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A trivial point in common, is having a low grade fever ever since my surgery of November 22, which I am hoping is attributable to a UTI. I am pretty sure I have one (have had many in ...

What a world of suffering, physical and emotional are in your lines above, Melissa, especially on top of the suffering you've shared in the many pages preceding. I'm so sorry to hear of...

Congratulations, Sally, so glad you're doing well and thanks for catching us up especially for distinguishing between "well" and "perfectly". Sometimes, it can seem it's either/or. ...

And the core inspiration for us all, from your long, nightmarish saga (which nonetheless has so much good news as it unfolds). You couldn't have guessed I am following your story, but indeed I am...

You really cracked me up, Ed - again. I've been working on gratitude, but you sure put that in a new slant !



OK, now I'm going to pull a switcheroo - answer a question with a...

Susan, I loved your posts about "Mandy in surgery" and afterwards. Made me feel I was cared about like the old friends who used to call me Mandy (intending to return to that from Amanda, as I...

I remember you well from my first intensive correspondence here six-seven
years ago. I was inspired by your story especially as we are close in age. Also since you were athletic and positive....

Many thanks for your good wishes, Marianne. Helps a lot!

Many thanks for your congratulations and good wishes in advance of my surgery (especially considering my very last minute announcement! ;) )

I'm thrilled with the straight back too. ...

Thanks for checking in on this thread. I've been meaning to write you and a few other Dr. Schwab pts (befores and afters). If you see this, I'd much appreciate knowing what you were referring...

So here's the continuation. Note (sorry) it's bad news too - couldn't change the title with
edit function.
...

Great advice, Holly. I remember hearing about them early in my search but forgot completely. Especially apt to be handy as this Winter in Central PA promises to be brutal (Mall walking is...

And best wishes for another wondrous circuit around our nearest star!

I somehow felt it was a special day, and now I know why.

Thank you for the gift of YOUR life. It is a gift to so...

In Spring of 2015, I visited Dr. Neuwirth for the second time (the first seven years ago). Yes, he has an assistant operating with him - probably more than one depending on the patient's...

reading your reply above (which I'll now treat myself to).

Sorry for the second half of my update...


There IS bad news, though hopefully it's all either just kvetching (about the rehab joint) - and thus over - or else not serious. 
 One of the main reasons I wanted to go from hospital to...

This is the first I’ve managed to set up my laptop in typing position, hence a long delayed update. 

First, the good news. Most of all , my spine is excitingly straight! After that ...

I read her story afterwards.
Wow!
She's been through so much. How apt that she's receiving her award from the hands of Stephen Hawking.
And still:
" My condition cannot be fixed as it is too...

How fortunate she is to have a beautiful face in a "lookist" society. In this regard her self-exposure is advantaged, as brutal as her pain must be (I can't imagine).

I would not have thought...

Hi everyone,
Just to give you all an update (this is Amanda's son Ted writing in). She spent two hours writing a long reply here the other night when she was able and then accidentally clicked back...

This is Dan posting for Amanda again. She is doing OK, eating more and her digestion is working again. She walked almost to the end of the hall, about thirty feet. Ted and I are sitting in her room...

This is Dan posting for Amanda; Mom is sleeping after another day of slow progress. She walked twice as far today (16 feet!), is starting to eat a little bit, and feels great when she looks in the...

UPDATE FROM TED / DAN (Amanda's Sons):

2:13 PM:
Dr. Schwab is finishing up last bits of the surgery. We will be getting update soon. She's been in there since 7:30 AM—it's about 2 PM now so she's...

UPDATE (posted by Amanda's son's Ted / Dan): Dr. Schwab is finishing up last bits of the surgery. We will be getting update soon. She's been in there since 7:30 AM—it's about 2 PM now so she's been...

Entry for latest ever surgery announcement (late but long!).


I wanted very much to announce this sooner (along with questions - guess you're spared that!), but there was a possibility...