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    My questions...

    So, on day two finally. Was a long night because her IV machine kept setting off an alarm every couple minutes. Seems to be fixed now so hoping tonight means sleep for all!

    She surprised everyone...
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    Surgery went well!

    She made it through surgery with flying colours! Was certainly the longest day of my life, but finally got to see her and it was wonderful. Has been a bit of a bumpy road, though not nearly as bad as...
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    I want to thank you each of you for your kind...

    I want to thank you each of you for your kind words and prayers. I would have responded sooner but I didn't know there were responses. I have hope and faith that she will do fine, and I appreciate...
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    Surgery in just over 24 hours

    Tomorrow morning at this time I will be preparing my daughter for the trip to the hospital. Some moments I feel like we are all prepared, aside form needing to pack our bag. Other moments I found...
  5. Thread: Rash

    by purplepixie
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    One month to go

    It has been a bit since I have had time to sit and write on here. Summer has kept us busy but now we are quickly approaching the home stretch it seems. Khya's surgery is set for 23 Sept. Right now we...
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    Pooka1 - I am so sorry to hear about your...

    Pooka1 -

    I am so sorry to hear about your daughter Willow. While you are graced with knowing how this goes and what to expect, still, I can imagine it is still difficult.
    I am glad she got a fast...
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    Surgery Date Set!!

    Sigh. Deep breath.

    We have finally have our surgery date set. Sept 23rd we go in. Her pre-op is scheduled a bit early apparently, on the 10th of Sept, as her Dr is on vacation the following week....
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    @Scolimomof1 I am so sorry to hear about your...

    @Scolimomof1

    I am so sorry to hear about your daughter. That has to be so frustrating, especially at such a young age. Because of when we caught my daughters bracing was never an option. I can...
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    Wonderful info - thank you. Have to agree, giving...

    Wonderful info - thank you. Have to agree, giving her what I think are the important bits and letting her ask from there. Hoping that when we meet the Dr again she might have more questions to ask...
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    Sharon - That is wonderful news! Glad to hear...

    Sharon -

    That is wonderful news! Glad to hear she faired so well. Out of curiosity, did they do anything to fix her rib-hump, if she even had one? I keep reading about how some have ribs cut down...
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    Sharon - Thank you for that. Right now my...

    Sharon -

    Thank you for that. Right now my biggest goal is to be here if and when she does have questions. I don't want to force her into talking about it if she is not ready. Figure we have the...
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    Thank you

    I so appreciate the welcome and the encouraging comments.

    Each day is anew moment and more deep breaths. I count my blessings as there are indeed worse things we could be facing. And of course new...
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    New to Forum.

    I am new to this site, as well to this diagnosis. First of all I want to thank everyone here for the time they have put in to their posts. Having only had my daughter diagnosed 2 weeks ago I have...
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