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  1. Replies
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    When my daughter's pediatrician first diagnosed...

    When my daughter's pediatrician first diagnosed her, I checked around a lot for a good ortho. The two that I finally decided on were Dr Sponseller at Hopkins and Dr Betz at Shrinners in Phila. Saw...
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    You should probably talk to surgeons at both. My...

    You should probably talk to surgeons at both. My daughter was recently operated on by Dr Sponseller at Hopkins and no complaints so far. I would recommend that you make an appointment with him.
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    A 2 day hospital stay seems a little short. 4 or...

    A 2 day hospital stay seems a little short. 4 or 5 days seems to be the norm
  4. Replies
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    As with any major surgery, if you haven't gone...

    As with any major surgery, if you haven't gone for a second opinion yet, do it soon.
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    There is a Ronald McDonald House across from...

    There is a Ronald McDonald House across from Shriners in Phila. where parents can stay during surgery and the during the next few nights during recovery. I dont believe there is any cost, you can...
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    I assume from your post that there is a...

    I assume from your post that there is a noticeable difference between where she used them and where she didn't?
    What brand did she use?
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    How bad is the scaring from surgery?

    My daughter is scheduled for surgery using the posterior open approach. I know there are more important considerations and that it has to be done but it is still an important concern.
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    Generally a brace should be worn until the wearer...

    Generally a brace should be worn until the wearer stops growing.
  9. Thread: TriaC Brace

    by Bamaro
    Replies
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    7,229

    FYI:...

    FYI:
    http://www.technologyinmotion.com/flash/back/triac.htm
  10. Thread: TriaC Brace

    by Bamaro
    Replies
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    7,229

    I looked into the Triac when it first looked like...

    I looked into the Triac when it first looked like my daughter would need bracing. Triac (and Spinecor) looked like good alternatives (to me) to rigid TLSOs but the 5 Docs that I mentioned this to...
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    Overstock.com sells them and you can find a bunch...

    Overstock.com sells them and you can find a bunch of places if you google 'memory foam topper'
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    I've been to the one in Phila. They have an...

    I've been to the one in Phila. They have an excellent scoliosis doc there, Dr Betz.
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    You might also use a 2" - 4 " memory foam...

    You might also use a 2" - 4 " memory foam mattress topper.
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    Went through some of the same issues with my...

    Went through some of the same issues with my daughter. Different docs came up with different measurements between 20 & 25deg. The more experienced docs measured higher so we went with bracing. All...
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    There are the same concerns with my 12 year old...

    There are the same concerns with my 12 year old daughter. One doc noticed some marfan tendencies - foot reflex test, long fingers that could wrap around wrist, somewhat high palet etc. Had tests done...
  16. What makes you say this?

    What makes you say this?
  17. Replies
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    This goal of a 50% correction - how long do you...

    This goal of a 50% correction - how long do you need to wear a brace before you begin to see a correction this size?
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    I wish I knew what to tell you. My daughter will...

    I wish I knew what to tell you. My daughter will be going away for a few days with her friends family so I will be facing a similar situation but, even though she doesn't like her brace and it itches...
  19. Thread: Spinecor Brace

    by Bamaro
    Replies
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    5,691

    I could not find a doctor locally who would...

    I could not find a doctor locally who would recommend a Spinecor. I agree that it should be much more comfortable to wear but the local Docs didn't like what they had read about its effacy. Spinecor...
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    I would be surprised if she only wears the brace...

    I would be surprised if she only wears the brace for one year. I have been told that it should be worn until the child stops growing.
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    It seems like scoliosis is a kind of catch 22....

    It seems like scoliosis is a kind of catch 22. The earlier that you brace the better (stop it small) BUT, there is a good chance that a small curve might stop progressing on its own without bracing...
  22. There is no substitute for having your own...

    There is no substitute for having your own pediatrician check for it. IMO, if he/she misses it, its time to get a new one. As far as nurses in school goes I guess results will vary. My daughter was...
  23. Thread: Dr. Randal Betz

    by Bamaro
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    From what I have heard he is one of the best. My...

    From what I have heard he is one of the best. My daughter has an appointment with him this month.
    Good luck
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    Kelly, why do you feel it is important for...

    Kelly, why do you feel it is important for 'exact' measurements. Once fitted for a brace, what different would be done if a curve for example measured 28deg rather than 25deg? Is exactness worth the...
  25. I just found out about this myself (and also...

    I just found out about this myself (and also something called the Quantec System) but the Ortelius is not yet widely used and I haven't been able to find anyone who used the Quantec. The closest...
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