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  1. Hi there! I just hopped on the forum for a few...

    Hi there! I just hopped on the forum for a few minutes. I do not have time to read the prev 3 pages, but here are some of my suggestions:

    - Keep a spiral notebook and pen on your bedside stand...
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    Hey, hey there Jackie! Funny that you should...

    Hey, hey there Jackie! Funny that you should mention hip problems. My R leg has been weak and sometimes numb and I blamed it on my spine problems. I had an appt with my Physiatrist who ordered hip...
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    Partial T4,5 Paraplegia

    Greetings to everyone. I occasionally read this Forum and somewhat strange that I read it tonight and the topic is "things that go bump in the dark". I am fused from T2 to sacrum. My original 2 day...
  4. Hope you find relief! If it is a relatively...

    Hope you find relief! If it is a relatively small area Lidocaine patches work well. Diclofenac 1% and CBD gel works well. I take Baclofen [which is the daughter of another mother] for spasms from...
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    What levels of fusion are planned? Susan

    What levels of fusion are planned?
    Susan
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    She's ba-a-c-k!

    I had surgery to remove the T1 pedicle screw and a short rod. Spent one night in the hospital and 4 days on narcotics. I used to have a creepy lump in my T1 area where the rod ended. Now....it is...
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    Hi there Jackie! Sending healing messages your...

    Hi there Jackie! Sending healing messages your way! Have you tried Diclofenac 1% gel and CBD gel to affected areas? It helps my thoracic area.
    Hope that you can enjoiy summer!
    Susan
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    Now on the other side of the revision. Postop...

    Now on the other side of the revision. Postop pain ×5 days, constipation and nausea x 4 days [in spite of an arsenal of laxatives, fiber, etc], Awaiting T1 culture results. Unsure if surgery helped...
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    Jackie, thanks for your support. I am really...

    Jackie, thanks for your support. I am really tired of being in pain.
    Susan
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    He figured that he was sharing the stress. Susan

    He figured that he was sharing the stress.
    Susan
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    Ed, I do not use oxygen. I was diagnosed with...

    Ed,
    I do not use oxygen.
    I was diagnosed with P.Acnes bacterial infection in 2015 and take Keflex 500 bid.
    I have had 4 episodes of 10 pain in my 74 years. The first was in natural childbirth...
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    I am scheduled for May 20th in Seattle. Dr. Hart...

    I am scheduled for May 20th in Seattle. Dr. Hart said that I need to either spend the night at Swedish Hospital or in a nearby hotel. Mark and I plan to go up to Seattle on Monday afternoon and have...
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    The lucency appeared at about 6 months after the...

    The lucency appeared at about 6 months after the 2015 surgery. First we "watched" it for a while, then I had an Inter-Stim replacement and reverse shoulder replacement. Covid caused further delay. ...
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    Hi there Linda. Which part is probably true? If...

    Hi there Linda. Which part is probably true? If it is that the screw with lucency gradually wears down the area around that the screw, it makes sense that the lucent screw causes minimal frequent...
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    Left side T1 lucency

    Hey there! I have a recurrent T1 lucency and my scoliosis surgeon wants to remove the pedicle screw [and ?? maybe one of my 5 rods?] at T1. He said that with time that the vertebrae ??? gets worn...
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    Jackie: I queried the group about SCS and did not...

    Jackie: I queried the group about SCS and did not receive positive info. I am looking at having a SCS in the future. The neurosurgeon that I saw said that it would be difficult with all of the scar...
  17. Hi there Ginny Annie! I had adult degenerative...

    Hi there Ginny Annie! I had adult degenerative scoliosis and kyphosis. I have a huge forum posting thread in which I detailed the last 8 years. Bottom line: I was an a lot of pain when I decided...
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    Hi there! Hopefully your recovery will just take...

    Hi there! Hopefully your recovery will just take more time.

    I have a all spine CT myelogram in 2 weeks with dye entry via cervical route. I had 2 "tries" on lumbar entry but too much scar tissue....
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    Ed, There is a plastic-ruler-kind-of-thing that...

    Ed, There is a plastic-ruler-kind-of-thing that came with my Diclofenac. I used it initially, but now my husband knows about how much to use. Yes, the plastic card seems kind of funky, but...
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    Jackie, The thought that reoccurs in my...

    Jackie, The thought that reoccurs in my brain...when do I decide that enough is enough. Like you, I am not there yet. I talked with Dr. Hart's surgical scheduler today in Seattle and expressed my...
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    Hey there, Jackie! I saw a neurosurgeon about...

    Hey there, Jackie! I saw a neurosurgeon about have a SCS implanted. He said that for me there was no "trial" because the implantation itself required surgery, so might as well just do the surgery to...
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    Are your ducks in a row?

    Scared....surely, your mother gave you another name....I would wonder why your doctor "kept emphasizing the risks". Were you questioning her/him? I saw 2 spine surgeons before my first surgery. ...
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    Hi there, Scared, Our lives are somewhat parallel...

    Hi there, Scared, Our lives are somewhat parallel as I also have [had] Adult Degenerative Scoliosis and I had my surgery when I was ???67??? give or take. Our curves are similar. I found that my...
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    So glad that I got in under the wire for elective...

    So glad that I got in under the wire for elective procedure on my shoulder. Originally I was going to be up in Seattle having my T1 screw and one rod removed, but now I am certain that there is a...
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    "We are not owed our dreams"

    To Jackie, Kathy, and Ed: Thanks for your supportive comments. I have minimal pain from the shoulder replacement, but other aches/pains continue. Such is my life. I saw the quote above in Time...
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