 21, 2020- another broken rod surgery

  4. #754
    Join Date
    Mar 2010
    Posts
    2,748
    Quote Originally Posted by walid View Post
    ... the wonderful wizard of portland!!
    Hi! I've been worried about you and Walid, since we haven't heard hide nor hair about how Walid's procedure went. It's nice to hear that you are in good spirits. I wish you all the best!

    Elisa,
    It's great to hear that Elias has grown so much and is doing so well! It really does sound like he has his life back, and in turn, you do, too! I wish you all the best, too!

  5. #755
    Join Date
    Apr 2007
    Location
    Seattle, WA
    Posts
    385
    It's so great to hear that Elias is doing so well. If that magic school bus is stopping anywhere near Seattle, maybe we could try to meet...
    Laurie

    Mother of Alexander & Zachary:
    Alex is 16 years old and in the 11th grade. He has congenital scoliosis due to a hemivertebrae at T10. Wore a TLSO brace for 3 1/2 years. Pre-op curves were T45 & L65; curves post-op are approx. T31 & L34. Had a posterior spinal fusion from T8 to L3 on 7/12/07 at age 12. Doing great now in so many ways, but still working on improving posture.
    Zach is 13 years old and very energetic.

  6. #756
    Join Date
    May 2009
    Posts
    3,729
    how wonderful for your son! i hope his life does nothing but expand
    in all areas...there is nothing that will stop him now!

    i was just wondering whether you pursued anything with the hospital
    in Canada that had you waiting and waiting...and did not consider
    your son to need emergency care....?
    or did you just decide to look to the future and let it go...?
    everytime i see a post from someone from Canada, i shudder when
    i think of the policies there...of what is and is not an emergency
    in their eyes!
    my sister in Montreal always told me emergencies are taken care of immediately....
    i gotta tell her that they need to reconsider their definition of
    emergency....apparently, if one is breatheing, it is not an emergency....?!!

    best wishes...
    jess

  7. #757
    Join Date
    Oct 2011
    Location
    East Central FL
    Posts
    193
    So happy that everything's going great for Elias! Thanks for updating!
    Mom of 14yo son diagnosed Oct 2011
    Surgery 1/3/12 w Dr. Geof Cronen,
    Tampa General Hospital T3 to L1
    Jacob's pre surg curves: T58 & L31 12/28/11
    photos & xrays in "First-Time Surgery" thread "Before & After"

  8. #758
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,267
    Thanks for keeping us updated. Glad to hear that he is doing so well
    Melissa

    Fused from C2 - sacrum 7/2011

    April 21, 2020- another broken rod surgery

  9. #759
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Thank you all for your responses and encouragement. I just spoke with Shriners appointment people and we will be heading back down to Portland, OR at the end of April as Elias has a one year post op checkup with Dr. Krajbich on April 26th. I am almost positive his xrays will look good and everything will prove to be just fine. It is a bit of a distance to travel and the round trip takes about five days to get back up to Canada and across to Vancouver Island but Shriners treat us really well and it is so good to see the drivers and hospital staff alike, as well as it's great to meet other BC families who journey down on the big cushy bus. I hear they have a brand new bus now and it has wifi. Elias will definitely like that. I spend most of my time chatting with the driver/wife and the other passengers. I can't believe it's been almost a year now since his second surgery/traction. He is doing really really well. I really appreciate all the great advice and support I have received on this forum. Thanks again.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  10. #760
    Join Date
    Jan 2008
    Location
    NC
    Posts
    9,317
    Have a good trip!
    Sharon, mother of identical twin girls with scoliosis

    No island of sanity.

    Question: What do you call alternative medicine that works?
    Answer: Medicine


    "We are all African."

  11. #761
    Join Date
    Jun 2011
    Location
    Southern CA
    Posts
    2,267
    Hope you have a great trip
    Melissa

    Fused from C2 - sacrum 7/2011

    April 21, 2020- another broken rod surgery

  12. #762
    Join Date
    Aug 2004
    Location
    ny
    Posts
    1,805
    Sorry to be chiming in so late, but I am thrilled that Elias is doing so well. His journey (and yours) had been incredible and inspirational. All the best to you and your family going forward.
    mariaf305@yahoo.com
    Mom to David, age 17, braced June 2000 to March 2004
    Vertebral Body Stapling 3/10/04 for 40 degree curve (currently mid 20's)

    https://www.facebook.com/groups/ScoliosisTethering/

    http://pediatricspinefoundation.org/

  13. #763
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Thanks Maria. You and the gang have been a real inspiration to us too. I honestly have no idea what we'd have done without you guys. :-)
    Attached Images Attached Images
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

  14. #764
    Join Date
    Oct 2008
    Location
    Sunshine Coast, Queensland, Australia
    Posts
    3,263
    What Maria said! Look forward to hearing all about it.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

  15. #765
    Join Date
    Nov 2010
    Location
    British Columbia
    Posts
    918
    Quote Originally Posted by jrnyc View Post
    how wonderful for your son! i hope his life does nothing but expand
    in all areas...there is nothing that will stop him now!

    i was just wondering whether you pursued anything with the hospital
    in Canada that had you waiting and waiting...and did not consider
    your son to need emergency care....?
    or did you just decide to look to the future and let it go...?
    everytime i see a post from someone from Canada, i shudder when
    i think of the policies there...of what is and is not an emergency
    in their eyes!
    my sister in Montreal always told me emergencies are taken care of immediately....
    i gotta tell her that they need to reconsider their definition of
    emergency....apparently, if one is breatheing, it is not an emergency....?!!

    best wishes...
    jess
    Hi Jess, no I have not pursued anything with BC Children's Hospital and I'm not even sure what/how to go about it. If anyone has any advice then by all means share and I'll do what I can on my end. Mostly I am just relieved that we were directed to the Shriners and I take every opportunity that I can to direct others to them if they're having difficulties with their own medical system. I have had a lot of people contact me through my blog and they have also had good success with Shriners USA & Canada so that really makes me feel as though I am doing something positive for parents and their kids. I am still very very angry with what happened with us but am moving on but will never forget and will never forgive.
    Son 14 y/o diagnosed January 20th. 2011 with 110* Curve
    Halo Traction & 1st. surgery on March 22nd. 2011
    Spinal Fusion on April 19th. 2011

    Dr. Krajbich @ Shriners Childrens Hospital, Portland Oregon



    http://tinyurl.com/Elias-Before
    http://tinyurl.com/Elias-After

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