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  1. Replies
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    How are you doing, Jackie?

    How are you doing, Jackie?
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    Glad to hear some people are doing well. How...

    Glad to hear some people are doing well. How often do you long-timers have checkups with your surgeons (or is it with some other doctor after so many years)?

    It would really help to hear from you...
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    If you stick around you might make new forum...

    If you stick around you might make new forum friends.
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    Jackie, according to his office person, the new...

    Jackie, according to his office person, the new surgeon I'm going to see had been sent "fluoroscopic images from the myelogram" but he hasn't got "the CT myelogram itself" and he wants it. She wrote...
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    Another difficulty. The spine surgeon I'm going...

    Another difficulty. The spine surgeon I'm going to see received my disc with the myelogram images from another hospital and he should also have received a report.

    That's not enough, he wants...
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    Thanks for all the recommendations for doctors....

    Thanks for all the recommendations for doctors. The ones you have mentioned would require long-distance travel for me. I live in an area that other people usually travel to when it comes to medical...
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    What do the negative reviews of Dr. Lenke say...

    What do the negative reviews of Dr. Lenke say about the greatest scoliosis surgeon in the world? That his operations didn't cure their problem or even worse, that he didn't respond to patients'...
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    Was your co-worker still on a walker the second...

    Was your co-worker still on a walker the second time you saw him, after he recovered from Guillain-Barre?

    Is that a disease people often recover from spontaneously?



    Any particular reason...
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    Wise answers. I had two surgeons for my...

    Wise answers.

    I had two surgeons for my surgery. What does a second surgeon do? In a video I recall seeing two people manipulating a spine while getting the rods attached, making sure everything...
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    Hope and patience are great but it's not good if...

    Hope and patience are great but it's not good if it takes so long to find a cause that the damage becomes permanent.



    I saw a folded woman three years ago. Her head was bent toward the ground...
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    I was thinking of asking the neurologists for...

    I was thinking of asking the neurologists for more tests, there must be others. But he made it sound like he had done all he could. He did schedule another appointment with me, maybe to see if I got...
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    What format are they in? If they are bmp...

    What format are they in?

    If they are bmp picture files they will be large files, but you can edit them and change the format to jpg or something similar that is smaller ("save as").
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    So could it be that there could be a tumor or...

    So could it be that there could be a tumor or something similar rather far away from the spine that hasn't been seen by chance on a scan targeting my spine? And could something like this cause...
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    Tumors will show in an MRI or CT scan if they are...

    Tumors will show in an MRI or CT scan if they are on or adjacent to the areas you are checking out, but what if they are elsewhere in the body? Will they accidentally show in a scan of the spine?
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    I had a myelogram, it showed nothing wrong, but I...

    I had a myelogram, it showed nothing wrong, but I was wondering if nerves can be impinged upon elsewhere in the body, away from the spine, that could cause my leg problems. And if so, how would you...
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    Can it be something as simple as a screw in the...

    Can it be something as simple as a screw in the wrong place sticking out or even a tumor somewhere that could be causing back pain and/or nerve issues?

    Would the MRIs that I have had all over my...
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    Diaries are good for multiple reasons. I have...

    Diaries are good for multiple reasons. I have been keeping one.

    What do you mean, you have found it better not to try to tell anyone who has not dealt with scoliosis? You mean people in general,...
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    You don't realize my main frustration with my...

    You don't realize my main frustration with my situation and my surgeon. I probably haven't made this clear. It isn't just that he's distant and detached, it's that he trying to put a distance between...
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    But I have a hard time believing that there isn't...

    But I have a hard time believing that there isn't a test that's less invasive than surgery and more invasive than imaging, say, a biopsy of the spine of some kind that could diagnose non-fusion.

    I...
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    "According to the neurosurgeon, there isn't...

    "According to the neurosurgeon, there isn't anyway to know if a fusion occurs for sure until you look during surgery. Most people find out when something happens."

    I wonder what has to happen....
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    Yeah, regarding arachnoiditis, there can be...

    Yeah, regarding arachnoiditis, there can be disagreement between doctors when things get hard to figure out. I asked about arachnoiditis and one of the doctors didn't think I had that. I'm being...
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    I can forgive mistakes because I can imagine how...

    I can forgive mistakes because I can imagine how hard their job is. They should correct their mistakes if they can or refer the patient to someone else if they can't. Not try to minimize or obfuscate...
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    And Dr. Orthopedic knew you were seeing a...

    And Dr. Orthopedic knew you were seeing a neurosurgeon at the same time? And knew about the diagnosis of arachnoiditis?



    The orthopedic guy was angry at you because you saw someone other than...
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    Is there a reason you changed from orthopedic...

    Is there a reason you changed from orthopedic surgeons to a neurosurgeon?
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    Implants being the rods? Which were never meant...

    Implants being the rods? Which were never meant to support the spine forever, were they, only until the spine fuses. So if the spine never hardens and the rods are taking all the forces, the rods...
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