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  1. Thanks!

    Thanks Susie, ConfusedMom, and Maria! I actually live in Louisville, Ky. but I was looking at a list of top hospital's and it named Rush as one of them. We are open to traveling anywhere if insurance...
  2. On the search again....Hospitals and doctors in Chicago?

    Hello! It's been awhile since I've been on the boards...life kinda happened and we've just been waiting things out. So we are back to searching for a great doctor and hospital now. So I was wondering...
  3. Slow to update........

    Well, I am slow to update.....we did go see Dr. Samdani but he would not operate on her because of her heart condition...shriners doesn't have a full cardiac team to support a surgery on someone with...
  4. Sierra's trip to see Dr. Samdami

    Sorry I haven't updated anyone, I didn't have internet access. As suspected Sierra has Khyphosis and Lordosis. The doctor said that with her heart condition it would be a risky surgery and would...
  5. thanks Sharon! I did start looking for revision...

    thanks Sharon! I did start looking for revision specialists and there seem to be alot out there! Is there anyone you specifically recommend?
  6. I guess I've never heard of a revision specialist? Update on Appointment also.

    Hey Sharon,

    What is the difference between a revision doctor and a regular spine doctor, are they neurosurgeons or orthopedic surgeons? I guess I am new to all of this. I am very disappointed....
  7. I'm sorry I have not replied before now, I have...

    I'm sorry I have not replied before now, I have been so busy. Thank you for info I will check it out once I am done here. I did get a couple emails from Janet recently. I felt real assured until just...
  8. Hi Gayle!

    Hi Gayle, Yes, we are really excited! Do you live in PA? Thank you for letting me know about the neighborhood, I was on some site and they were talking about how wonderful and safe it was there so...
  9. Hi Kennedy

    Thank you for letting me know! What have you had to have done? How old are you now?
  10. Hi Robin!

    Thank you!! I'm glad Samuel isn't in pain!! They say kids adjust to pain much easier than we do, I am glad for their sake. I will call my sister tomorrow and see if it was the same Dr. Campbell who...
  11. Dr. Amer Samdani - Would love to know more info on him and the Philly Shriner's hosp.

    Hello!

    My daughter has an appointment with Dr. Amer Samdani at Shriner's Philly just wondering if anyone could give me some info about him. What's it like going to your first visit, about how...
  12. Well, what do ya know..... Sierra got in:) Yeah!!!!!

    Good Day Everyone....It has been a great one for us!!

    Just got the call awhile ago from Shriner's, Sierra has an appointment on Dec. 15th, with Dr. Samdani at the Philidelpia, PA. location. We...
  13. Thanks for the info!

    Hi Jess,

    Thank you for the info, I got every record I could get my hands on and even took pictures of my daughter's back before I shipped the couple pound envelope
    off. I had been keeping some...
  14. Hi!!

    I'm so sorry to hear about your son, this is not a fun journey so my heart is with you. What is his name? I will keep him in my prayers. I personally have not met Dr. Campbell but he did do my...
  15. Thanks Gayle, I did email her so we will see what...

    Thanks Gayle, I did email her so we will see what happens! She was denied by St. Louis which happen to be the closest for us.
  16. Sorry It took so long to reply.

    I am so sorry it took me so long to reply my life just turned upside down...of course when it rains, it pours and then life goes on again. As far as all of your
    comments let me say thank you for...
  17. Hello, She was 14 when she had her 2 first...

    Hello, She was 14 when she had her 2 first surgeries and then she had her 3rd one the very next year. She has had 3 open heart surgeries as well which I have
    heard can cause the spine to turn as...
  18. Thank you all!

    I cannot tell you all how I appreciate the great information. I did call Dr. Lenke's office today and he does not go to Shriners any longer, they suggested Dr. Bridwell who actually taught Dr. Lenke....
  19. New here & just trying to figure out what the best options are for my daughter. Help

    Hi thank you for reading this. My daughter had her first two spine surgeries in 2008 done by Dr. John Johnson in Louisville, ky. I did not like him from day one but my daughter's Pediatrician said he...
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