Search:

Sorry I wasn't very clear. I am not worried about getting services. I was just wondering what worked as far as getting your kids caught back up. Did you do tutoring at your home after say week 3...

My daughter is scheduled for fusion in January.
I am about to meet with the school to plan for a tutor, etc.
Does anyone have any good suggestions as to how you set up tutoring, etc.?
She is a...

Thank you everyone for taking time to post your stories. Still hoping to hear from someone that has been fused to L-4 and whether they were able to dance and ride horses.

Ann R.

I am hoping others will add to this thread.

It looks like fusion is in my daughter's future. Most likely T-4 to L-4. Would like to hear more about how people are doing who had fusion as a teen...

Tina,

My daughter began wearing the spinecor brace when she was 6 (a very small 6 year old). She could not do the snaps at first, and she did need to wear it to school right away, so she just...

Jill,

We needed to get a new card for some reason in September. We just went to the registration room on the 1st floor and they issued us a new one. I'm assuming it would be the same procedure...

When we have an early appointment in Montreal, we always stay at Ruby Foos. It is a fairly easy drive to the hospital, we can park our own car, the people that work there are really nice. My...

Allie,

I also read your post, but have not heard of dynamic brace pads. Good luck.

Ann R.

Melissa,

Good luck tomorrow with Nicole's surgery. We will be thinking about you.
Ann Rairdon

I'm not very good at posting, but thought I should add something here. My daughter had a cast from September of last year until April. Her curve prior to the cast was in the 40's. In the cast...

Celia,

I'm not sure about this, but I'm wondering if the consent forms were only for those of us from the State's. Maybe because this machine isn't used over here yet?

Ann R.

Deshea and Celia,

When we were in Montreal in April, we were sent to the new x-ray and they discussed us signing a consent, but then they ended up sending us back to the old machine. We didn't...

Christine2,

I don't think the shorts need to be very long. Do you think 3 or 4 inches? I know it's mostly the crotch bands that are causing the problems with my daughter. One of them is really...

Christine2,

I would like to also send a message to Rita at bodysuits.com. I tried www.bodysuits.com, but didn't seem to get to the right place.

My daughter sometimes wears a biketard under...

Dena,

My daughter was diagnosed with scoliosis at 6 months and has worn a brace for years. She is now 8 years old and she is in her second cast. We wish we had known about serial casting when...

Celia,

Congratulations! You must be very proud of your son. He must get his brains from his mom!! :) A celebration is definately in order.

Ann R.

Spencer's Dad,

I just found your message about scoli week March 4-9. Good idea. Keep us posted on the shirts. If my daughter will let me I'll plan to speak at her school as well.

Thanks...

Celia,

I think that the shoe repairman can probably fix the base too. When this happened to Lauren... We did several things. First I did exactly what you did, I changed to the next closest...

MBG

When my daughter was wearing the Boston Brace, she was still able to ride the bus just fine. We did have times when sitting in certain seats were uncomfortable because of the pressure it put...

I just thought I'd add my experience. In the 5 years that my daughter wore a Boston Brace, she only had 2 x-rays that were in brace. The rest were taken out of brace for varying amounts of time...

Pat,


We had to replace the velcro on my daughter's brace. I took it to a friend who can sew. We tried to sew it over the old velcro, but that didn't work, so we eventually just replaced the...

Christine,

I'm so happy all went well at your appointment. Did you get the bodysuits you ordered? We also tried them. I liked them, but my daughter still prefers the spinecor ones, because...

Donna,

My daughter is now 6 and has been wearing a brace for over 5 years. I have always taken it off when she has a fever, then I put it back on her when the fever is down. I've mentioned it...

Alison,

Thanks for responding. I have never met an 18 year old with infantile scoliosis, you are right about that. I am glad to hear that you are doing fine and continue to be active! Last...

Stephanie,

My daughter was also born with scoliosis. She started wearing a brace around 9 months. Her initial curve was a left thoracic curve of 54 degrees. She had a small birthmark on her...