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  1. Replies
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    Ryy My daughter is fused T2-L4. She also had a...

    Ryy
    My daughter is fused T2-L4. She also had a curve similar to yours..81 degree kyphosis curve, 21 degree scoliosis curve. Her doctor said something that put it all in perspective...she will hate...
  2. Thread: Jan's Update

    by Hannamom
    Replies
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    3,175

    I hope you and Jan are able to get some rest...

    I hope you and Jan are able to get some rest tonight. My daughter's fusion was almost as long as Jans. She is T2-L4. The recovery is long but you really have to just take it one day at a...
  3. Twinsmom That sounds like a good plan. I...

    Twinsmom

    That sounds like a good plan. I hope you both have a nice weekend. Keep us posted on progress!


    Ann
  4. Twinsmom You have been through a lot with...

    Twinsmom

    You have been through a lot with your daughter. I have been a registered nurse for over 20 years. If you have a concern, don't hesitate to contact your doctor...that is what they are...
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    KsMom My 13 year old daughter had surgery...

    KsMom

    My 13 year old daughter had surgery last July 13, 2009 for an 81 degree kyphosis curve. She was fused T2 to L4. We really didn't have a choice about the surgery. The doctor recommended...
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    Trav86 My daughter had surgery with Dr....

    Trav86

    My daughter had surgery with Dr. Vitale's partner, Dr. Roye last summer. Morgan Stanley Children's Hospital is an excellent hospital. Everyone that works there is so kind and helpful. ...
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    Sharon I enjoy Dr. Hey's blog also. He's so...

    Sharon

    I enjoy Dr. Hey's blog also. He's so upbeat and positive! I can't understand how he does these surgeries so quickly. And he drives his patients to the airport!

    Ann
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    John Hope you got a little rest last night. ...

    John

    Hope you got a little rest last night.
    Carnation instant breakfast drinks went down very easy after surgery...and for some strange reason pound cake was a big hit too.


    Ann
  9. Replies
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    I got one of those cheap resin patio chairs and...

    I got one of those cheap resin patio chairs and put it in the shower. It just fits in a tub. Much cheaper than a shower stool. My neighbor put in a removable shower head, so it made taking a...
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    Debbe is right! The breakthrough for my daughter...

    Debbe is right! The breakthrough for my daughter was 3 1/2 weeks. It wasn't until 6 weeks out we made a trip to the diner.

    John, sounds like you are having a very off day. Tomorrow will be...
  11. Replies
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    John The sweating is from the heavy duty...

    John

    The sweating is from the heavy duty narcotics you're taking and have taken. My daughter would wake up soaked. I had to change her sheets every day for nearly 3 weeks!
    Low temps under...
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    JDM555 I know it was a disappointment to have...

    JDM555

    I know it was a disappointment to have your surgery put off...I'm sorry that happened to you. You are in my thoughts and prayers and will be on the other side of this soon. Ann
    ...
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    Deb, That is great news! Glad you are back...

    Deb,

    That is great news! Glad you are back to work and doing so well.

    Hannamom
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    Jennifer My 13 year old daughter thinks her...

    Jennifer

    My 13 year old daughter thinks her scar is "totally cool". My husband says her back is so flat and straight...he could filet a fish on it!!

    Hannamom
  15. I agree, 1 year is too long to wait between...

    I agree, 1 year is too long to wait between xrays. I made this mistake with my daughter. We were seeing an ortho in northern nj, very well known. He kept telling us everything was fine..the pain...
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    Coldbricks My 13 year old daughter had...

    Coldbricks

    My 13 year old daughter had surgery this summer in NYC for severe kyphosis, most likely Scheurmanns. She had an 81 degree kyphosis curve and was in daily pain. Dr. David P Roye did...
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    Barbara and Julia We found a sense of calm...

    Barbara and Julia

    We found a sense of calm before the surgery. My good thoughts are with you. Looking forward to some post op updates...

    Hannamom
  18. What ever happened to Amin? He last posted in...

    What ever happened to Amin? He last posted in 2005. He'd be 20 years old now.
  19. Replies
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    Loris That is great that you can walk for 30...

    Loris

    That is great that you can walk for 30 minutes and only 10 days post op.

    As long as you are not uncomfortable, the BM will probably come soon. It took my daughter 2 weeks.

    I...
  20. Thread: July people

    by Hannamom
    Replies
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    3,434

    Thanks Deanna, for the kind words. My daughters...

    Thanks Deanna, for the kind words. My daughters doctor said it will be a year before she forgives me...to me that means it is going to take time. He also said that in a year, her back won't be an...
  21. Thread: July people

    by Hannamom
    Replies
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    3,434

    My 13 year old daughter is a July surgery...

    My 13 year old daughter is a July surgery patient. She was fused T2-L4. She has had a difficult recovery. She has nerve damage in her right thigh and is walking with a cane. She goes to PT twice...
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    Hi Liz It sounds like your daughter is...

    Hi Liz


    It sounds like your daughter is doing very well going back after only 20 days. My daughter had surgery July 20th, T2-L4. Her recovery has been long. A nerve was compressed in her upper...
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    Sharon I don't believe they had monitoring...

    Sharon


    I don't believe they had monitoring on her head for a nerve problem. In PT they have just started electrical stimulation of the area. So I'm hoping that will speed it along. I have...
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    My daughter is in PT right now. A nerve in her...

    My daughter is in PT right now. A nerve in her thigh (lateral femoral cutaneous nerve) was compressed during surgery. Her thigh, leg, has numbness and weakness. The surgeon feels that it will...
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    DairriensMom My daughter looks like a...

    DairriensMom

    My daughter looks like a different person after her surgery. When she got home from the hospital she would do a double take in the mirror. She just didn't look like herself...
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