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  1. Replies
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    I am now down to 2 weeks before scapulothorasic...

    I am now down to 2 weeks before scapulothorasic fusion. This is new to me and I'm not sure what to expect. The little info that Ed sent is valuable.
    I know what to expect with spine and there is a...
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    Yes you are correct. I am sure that a surgeon...

    Yes you are correct. I am sure that a surgeon would not take the bone from the hip as you say. I think sometimes I just get confused between the hip and the pelvis.
    But this surgeon will be taking...
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    I watched the video. She seems to do OK. I know...

    I watched the video. She seems to do OK. I know this surgeon plans on doing the graft from my hip.
    I never had that done with the spine but they used some of the bone that was removed, and cadaver...
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    I forgot to add that the neurosurgeon keeps...

    I forgot to add that the neurosurgeon keeps saying that my body size complicates things. Not a lot of muscle or body fat and very small bones. That is just what we have to work with.
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    Yes the skin under the brace has to be closely...

    Yes the skin under the brace has to be closely watched. I have some white men's t shirts for that. If they have to cut part of them it isn't a big deal. Remember I cannot duck at all due to the...
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    The problem with the brace is that nothing but a...

    The problem with the brace is that nothing but a blanket or tent will fit over it so anything I have for clothes hard to fit under it.
    I understand that it will take 2 people to change my clothes...
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    You are right Ed. Most of my surgeries have been...

    You are right Ed. Most of my surgeries have been in the fall. Last year it was October 30. My thoughts were I would be a fright and ready for Halloween. We have to have humor some where.
    I'm in...
  8. Replies
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    The young lady has managed well. I know I cannot...

    The young lady has managed well. I know I cannot do as she did. First of all I have 2 arms and I am used to that.
    I still think it will be a challenge.
  9. Replies
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    I am on count down to the next big surgery....

    I am on count down to the next big surgery. November 9 is the date. I spoke again to the surgeon, expressed I was a little nervous about this scapulothorasic fusion. I said I knew how to do spine...
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    Maybe you can try a different hospital to do the...

    Maybe you can try a different hospital to do the test. You can request a disc and bring it to your surgeon.
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    Yes I have had a myelogram prior to surgery. It...

    Yes I have had a myelogram prior to surgery. It isn't the most comfortable . It did provide my surgeon valuable information. The CT is just part of it and that is easy.
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    You are correct Linda. The spine is so complex...

    You are correct Linda. The spine is so complex and so much depends on it.
    We can put it in a way as so many things are difficult to deal with-- just choose.
    I may have missed any discussion on the...
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    Today I will have another appointment for a...

    Today I will have another appointment for a discussion of the scapulothorasic fusion in November. I have the brace to bring to the appointment to make sure it is correct. There was a difficult time...
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    I want to say welcome to the forum. I am not...

    I want to say welcome to the forum. I am not familiar with your implants. I would say as far as exercise do anything you can do compfortly. You have healed a long time ago. I'm not sure if at a young...
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    Good to hear from you Melissa. It sounds like...

    Good to hear from you Melissa. It sounds like things are going well.
    I am fused almost like you. I think you have to determine which leg has more mobility. Mine are not the same. For me, I...
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    Sounds like you are doing really well. Keep...

    Sounds like you are doing really well. Keep walking but no falling. It gets easier with time and you already know there will be ups and downs.
    And then one day it will not feel so new any more. It...
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    Removal is fairly easy. Depending on the amount I...

    Removal is fairly easy. Depending on the amount I would say 4-6 weeks. If you don't have to have removal, it is better to leave it.
  18. You are so right about the help here. It is the...

    You are so right about the help here. It is the best. We are here to answer questions from the patients that have gone through some amazing stuff.
    A question that I would ask your surgeon would be...
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    Sorry about your neck problem. Sometimes we have...

    Sorry about your neck problem. Sometimes we have to ask ourselves if it will ever just be a normal time.

    I think wearing the brace is going to be difficult. It fits tight and keeps the arm away...
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    I am glad you got some relief. It will be a...

    I am glad you got some relief. It will be a battle to keep the improvement. I guess just like any other battle on this journey.
    And of course , on this day of special remembrance of the 9/11. A day...
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    Yes the current wound is right on top of the...

    Yes the current wound is right on top of the original non healing wound. It bled in July but that area got so itchy that I scratched at it. It was checked by a nurse practitioner, small covering and...
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    Hi Ed, I hope you are feeling better. Anything...

    Hi Ed, I hope you are feeling better. Anything near the head is so much trauma. You speak of the C1 area. My daughter in law's sister has a son with Downs Syndrome. About 4 years ago he had to have...
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    I forgot to mention that I will be fit for the...

    I forgot to mention that I will be fit for the brace for this upcoming Tuesday. It is called a gunslinger brace. At least it has a strange name.
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    No my new xrays will not post. On some rainy day...

    No my new xrays will not post. On some rainy day I will try to shrink them so it will allow me to post them.
    Now they are very interesting. In the October 30 th surgery, the neurosurgeon took out...
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    Hi Ed, first of all to everyone stay safe. Such a...

    Hi Ed, first of all to everyone stay safe. Such a challenging time on so many things.
    Scoliosis has led me into directions I never saw coming. It has been a challenge for sure. Fortunately I have...
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