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  1. Replies
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    I also have needed a shoe lift post surgery. As...

    I also have needed a shoe lift post surgery. As an adolescent, my left leg also did not grow as well and wound up shorter and I limped and needed a lift on my left shoe. As my scoliosis grew worse I...
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    Dear Barb, I would like to share with you...

    Dear Barb,

    I would like to share with you that I recently lost over 30 lbs. using the "Take Shape for Life" program using Medifast meals. This has resulted in improved pulmonary function,...
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    10,762

    Congratulations Laura! You must be thrilled. ...

    Congratulations Laura! You must be thrilled. You look absolutely wonderful. What an amazing correction. Thank you for sharing.
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    16,953

    Dear Melissa, I'm sorry you are having so much...

    Dear Melissa, I'm sorry you are having so much stress right now. I think the time before surgery is the hardest and most stressful. It is almost easier when the surgery is behind you and you are...
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    11,352

    When I was in St. Louis for surgery, my nurse...

    When I was in St. Louis for surgery, my nurse told me that Dr. Bridwell trained Dr. Lenke, so he must be the more senior of the two. They both have great credentials.
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    I flew from Los Angeles to St.Louis and back. I...

    I flew from Los Angeles to St.Louis and back. I had new instrumentation from t-1 to L-4. Took a town car (kiosk at baggage dept. at airport) when returning to airport. Had a wheel chair waiting. We...
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    Oh, just adding. I do have shortness of breath on...

    Oh, just adding. I do have shortness of breath on exertion issues now at age 65. Just wanted to give the full picture.
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    Hi, I had two thoracoplasty operations at ages...

    Hi, I had two thoracoplasty operations at ages 39 and 43. The first involved 6-7 ribs and the second 3 ribs on the right side. I had previous fusion without rods at age 17. The surgeon was unable...
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    Hi Trav86, I can share my experience with you. ...

    Hi Trav86, I can share my experience with you. However, each case is different. In my case, modern medical marvels at correction seem to have post dated me. At age 39, I had 7 ribs resected due to...
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    10,122

    I too am claustrophobic with MRI's. I just told...

    I too am claustrophobic with MRI's. I just told myself that if the surgeon was going to spend 6-8 hours operating on my, then my job was to get through the MRI. I closed my eyes before going into...
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    Lynette, One possible idea. Perhaps you can...

    Lynette, One possible idea. Perhaps you can have your internist or primary care physician write a letter to the case management folks at Humana explaining the need for an experienced, specialized...
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    Dear Lisa, I'm very sorry for your frustration...

    Dear Lisa, I'm very sorry for your frustration at this time. However, all may not be lost. A suggestion for you. I had surgery in St. Louis in 6/08. At that time the hospital there was not covered...
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    Deaar mgs, For assistance with driving, I...

    Deaar mgs,

    For assistance with driving, I have been using a swivel cushion in the driver's seat which I bought on Amazon. I'm fused T-1 to sacrum and this cushion is a big help in being able...
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    Hi, I had extensive thoracoplasty in 1983 to...

    Hi, I had extensive thoracoplasty in 1983 to remove a large rib hump and had previously been fused in 1961 with no rods. Cosmetically, the results were very good. Some things could not be...
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    Hi Rita: I think it would be a good idea for...

    Hi Rita: I think it would be a good idea for your doctor to refer you to a pulmonologist and to have pulmonary function studies. Large curves can cause lung restriction and breathing problems which...
  16. Thread: Lenke

    by Wishing
    Replies
    7
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    15,096

    Hotel

    I stay at the Parkway Hotel just across the street from Dr.Lenke's office and the hospital. Phone is (314) 256-7777. They give a special rate for client's visiting doctors and the hospital of...
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    I'm a retired Psychiatric R.N.

    I'm a retired Psychiatric R.N.
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    Yes. Lung and cardiac problems are a reality for...

    Yes. Lung and cardiac problems are a reality for some of us with severe scoliosis. I really wish that the current surgical instrumentation techniques were available when I was an adolescent as I had...
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    Many years ago when I was 15 and was seeking...

    Many years ago when I was 15 and was seeking treatment from a chiropractor, his wife who was working in the office said to me "My you are so brave to go out with your condition. If I had a problem...
  20. Thread: Hi Everyone

    by Wishing
    Replies
    5
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    2,887

    Dear Angela, You may be overdoing it way...

    Dear Angela,

    You may be overdoing it way too much. Your back is still healing. You have such a lovely correction, you need to pamper your back and yourself after all you have been through. ...
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    Dear Lynn, First, I want to congratulate...

    Dear Lynn,

    First, I want to congratulate you on such a wonderful correction. I believe that you did the right thing in having the surgery and am somewhat envious. Apparently having the...
  22. I had extensive thoracoplasty in 1983 with 6 ribs...

    I had extensive thoracoplasty in 1983 with 6 ribs resected on the right side to reduce the thoracic hump and again in l987 had 3 more ribs resected. I had a spinal fusion previously without...
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    I am 6 months post-op with instrumentation from...

    I am 6 months post-op with instrumentation from T-1 to S-1. I feel the hardware frequently. It does not hurt and does not bother me. It feels like I'm sitting back and feeling the vertical rungs on...
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    Hi Gerry, How are you feeling lately? Has...

    Hi Gerry,

    How are you feeling lately? Has your pulmonologist every considered trying you on a Bi-Pap machine at night to help your lungs? It helps give the lungs a rest at night, and pushes...
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    With more and more progression of scoliosis...

    With more and more progression of scoliosis curves comes the problem of lung compromise. With 95 degree high thoracic curve and severe rotation, , I have severe restrictive breathing lung disease...
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