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  1. Replies
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    Before my daughter had to have her MRI she was...

    Before my daughter had to have her MRI she was having a complete meltdown. I was able to get her into see her primary care physician and he helped calm her fears.

    As for valium, they'll likely...
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    I'm sure she's ok but just to be safe I'd take...

    I'm sure she's ok but just to be safe I'd take her to her MD and have her checked out.

    The thing we were warned most about for the year of recovery is to avoid any sharp jarring motions. I'm...
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    Cheyenne's first day back at school was rough on...

    Cheyenne's first day back at school was rough on her but she made it through the full day! She came home, ate dinner and immediately fell asleep.

    She said that everyone couldn't believe how tall...
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    Jen: Try not to dread it too much. You can read...

    Jen: Try not to dread it too much. You can read my post about the experiences I had while my daughter was in the hospital for her surgery to see what possible scenarios you may be facing.

    If you...
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    The rotation could be the culprit in regards to...

    The rotation could be the culprit in regards to her pain. My daughter's surgical report showed that the rotation was their biggest obstacle.

    It's good to hear that her curves haven't progressed. ...
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    Chey is feeling much better today. I have an...

    Chey is feeling much better today. I have an appt scheduled with her primary care physician for this Friday to get the go ahead for her to go back to school next week.

    For those of you with...
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    55,133

    Fingers Crossed: Did you have it checked out by...

    Fingers Crossed: Did you have it checked out by a MD to see what was causing the pain?

    I still think it's the muscle readjusting. Alas, they did not send us home with an valium, and even if they...
  8. Replies
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    Chey's complaining of a sharp stabbing pain in...

    Chey's complaining of a sharp stabbing pain in one of her shoulders. I'm making an appt to see her primary care physician tomorrow but I was wondering if anyone had any thoughts on this?

    She...
  9. Replies
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    One of the reasons I wrote that is because of one...

    One of the reasons I wrote that is because of one family that we met during our hospital stay. They were from Vancouver, Canada.

    I asked why they had come all the way to SLC when there had to...
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    I disagree. My daughter was having frequent...

    I disagree. My daughter was having frequent headaches.

    Her pediatrician explained her pain (at only a 36 degree curve when first diagnosed) as being related to the nerves that run down your...
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    klmoon: If you have someone willing to sponsor...

    klmoon: If you have someone willing to sponsor your daughter through the Shriners Hospitals, I would definitely go that route. However, I wouldn't wait until October to reach out to them. They...
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    Klmoon: You're in the exact same boat I was last...

    Klmoon: You're in the exact same boat I was last November when my 14 yo daughter was diagnosed. Her curves were about the same as your daughter's and she was also in a lot of pain. That's what...
  13. Replies
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    rosa: One of the requirements for Chey to be...

    rosa: One of the requirements for Chey to be discharged was that she would have to be able to do stairs (we don't have any). Her PT at the hospital took her to one of the fire stairways and had her...
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    We have this type of bandaging: ...

    We have this type of bandaging: http://i5.photobucket.com/albums/y153/ihatearizona/th_CheyBackTapeandStitches82810.jpg

    I had her try on a pair of pants she had bought prior to her surgery and...
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    We really didn't need anything once she was home....

    We really didn't need anything once she was home. I was terrified of leaving the hospital as I didn't have the upper body strength to roll her from side to side like the nurses were every 2 hours. ...
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    rosa: Considering your daughter's degrees of...

    rosa: Considering your daughter's degrees of curvature, (this is just my personal opinion because I'm not an MD), I think she has to have the surgery. She's well beyond bracing. There are some...
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    rosa: If it weren't for this website I would...

    rosa: If it weren't for this website I would haven't been prepared for what we just went through/are still going through.

    I read your other post and if those fusion numbers are correct + it being...
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    My daughter's surgeon has her down to be out of...

    My daughter's surgeon has her down to be out of school between 6-8 weeks.

    Since your daughter is a bit older and has curves that are more severe than what my daughter's were you may be looking at...
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    Chris43: I asked the hospital staff this exact...

    Chris43: I asked the hospital staff this exact same question while we were there. They said they had recently done a fusion on a girl that was 300 lbs.

    But, I agree with your assessment as the...
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    Lol. Hubby's side of the family is German &...

    Lol. Hubby's side of the family is German & Ukrainian. Mine is British & Irish.
  21. Thread: Bad news

    by Gryffindor
    Replies
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    8,330

    Don't be afraid to ask for a second or even third...

    Don't be afraid to ask for a second or even third opinion if you're concerned. ALL of the parents I spoke with during our hospital stay had done this.

    Isn't 11 very young for a boy to be getting...
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    Interesting. My daughter's great-grandfather...

    Interesting. My daughter's great-grandfather came to the USA directly from Germany in-between WWI and WWII.
  23. Replies
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    She was definitely interested in seeing them. In...

    She was definitely interested in seeing them. In fact, she's the one holding the bag and taking the photo with her phone. This was just an hour or so before we were leaving for home.

    The only...
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    After Surgery Photos: (there's really nothing...

    After Surgery Photos: (there's really nothing gory in these)

    After Surgery X-ray:
    http://i5.photobucket.com/albums/y153/ihatearizona/xrayPostSurgerySTRAIGHTSPINE.jpg

    After surgery side x-ray:...
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    RMD House photos: The room. Note there are no...

    RMD House photos:

    The room. Note there are no TV's in their rooms.
    http://i5.photobucket.com/albums/y153/ihatearizona/RMDroom.jpg

    The outside of the RMD House:...
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