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  1. Awwwwwww....so nice to know people are thinking...

    Awwwwwww....so nice to know people are thinking of me and Tahlia. I've only just logged in today after several weeks away, so good timing I think.

    Yes, things are okay. Tahlia had an appt with...
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    Thanks Everyone

    Carmel, Tahlia noticed improved breathing within the first few weeks. She no longer wheezes when she walks, so we're very happy about that.

    Marian, reading your reply almost made me cry. Yes, it...
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    Post-Op Appt with Surgeon

    Hi Everyone :)
    Kitty here. Tahlia had her first post-op appt with the surgeon this morning and all looks good. The surgeon is very happy and so are we. Tahlia still has to wear her brace for...
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    Hi MJB My daughter was braced for about 3...

    Hi MJB

    My daughter was braced for about 3 years before she eventually had surgery back in November last year. She is now again in the brace until her correction has stabilised and she is out of...
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    I worry about Tahlia tripping all the time. I am...

    I worry about Tahlia tripping all the time. I am worried she'll jolt her spine and the screw will come loose. Although, my main concern with Tahlia I think is UTIs. She had quite a few prior to...
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    Hi there Mary Ellen, How wonderful it was to...

    Hi there Mary Ellen,
    How wonderful it was to read that Sidney is walking so far everyday. It never ceases to amaze me how much and how quickly our kids recover and what they can do now, considering...
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    Mary Lou, Thank you so much for your response. ...

    Mary Lou,
    Thank you so much for your response. It has given me a lot to think about and I will probably refer back to your comments often, I think. I too, would not be ready for surgery a 2nd...
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    HI Smiley, Let me reassure you that we have...

    HI Smiley,

    Let me reassure you that we have ALL been there. We have ALL lost it and gotten emotional and broken down and we have ALL been terrified of the unknown. But let me also reassure you...
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    One of the things that frustrates me about this...

    One of the things that frustrates me about this condition is precisely that, Pam. There is nothing you can do - no exercises, no pills, no nothing. It's purely a waiting game and i hate that. And...
  10. Thread: confused

    by Kitty
    Replies
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    LOL! Thanks Marian, it's certainly good to be...

    LOL! Thanks Marian, it's certainly good to be reminded of the importance of perspective. Not that it (using the shower chair) wasn't a legitimate worry of mine, although not now, the responses i have...
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    Hi Justine, I agree with Emily. You might like...

    Hi Justine,
    I agree with Emily. You might like to go see an orthopaedic surgeon. They will monitor your curve, brace if needed and will discuss surgery with you if that's warranted. But you...
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    Spine curvature after surgery

    Hi everyone

    "Happy New Year" :D

    OK, can anyone share their views on curvature of the spine after surgery. I mean, is this possible and can the spine still curve after one has had rods...
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    sharon, that is the site i quoted in my earlier...

    sharon, that is the site i quoted in my earlier post, but they DO NOT explain the inability of the rods to prevent the crankshafting.
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    ?????? Sorry, I still don't understand. It still...

    ?????? Sorry, I still don't understand. It still does not make sense to me that the rods can't hold the spine in place (whterther front, back, side or whatever).

    :confused::confused::confused:
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    Carmel, Thanks for that, but unfortunately I...

    Carmel,
    Thanks for that, but unfortunately I still don't get it :o
    I have had a close look at the spinal cord and it joins front and back, there are no separate segments, so i still don't...
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    I believe this description may help clarify the...

    I believe this description may help clarify the phenomenon of crankshafting, which I copied from iscoliosis.com


    This is what happens when you have a posterior spinal fusion at a young...
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    Sharon, maybe it would be worth asking your...

    Sharon, maybe it would be worth asking your surgeon anyway, perhaps as a hypothetical. You can always play ignorant, pretending you don't know and you've heard this is a possibility whether it's...
  18. Thread: confused

    by Kitty
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    Thanks so much for your replies. They were...

    Thanks so much for your replies. They were really helpful. Patty, it sounds like you have quite a man there ;) I too, stood outside the shower to help if Tahlia needed it. Initially i washed her...
  19. Thread: confused

    by Kitty
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    confused

    Tahlia is now almost 5 weeks post op and improving every day. However, just this morning she said to me she didn't want to give up her shower chair because she doesn't know how to clean her lower...
  20. Thread: Work and Doctors

    by Kitty
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    This is disgraceful. I am guessing you live in...

    This is disgraceful. I am guessing you live in the US (only because most do). If you work in the public sector or for a major private corporation, you should be entitled to sick leave. As a...
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    Am I being overprotective?

    Hi all,

    For those of you who know me, you'll know my 15yo daughter, Tahlia had posterior surgery exactly 4 weeks ago. Well, we're now at a point we're she's starting to want to go out and spend...
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    Hi Geish, I have a question? Why did you have...

    Hi Geish,

    I have a question? Why did you have to wear a brace and how did they determine how long you had to wear it? What benefit did it have and were there any restrictions they placed on you...
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    Hi Jen, that's great news. Hope her recovery is...

    Hi Jen,
    that's great news. Hope her recovery is unremarkable.
    Best wishes to her.

    Lisa
  24. Thread: New Here

    by Kitty
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    Hi claysmom, Welcome to the forum! I would...

    Hi claysmom,

    Welcome to the forum!

    I would not be too concerned about this. There is nothing much they can do for a curve of 9degrees and the ortho would simply monitor it at this stage and...
  25. Thread: Hey WNCmom!

    by Kitty
    Replies
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    Hi Mary Ellen, That's incredible news! I'm so...

    Hi Mary Ellen,
    That's incredible news! I'm so glad to hear Sidney is doing really well. Now if my maths is correct, 1 mile = just over 1 and a half kilometres (or 1600 metres -wow!!!), that's...
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