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  1. It is so scary and overwhelming when you are...

    It is so scary and overwhelming when you are facing scoliosis surgery for your child. I found this board so helpful because as mariaf stated we all began as scared parents and have done our best to...
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    Thank you linda for the suggestion to follow with...

    Thank you linda for the suggestion to follow with the pediatrician. He felt the low energy levels was from a combo of the procedure, meds,anesthesia, and anemia. He did blood work and found both...
  3. I have a son with scoliosis also and we had...

    I have a son with scoliosis also and we had several opinions none of them asked us to get an MRI done. I think maybe because the kind of curve he had was typical of AIS. One surgeon said he would do...
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    Thank you I think I will call the pediatrician I...

    Thank you I think I will call the pediatrician I wasn't even sure which doctor to follow up with. I really was thinking that it seemed unusual for a kid to be this tired even though I know it takes...
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    Low energy levels post op

    Ok, we are almost three weeks post op and my son seems to have almost no energy. Most of the day he is in bed he gets up a bit to walk around the house but finds it completely draining. He did have...
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    Thanks we are on an antibiotic and hoping this...

    Thanks we are on an antibiotic and hoping this will not cause any hardware problems. I just need to say this board has been a lifesaver. Our surgeons office gives very little information about what...
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    Post op infection

    It has been a week and a half since surgery and now it seems my son has developed a uti. Does anyone have experience with this? I am concerned about the risk of hardware infection. Also wanted to...
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    Surgery was Monday. Thanks so much for your...

    Surgery was Monday. Thanks so much for your thoughts. It went well but evidently my son lost more blood than is usual for teens so he has been pretty weak. They sent us home anyway(i think a little...
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    Thanks everyone. Just finding that I am worrying...

    Thanks everyone. Just finding that I am worrying about every detail and I had seen something about post surgical clot risk and it stated something about blood thinning meds. Wanted to be informed so...
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    Post surgery dvt prevention

    We are headed in for surgery this week and I wanted to know if anyone knows if it is standard practice to put teens in any blood thinning meds to prevent clots following surgery?
  11. One of our opinions also suggested bracing our...

    One of our opinions also suggested bracing our son when he was measuring 55 degrees but said it would most likely only buy him time and might have a very small chance of pushing him into the gray...
  12. We asked that question of many doctors and were...

    We asked that question of many doctors and were given the same answer you were given. They all said most of the remaining growth takes place in neck and legs. Also any remaining growth in his spine...
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    What great news! I am so happy that you sought...

    What great news! I am so happy that you sought out extra opinions! You must be so relieved. Even though this isn't easy it will be better to have peace of mind knowing you are doing the right thing...
  14. Thread: Fusion levels

    by tkare
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    It is great that you have appointments lined up...

    It is great that you have appointments lined up so you can get opinions and make the best decision. We realized that with all of the opinions we sought out, only one doctor told us which levels he...
  15. Thread: Fusion levels

    by tkare
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    Thanks Pooka. Wow a lot to figure in. Kind of...

    Thanks Pooka. Wow a lot to figure in. Kind of tricky when two trusted surgeons offer different opinions on fusion levels. It will be a question we ask at the pre op for sure.
  16. Thread: Fusion levels

    by tkare
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    Fusion levels

    I was wondering how to make sense of differing opinions on fusion levels. What would be long term problems with fusion too little versus too much? Also, would the difference be more important
    In the...
  17. Do you know if results from the BrAIST study have...

    Do you know if results from the BrAIST study have been posted or when thy are expected to? I am curious what the results of the study were.
  18. Our stories sound very similar, when my son was...

    Our stories sound very similar, when my son was first diagnosed we were not at all expecting to hear he needed surgery. We have learned a lot about scoliosis in the past few months. My best advice is...
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    Mariaf, thank you so much. I had read about...

    Mariaf, thank you so much. I had read about teathering but was under the impression that he was outside of the range where that could be considered. I will check into it. I do honestly think that...
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    flerc, the three Schroth method providers made it...

    flerc, the three Schroth method providers made it very clear to me that because of his curve magnitude, with bracing and very hard work, he might have hopes of holding progression, but it would take...
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    Thank you everyone for your input. I was hoping I...

    Thank you everyone for your input. I was hoping I could get some information from others about this because my so wasn't willing to take my word for it that this is unproven and highly unlikely to...
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    Scoliosis Boot Camp

    I am hoping someone here can help me. My sons scheduled surgery is rapidly approaching, and he has frantically begun to do his own research on alternative treatments. He came up with Scoliosis boot...
  23. "We havenít set anything in motion yet as far as...

    "We havenít set anything in motion yet as far as surgery. Iíve been doing tons of reading and research Ė itís been kind of like cramming for a final in a college class I didnít really want to take!...
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    Thanks for the input! We seem to be hearing the...

    Thanks for the input! We seem to be hearing the same things and are learning of many people who have had this surgery with him.
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    Wow, really interesting info, I guess you are...

    Wow, really interesting info, I guess you are right, there is so much new technology, it can make you crazy! I will have to pick the best surgeon and trust him then!
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