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Hey Bill - I finally popped back on and there you are! Did not realize that you and my Jacob had the exact same fusion T3-L1 on the EXACT same day! Are you having any issues with arms, legs, hands,...

Came across this as am searching to find ways to alleviate constant pain in son's back. Varying levels of exercise & stretching have had varying degrees of pain management for him, but pain is off...

Congrats on all you've been accomplishing, Bill. It's been a long time since I've been on here as well, but you were a huge beam of light when Jacob had his surgery exactly a year to the day after...

Oh no, Pam. So sorry to read this. I won't give advice nor platitudes, just best wishes that things ease up for you, and prayers for your all-around well being.

Wishing her & you a successful, smooth surgery & recovery.
I don't recall seeing this on the boards here before, but don't be surprised if she's "out of it" for several months. Jacob had surgery...

Kara,
Hope you're feeling better by now & that your doctor has ruled out any damage. My heart goes out to you, as God knows we've been through some doozies with Jacob falling, tripping, catching...

Hello, I'm jumping in on this thread as I'd also like to know what has worked for anyone. Scapula pain before & since surgery has been a non-stop part of Jacob's everyday life, yet no one has been...

Sending prayers up for your surgery & recovery, Melissa. Feel better fast.

CONGRATULATIONS, KARA!!!!! You've been through so much & have persevered - and you've been a great example & support for us on here. All the best to you - and you SHOULD have a party :) LeighAnn

We were really curious about what would happen with the scanners & opted not to discuss it before he went through. We did arrive earlier the first time Jacob flew, just in case. Chromium cobalt rods...

Sharon, thanks for your response. The L curve is the opposite, just as in the link to the Lenke 1A that you posted. It is still considered compensatory & is being closely monitored; the surgeon does...

Sharon & Linda (or anyone else with info/knowledge on this) - What are your thoughts on this question in regards to boys? Jacob was fused to L1 & as you saw in the initial xray, the lumbar curve...

You're so welcome. Don't hesitate to ask on here - everyone is so helpful. Feel free to email if you'd like -

Forgive my asking - but do you have insurance that would pay for his surgery? If so, I'd see if going w Cronen & Tampa General would speed things up, if you'd rather an earlier surgery. His office...

First - physical therapy now to help w the current pain & to strengthen for surgery. Ask about starting up again post, usually 6 weeks out.



This list was a great guide for us - biggest helps:...

Thanks for posting this! Will order & add to Jacob's regimen. ((Exercise is the key!!!!!))

Hello Cecilia -
Are you going to see Geof Cronen in Tampa as well? I understand you're seeing some incredible surgeons, but please consider an appointment with him. He is right in Tampa, did his...

Breezemom -
We as parents can't beat ourselves up, we can only research & be our children's best advocate. The silver lining of a diagnosis out of the blue like yours & ours is that you don't have...

Congratulations, Kara! Hope it just keeps getting better & better!
LeighAnn

Thank you all for responding. With the first fall, the pain was concentrated at the base of the rods as it was a direct hit. The slip & slide down the stairs jarred his entire back, which didn't...

Jacob missed the chair as he was sitting & hit the base really hard - right at the base of his rods. Pain didn't even begin to fade after a week & was very bad; Dr put him on Tramadol. Days later he...

Just a warning for Neurontin users - Daughter experienced awful nausea (seasick) while weaning off Neurontin over a 4 week period. It was so bad that we called our pharmacist, who confirmed that...

So you're the crazy guy they were all talking about at Slopeside -JK! You are quite an inspiration & I've loved seeing your pics & reading your adventures. We live for exploring & hiking this...

Hey Karen & Ed -
Just got back from Steamboat for Christmas - Dr Cronen approved Jacob to ski, so that was what we did for Christmas/birthday presents! Started on greens, then were back into blues...

Here in FL we were told we'd have a home-bound teacher but our county leveled w me post-surgery that it wasn't affordable. We had requested assignments/projects ahead of time & he did those over...